Abdominal pain

[Iwillbeatit]

Had abdominal pain all night which was also a stabbing pain on and off. Taken oxycodone but still in pain. I am on Niraparib stage 4b anyone else had pain constant like this. Could it be adhesions or ascites or what any ideas?

[Lyndy]

Please alert your team as soon as…I have had bad heartburn with Parp but not the kind of pain you describe. Get yourself checked out just in case xx

[Iwillbeatit in reply to Lyndy]

Thank you Lyndy in accident and emergency now after speaking to CNS nurse.Hope you are ok.

[Lovedogs41 in reply to Iwillbeatit]

Hi how are you doing? Hope things are ok xx

[Iwillbeatit in reply to Lovedogs41]

Hospital says after lots of tests Pain is from adhesions. So Gp and hospice revising pain management plan. So at the moment oxycodene increased. Thank you for asking. 👍😘

[Lovedogs41 in reply to Iwillbeatit]

Oh bless you,I am glad to hear your feeling more comfortable,put your feet up now! x

[Sashay2020 in reply to Iwillbeatit]

Hope tweaking your pain medication takes care of the problem for you. Sashay

[Lyndy]

Hope you feel better soon x

[Eriksendi]

I offer every sympathy as I too have had pain from adhesions, it can be excruciating. I’ve just had surgery for mine and I’m still in pain at the moment. Hope your revised pain meds do the trick x x

[Artyrose]

I have a pain which sounds similar, under ribs and round to my back. I’m glad to see you have a diagnosis and hopefully better meds - I was looking up symptoms of adhesions last night so appreciate the answers too xxx

[Iwillbeatit in reply to Artyrose]

Sorry to hear you probably have the same they are painful. I hope you get some relief let me know how you get on.x

[SUE7777]

Sending a big hug and hoping you soon feel better. Sue xx

[organicinna]

Hi dear. Am on Niraparib stage 4c. Had debulk surgery last March and 6 successful chemo's. On Niraparib since October. But after 3 weeks on parps was admitted to hospital with severe stomach pain and vomiting. That's happens to be small intestine blockage. My surgical team explained to me that that after the operation we develop hinges and our intestines and insides become soft and sensitive and twist sometimes. In my case because I was eating large quantities of high fiber food ( fruit, berries, nuts, popcorn, brown bread, raw salads and other stuff ), which is hard to digest . Some food got trapped and build a blockage over time. Sometimes it requires operation but first they trying to resolve this with nil by mouth and tube trough the nose . They not keen on operations if they can avoid it. Because new operation will cause more new hinges and scars. After nil by mouth for 7 days they put me on liquid diet for another week , drained all nasty stuff from my stomach , sloppy diet for one month at home. Then they recommend non fiber diet for long time time and slowly introduce very little kinder fiber later on. I was very well and buzzing since I got home in November, but last weekend out of the blue got not nice nagging pains in the area when i had my ovaries. Hinges again ? I don't know )) Same pain I had before debulk op but now there no ovaries ! )). I was taking double of codeine and paracetamol. It helped but not completely. So I will call my team to report that< will see what they say. Am now seeing them once a month for bloods and face to face or on the phone. I recommend like as well you contact your team. All the best to all of us ))

[organicinna]

Sorry haven't seen all other messages and your answers, silly me )) I wanted to ask you why HOSPICE revising your pin plan? Am same stage like you but nobody told me I already have to register with hospice?? Obviously am scared of this name ))

[delia2 in reply to organicinna]

I think you decide with your consultant about hospice when you decide or are told there’s no further treatment available. Palliative care on the other hand can help you at any stage.

[organicinna in reply to delia2]

Hi Delia. Yes I've heard that. I just got scared of the mention of " hospice" word. And the lady is same stage like me, so I got a little panic )) I know hospices they do palliative care and pain control. But so far RM providing my treatments and am not keen to go and make friends with hospice yet )))

[Iwillbeatit in reply to organicinna]

Hi I am so sorry to hear all you have been through my CNS nurse is discussing my issues with my consultant. When I was diagnosed oc4b the consultant referred me to the hospice and they rang me and asked me to go in and hear what they could do. I was still in shock from my diagnosis. It was the best thing I could have done. Before covid I was attending Day service there where you meet people with similar issues and you kept tips for dealing with so many different issues. There was always a nurse there so you could have a quick chat. Helped me with sore scalp when my hair fell out. I learnt to paint did Qi gong and many other things from working full time to an empty life it saved me. When I have a problem there is a doctor on duty 24 hours.When I have been too ill the dr comes to the house a nurse is at the end of the phone and they ring every 2 weeks. My consultant suggests drugs but hospice doctors manage them and you can get hold of a nurse to discuss them if you have a problem. They are all about celebrating life helping you do the best you can. They can also.help with advice on finances and will out forms for you for PIP and blue badge. The support is amazing. I had ascites 12 months ago and with covid I was terrified of going into hospital and when I told the hospice they told me I could have them drained at the hospice so I went in there for two nights. So reassuring to have people around you knew and doctors attending such few patients keep coming back to check you. So don't think a hospice is just about dying it's about so so much more than that. They will help you fight your way down your new life path. Good luck keep postingxxx

[organicinna in reply to Iwillbeatit]

Ooh you are so lovely )). Yes i sort of knew and heard and watched nice and educational documentary series on YouTube about HOSPICE's life, their work and people there. Still everything inside me holding me back to go and open its door, thinking that would be IT ))) You know what I mean ? )) But your post was so inspiring , reassuring and made me smile ( happy smile ) , so i think I will bring myself up and give them a call.....None from my team suggested hospice to me after the diagnose and even now . I was given folder with different booklets with information on OC and all help and basic information we can get. Macmillan charity lady helped me on financial side with ESA . But they didn't say anything about PIP . I discovered I can apply for PIP myself few month later. PIP was along wait 5 month and done them as well. PIP is slow organisation, they started to pay me 5 month later but it was nice to get 4 figures lump sum at the end ! Now i can't decide shall I spend it on my tooth implant or prearranged funeral plan ??? ))) LOL

We don't have Day service like you describing in RM Sutton where I live. We have newly build lovely designed Maggie's centre near RM. But they definitely don't have a nurse there. Only few lady's that can seat and listen to you if you want to cry. I dint wanted to cry at that moment when I came there. I was seeking activities that can occupy me in my empty new life )) But at this very moment they only do most things online and only Mondays walking group can meet there for walks in the local woods and tea after. I went on one walk so far and it was nice. I v seen painting art therapy sign in occupational health department in RM. But i think its not walk in, think we need referral from the team first for that as well as other helps and therapy's I will ask about art classes at some point , i used to draw and paint long time ago. I had free massage sessions during my chemo at RM . We entitled to 6 only and that was very nice. But acupuncture for hot flashes and insomnia is ten 15 min sessions . Afterwords they teaching you how to do it DIY at home ( only 2 needles on feet and 2 and legs ) and supplying with needles and instruction ))

What is ascites ? is it bad ? you OK now ?

Thanx again for lovely message/xx

[Iwillbeatit in reply to organicinna]

Hi so lovely to hear back from you You must only do what you feel is right for you they have taught me that. Unfortunately covid has stopped activities but when you can go out any class like art craft pottery poetry book clubs are distracting which is good for us. I got ascites 6 months after 18 months on Avastin. The cancer had started growing and it's a fluid those cells give out your tummy swells to 9.month pregnancy size and is very hard. When you have these they put in a needle into your tummy and through the peritoneum they then drain off fluids I had 5 litres drained off. I then started chemotherapy again and this stops the fluid building. I have heard great things about a Maggie's centers but there is not one near me. Good luck keep posting your progress we need to help each other. Just had my morphine so off too sleep now. Good luckxx

[delia2]

I’m glad you found the cause of your pain. I hope it will ease up for you. Xx

[Realistic]

Please get help and advice asap, just to make sure it nothing serious that doesnt sound right. The experts will check you out hopefully take your cancer patient card it should get you seen quicker if you go too A&E. It will give you peace of mind hopefully and more importantly get you some much needed pain relief. Sending love & hugs hope you feel better very soon SheilaF xxx

[Iwillbeatit in reply to Realistic]

Thank you for your message. I was horrified when I was in the CDU I kept telling them I was extremely vulnerable due to my bloods and I should be on my own there was one man who was 86 but kept taking his mask off and was coughing i kept telling the nurse but as soon as she went he took it off he knew what he was doing there was a lady with a dementure she could not keep one on and another man being sick so I felt totally unprotected put on two masks. They knew all my issues as they were treating me too. Poor nurses but not good for us vulnerable people. X