Mummawoodsy

[Mummawoodsy]

Hi everyone - I have just joined today as this was recommended to me by a stranger and I’m in need of finding fellow souls who can relate to my situation . With lockdown on top I’m feeling v alone with it all. I was diagnosed with xxxneg breast cancer back in 2016 and then peritoneal cancer in 2019 . I am BRCA 1. I’ve been told twice I’m about to die and I’m still here! On weekly chemo taxol and avastin with no idea what my future holds - how long I can do chemo for etc - I’ve already read a few posts about people Doing three or four lots of chemo which is so reassuring. Is anyone trying metformin and had some nasty side effects - and did anyone have a bad reaction to the vaccine? Just need to connect! Peritoneal cancer is v similar to ovarian cancer by the way if u aren’t familiar - id never even heard of it. Sorry I’m ranting on ..... so look forward to hearing from someone!!! Huge thanks in advance 🥰

[SASSY196]

Hi, I'm so sorry to hear you news. I hope that you are feeling as ok as possible with the side effects. I'm no expert on this situation, others will give you lots of advice and I have read many accounts of people doing well and having many lines of chemo. Lockdown is rubbish but I guess it's what it is! I try to just do life as gently as possible with lots of care to those I love and myself. I had the vaccine in January- Pfizer with no side effects. I hope you find comfort and support on this forum- I have x

[purfekt10]

I was diagnosed with primary peritoneal carcinoma in 2018. I had four rounds of chemo (taxol/carboplatin), then debulking surgery, and finally four more rounds of chemo. I see my oncologist for regular checkups.

[27-359]

Welcome to this site. You will find all the help and support you need here. There will always be someone who has had the same issues as yourself.'re the vaccination, I had Astra Seneca and had a sore arm for a few days, and was a bit sore and shivers for twenty four hours.

Jenny

[Di16]

I had covid vaccine 3 weeks ago with no problems. I also took Metformin for, I think, about 10 years with little problem. I've had 3 types of chemo so far, & they want to start me on another. No-one looks forward to chemo, but if it helps... Di

[Mumsie13]

Hello and welcome. Sorry to hear your news. This is a horrible disease but I hope we can offer some support and comfort. Just picking up on a couple of your comments. I have been on Metformin for a couple of years now for type 2 diabetes. Whether or not it is helping with the cancer is debatable but I do know that there is a treatment protocol that includes Metformin, Atorvastatin and some chemo drugs. I am sorry to be so vague I didn't save the member's post that mentioned this. Perhaps one of the other ladies on here can remember or supply the details. As far as side effects go the only problem I had was some diarrhea which was sorted after a while with dose adjustment and changing time I took it. I have had the Astrazeneca COVID vaccine. I didn't get a bad reaction although I did get some mild side effects. I had a dull headache, a raised temperature (nothing too serious) and felt a bit shivery for about 48 hours max. I also got the slightly sore arm but, again, this didn't last for long. I was well able to cope with this. It's great that you are still hearing fighting and I truly hope you have some positive results from your chemo. Please let us know how you get on. Jackie x

[Mummawoodsy in reply to Mumsie13]

Thanks Jackie!! U r fab to reply. I’m just reading my posts and I sound so nutty comparedTo everyone else!! So grateful

For every day I wake up - I think it’s just beenlocksown and being isolated and not had much ‘fun’ for v long time. It’s all getting on top

Of me. I will rally! I watched my mum

Go through cancer three times

And she was utterly amazing but I understand her so much more now and why she was so low...... bring on more Michael

Macintyre!!! Hope u have a great day! Love lorna

[Mumsie13 in reply to Mummawoodsy]

Hi Lorna. Don't worry about sounding a little nutty. It's not uncommon. I think most of us feel a bit overwhelmed with it all at times. When I have looked back at some of my posts I wonder what the heck I was thinking. I think lockdown had s lot to answer for. I am the sort of person who can always find something to do and I like a certain amount of routine but the shere monotony sometimes drives me nuts. I sometimes wonder what I am fighting for but I have a good wallow, pick myself up and push forward. Sometimes we just have to let the grief out instead of keeping it inside. Your mum sounded wonderful a real role model and you are doing all you can to fight this horrible disease. Sending lots of virtual hugs your way 🤗 Jackie

[Lyndy]

Hello and welcome! You will find others here with PPC and with BRCA 1 (me) and with lots of experience to share. Good luck with your treatment xx

[Neona]

Welcome to the group. I don’t know much about peritoneal cancer but I know that being braca positive opens up a lot of treatment options.

[Mummawoodsy in reply to Neona]

Wow Thanknu neona - I’ve been told because I’mBRCA 1 my options are v limited - can u enlighten?

[Neona in reply to Mummawoodsy]

Not knowledgeable on this as BRCA negative but I know Parps work better for BRCA positive patients. I’m sure there are others - will see if can find our more

[Neona in reply to Neona]

Olaparib seems to be approved for after you’ve had 3 lines of chemotherapy. I think you should look into clinical trials too and possibly HIPEC

[Mummawoodsy in reply to Neona]

You are lovely neona - ibmve already had Oliparib and cancer returned within theee months after chemo and debulking so can’t have that again🤨but I wil ask my oncologist about the other thing u mentioned thank u!!

[TNkit]

I too was diagnosed in 2019 with peritoneal cancer (Stage 2 b HG at age 70) Had surgery to remove tumor and 6 sessions of taxol/carbo - side effects tolerable. Just do what nurses tell you which includes at least 64 oz of water every day. Was NED and oncologist found another tumor- more surgery in 2020 but praise God not cancer. Once said 99% of time it is cancer. Have my next checkup 3/1 🙏🤞

[Mummawoodsy in reply to TNkit]

good luckWith your results !! And Thanknu for replying 👍😀

[IrishMollyO]

Hi thereI was diagnosed with high grade serous stage 3c PPC in 2011. I was considered inoperable but Carboplatin and Taxol for 6 Months cleared the cancer cells and I was considered NED ( no evidence of disease ) . I remained stable for 5 years when it returned to my Peri Aortic lymph nodes. More chemo followed. Then a totally unrelated breast cancer struck out of the blue ! I had a mastectomy followed by radiation .

The cancer is still growing in my lymph nodes although slowly I have been told . I had my most recent CT scan last Monday and I am anxiously awaiting the results. My CA125 was 113 at the last count and I will repeat the test on Monday. All this time Covid 19 is rearing it’s ugly head and I have not been offered my vaccination yet. I will be with my GP on Monday to do the blood test so I’m hoping I will be offered the vaccine at the same time.

I started telling my story to let you know that up to now at least I have been a long term survivor. I wish you all the best in your own journey .

X X

💚💕