Thank you everyone for your replies and kindness , I haven't got the energy at the moment to thank you all individually, I've taken everything on board and taken notes to take with me to my appointment next Tuesday.
Thank you all.
Cheryl
Thank you everyone for your replies and kindness , I haven't got the energy at the moment to thank you all individually, I've taken everything on board and taken notes to take with me to my appointment next Tuesday.
Thank you all.
Cheryl
God bless, and good luck for your visit next week. SheilaFxxx
Wishing you the best Cheryl,with your appointment next Tuesday. XX
best of luck Cheryl 🙏
All the best with your appointment xxxxx
don't ever feel pressured or obligated to respond. It's great to know that we've helped, just a little bit
Hi Cheryl I wrote to you yesterday but for some reason it greyed out and wouldn’t send. I’ve no pearls of wisdom to offer but I’m thinking of you and sending all the positive vibes that I can. It is dreadful waiting for results and oncology meetings but you never know it may not be as bad as you anticipated. Big hugs X
Oh Cheryl, its just so rubbish. I looked up the mersana trial Debbie mentioned. You have to have had more than 4 treatments , so if this is of interest its for now. Also not sure where you are treated you can always ask for second opinions at for eg Marsden or Christie's.
Sending love Xxxxxxxxxxxx
Hi Cheryl, when asking for advice there is never any pressure to respond individually to peoples replies. I will be thinking of you on Tuesday. Sending hugs, Kerry x
Thank you, im trying to pull myself together,but not quite managing it , having to come back from a longed for holiday was hard, Dartmoor is my spiritual home ,it was so important to my husband to take me there one more time ,we made it but wasn't able to go to all the places we wanted to, still feel very sad about that, I wanted it to be full of good memories for my husband. Enough weeping and wailing, I'll just have to get over it .
Cheryl x
I was in a really bad place a few weeks ago when I was taken off a clinical trail as I had developed a pleural effusion. I was so poorly and as i was being drained so often i had a temporary drain fitted which made me feel even worse. I struggled to eat, started to become a recluse and became very, very sad. Everyone around me seemed to be having fun, going off on holiday and making plans whilst my head was constantly full of sombre thoughts. Our house was so sad, hubby was drinking too much and the guilt of what my illness was doing to our family was laying very heavily. Anyway long story short the trials team offered me a place on another Trial which involved chemo and a trial drug. This gave me the encouragement i needed to pick myself up and try and start eating as i knew i wouldnt cope with chemo feeling like i did. Im now 2 months into the trial and whilst chemo is knocking me for six, the drain has been removed and im in a better place physically and mentally. I'm sure they will have a treatment plan in place for you on Tuesday and in time maybe you can plan another trip to Dartmoor and finish off that holiday xx
pleapleased you're doing better now , I can relate to everything you've said , I feel so guilty over everything even though I know it's not my fault, I think I might have some ascitis because I feel really bloated and uncomfortable, going to call my CNS tomorrow , you've made me feel better.
Cheryl xx
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Hi Cheryl, praying that you will feel better with your next appointment. You have been through so much. Take care, Donna xx
Hi Cheryl, Thinking of you at this very stressful time. ❤️ Gwen