Posts - My Ovacome | HealthUnlocked

My Ovacome

17,811 members • 20,047 posts

All posts for September 2022

Rising CA125

I have just finished my 6th round of chemo for reccurance My CA125 started at 600 and steadily dropped but the last 2 rounds of chemo the numbers have gone up...

I have just finished my 6th round of chemo for reccurance My CA125 started at 60...

Tezzaa66

•2 years ago

4 Replies

Ovacome Information Booklets 📖 📚 📗

Good morning everyone This post is to let you all know that Ovacome has 30 clinical information booklets covering a wide range of topics including symptoms...

Good morning everyone This post is to let you all know that Ovacome has 30 clin...

TheOvacomeTeam

Partner•2 years ago

1 Reply

Mistletoe therapy

Hi there I listened to a talk yesterday on the Penny Brohn Cancer Support website on Mistletoe therapy and was wondering if any of you have any experience of...

Hi there I listened to a talk yesterday on the Penny Brohn Cancer Support webs...

hilaryjane

•2 years ago

2 Replies

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Mirvetuximab Soravtansine Clinical trial

Good morning all, Has anyone been on a clinical trial for this drug? The trial I'm on is called Piccolo and its a monotherapy. I have had two treatments so...

Good morning all, Has anyone been on a clinical trial for this drug? The trial...

Riverflo

•2 years ago

7 Replies

medication question-Cytoxan (oral)

Has anyone been on oral Cytoxan 50 mg daily to stop tumor growth? If so, what has your experience been? Thank you.

Has anyone been on oral Cytoxan 50 mg daily to stop tumor growth? If so, what h...

Leniko

•2 years ago

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Bowel blockage advice

Hi guys, For those of you who don’t know about my Mums situation, my mum was diagnosed with ovarian cancer (high grade serous) stage 3c with spread to...

Hi guys, For those of you who don’t know about my Mums situation, my mum was ...

LouieB123

•2 years ago

4 Replies

Another Consultant change

Just had a letter from the hospital to say Consultant has left the trust and they are recruiting .This will be No.7 in 3 years, its unsettling to not have any...

Just had a letter from the hospital to say Consultant has left the trust and the...

Rosebine2

•2 years ago

3 Replies

Taking time off work

I have either an ovarian tumour or ovarian cancer - won’t know until surgery probably in a few weeks time. Had CT scan this morning. I’m struggling to know...

I have either an ovarian tumour or ovarian cancer - won’t know until surgery pro...

Hannah1589

•2 years ago

13 Replies

Constant cough and dry thriat

I've just finished 3 weekly cycles of Taxol (hoping to get on the PROMPT trial next/soon), but I've had a constant dry throat and dry cough for about a month...

I've just finished 3 weekly cycles of Taxol (hoping to get on the PROMPT trial n...

ritabon

•2 years ago

1 Reply

Sad and scared.

I'm sad because I've had to come back from my three week holiday on Dartmoor a week early because for the last few days I've been getting really bad pain on...

I'm sad because I've had to come back from my three week holiday on Dartmoor a w...

fendweller

•2 years ago

32 Replies

Ascites and paracentesis

Hi my mother has last-stage ovarian cancer that developed into carcinomatosis with heavy ascites. Relapse (her cancer was diagnosed in 2015) and ascites...

Hi my mother has last-stage ovarian cancer that developed into carcinomatosis wi...

Medeja

•2 years ago

3 Replies

Update 😊

Currently sitting in my hospital bed looking over london! Had my debulking surgery on Wednesday with prof Fotopoulou and afterwards she told me that lucky i...

Currently sitting in my hospital bed looking over london! Had my debulking surge...

Newbery3

•2 years ago

28 Replies

Borderline tumour or ovarian cancer

I saw a different more specialist gynaecologist yesterday and was told that from my ultrasound I either have a borderline ovarian tumour or it is cancer. Got...

I saw a different more specialist gynaecologist yesterday and was told that from...

Hannah1589

•2 years ago

9 Replies

pleural effusion

I just found out two days ago I have fluid on my right lung. I had one litre drained yesterday and I’m going next Tuesday to get more drained. Waiting for a...

I just found out two days ago I have fluid on my right lung. I had one litre dr...

Purplerose12

•2 years ago

8 Replies

Trial offered

Has anyone heard of or been offered to take part in the Mersana trial? I'd be interested in anyone's thoughts or knowledge please 🙏 x

Has anyone heard of or been offered to take part in the Mersana trial? I'd be ...

Marie101

•2 years ago

28 Replies

ovarian cancer alert-I need your help

I suffer from ovarian cancer 10 years now.I was in remission for 4 years-it came back in my spline I removed it I was clean for 3 years then came back and I...

I suffer from ovarian cancer 10 years now.I was in remission for 4 years-it came...

Roulasim

•2 years ago

12 Replies

Sad news - loss of my wife

Hi - I just wanted to reach out and say thank you to everyone on this site for your words of wisdom and support for me during my wife’s illness. She never...

Hi - I just wanted to reach out and say thank you to everyone on this site for y...

Worsuz

•2 years ago

44 Replies

Rise in CA125 after 1st chemo?

Post debulking my CA125 was 311. Following the first chemo it has leapt to 513! A week before the blood tests I had a clear CT scan. I’m really frightened...

Post debulking my CA125 was 311. Following the first chemo it has leapt to 513! ...

Darkandstormy

•2 years ago

11 Replies

Friends and the OC Journey

Working thru some hurt today and wondering if anyone has experienced this or something similar I have a long term High School Friend that at the same time I...

Working thru some hurt today and wondering if anyone has experienced this or som...

Saintgermain

•2 years ago

20 Replies

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 5 September 2021 - 5 July 2022

Good afternoon everyone Have you been diagnosed with stage 3 or 4 ovarian, primary peritoneal or fallopian tube cancer and did you have your last dose of...

Good afternoon everyone Have you been diagnosed with stage 3 or 4 ovarian, prim...

OvacomeSupport

Partner•2 years ago

2 Replies

Pleurex Chest Drain Removal

Hi everyone,I had a pleurex chest drain fitted in June so we could drain my pleural effusions at home and since then (also started weekly taxol) the fluid...

Hi everyone,I had a pleurex chest drain fitted in June so we could drain my p...

doodoolatrice

•2 years ago

11 Replies

anyone become platinum resistant and on weekly taxol?

unfortunately, Rucaparib hasn’t worked for me and I am also now platinum resistant . We are Looking at alternative treatments , one of which is weekly taxol....

unfortunately, Rucaparib hasn’t worked for me and I am also now platinum resist...

Lookingahead

•2 years ago

8 Replies

low hemoglobin

my moms heboglobin is 95 one more chemo but she feels not so good because of that , what did u do to get it up? Her iron is good and ferritin is high … doctor...

my moms heboglobin is 95 one more chemo but she feels not so good because of tha...

Inguc_is

•2 years ago

5 Replies

Enjoying my wonderful horses in the ocean

Even though my ONC, nurses and pharmacist recommended against it ( they were terrified if I fell off ) You have to live life!

Even though my ONC, nurses and pharmacist recommended against it ( they were ter...

Summergold2

•2 years ago

12 Replies

Ovarian cyst or possible ovarian cancer

Found out I have something 7cm big on one of my ovaries (from ultrasound). I know likelihood is it’s a cyst but have been told they need to check it’s not...

Found out I have something 7cm big on one of my ovaries (from ultrasound). I kno...

Hannah1589

•2 years ago

16 Replies

vaccine trial at The Christie Manchester or UCH

hi Is anyone taking part in the trial of the new Vaccine for Ovarian Cancer at either The Christie or UCH? I may be put forward for this. can you tell me what...

hi Is anyone taking part in the trial of the new Vaccine for Ovarian Cancer at e...

Lookingahead

•2 years ago

8 Replies

lymph node in chest

hi I was diagnosed in 2017 stage 4 and had usual chemo and debulking surgery followed by avastin. Last scan just showed enlarged lymph node in mediastinal area...

hi I was diagnosed in 2017 stage 4 and had usual chemo and debulking surgery fol...

koza21

•2 years ago

20 Replies

Hit me with your chemo top tips (carbo/taxel)

Hi everyone. I’ve got that “it’s 3am but my brain won’t stop” problem tonight. I thought I’d do something useful like pop on here to ask people for their chemo...

Hi everyone. I’ve got that “it’s 3am but my brain won’t stop” problem tonight. I...

OrdinarySoul

•2 years ago

25 Replies

SHOULD I BE WORRIED?

I’m super anxious. I was referred to cancer pathway after few issues on my ultrasound including I’ve been bleeding heavy, bloating, losing weight rapidly etc....

I’m super anxious. I was referred to cancer pathway after few issues on my ultra...

Nattahlee

•2 years ago

29 Replies

CA125 up after month off Niraparib

Just had blood results, bit worried that after a month off my levels have gone up very slightly. The past year has seen Ca 125 at 12 - 14, now its 16, I know...

Just had blood results, bit worried that after a month off my levels have gone u...

Rosebine2

•2 years ago

10 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2022

Rising CA125

Ovacome Information Booklets 📖 📚 📗

Mistletoe therapy

Mirvetuximab Soravtansine Clinical trial

medication question-Cytoxan (oral)

Bowel blockage advice

Another Consultant change

Taking time off work

Constant cough and dry thriat

Sad and scared.

Ascites and paracentesis

Update 😊

Borderline tumour or ovarian cancer

pleural effusion

Trial offered

ovarian cancer alert-I need your help

Sad news - loss of my wife

Rise in CA125 after 1st chemo?

Friends and the OC Journey

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 5 September 2021 - 5 July 2022

Pleurex Chest Drain Removal

anyone become platinum resistant and on weekly taxol?

low hemoglobin

Enjoying my wonderful horses in the ocean

Ovarian cyst or possible ovarian cancer

vaccine trial at The Christie Manchester or UCH

lymph node in chest

Hit me with your chemo top tips (carbo/taxel)

SHOULD I BE WORRIED?

CA125 up after month off Niraparib

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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Archive

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2022

Rising CA125

Ovacome Information Booklets 📖 📚 📗

Mistletoe therapy

Mirvetuximab Soravtansine Clinical trial

medication question-Cytoxan (oral)

Bowel blockage advice

Another Consultant change

Taking time off work

Constant cough and dry thriat

Sad and scared.

Ascites and paracentesis

Update 😊

Borderline tumour or ovarian cancer

pleural effusion

Trial offered

ovarian cancer alert-I need your help

Sad news - loss of my wife

Rise in CA125 after 1st chemo?

Friends and the OC Journey

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 5 September 2021 - 5 July 2022

﻿Pleurex Chest Drain Removal

anyone become platinum resistant and on weekly taxol?

low hemoglobin

Enjoying my wonderful horses in the ocean

Ovarian cyst or possible ovarian cancer

vaccine trial at The Christie Manchester or UCH

lymph node in chest

Hit me with your chemo top tips (carbo/taxel)

SHOULD I BE WORRIED?

CA125 up after month off Niraparib

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

Pleurex Chest Drain Removal