Hi everyone - I have just joined today as this was recommended to me by a stranger and I’m in need of finding fellow souls who can relate to my situation . With lockdown on top I’m feeling v alone with it all. I was diagnosed with xxxneg breast cancer back in 2016 and then peritoneal cancer in 2019 . I am BRCA 1. I’ve been told twice I’m about to die and I’m still here! On weekly chemo taxol and avastin with no idea what my future holds - how long I can do chemo for etc - I’ve already read a few posts about people Doing three or four lots of chemo which is so reassuring. Is anyone trying metformin and had some nasty side effects - and did anyone have a bad reaction to the vaccine? Just need to connect! Peritoneal cancer is v similar to ovarian cancer by the way if u aren’t familiar - id never even heard of it. Sorry I’m ranting on ..... so look forward to hearing from someone!!! Huge thanks in advance 🥰
Mummawoodsy: Hi everyone - I have just joined... - My Ovacome
Mummawoodsy
Hi, I'm so sorry to hear you news. I hope that you are feeling as ok as possible with the side effects. I'm no expert on this situation, others will give you lots of advice and I have read many accounts of people doing well and having many lines of chemo. Lockdown is rubbish but I guess it's what it is! I try to just do life as gently as possible with lots of care to those I love and myself. I had the vaccine in January- Pfizer with no side effects. I hope you find comfort and support on this forum- I have x
I was diagnosed with primary peritoneal carcinoma in 2018. I had four rounds of chemo (taxol/carboplatin), then debulking surgery, and finally four more rounds of chemo. I see my oncologist for regular checkups.
Welcome to this site. You will find all the help and support you need here. There will always be someone who has had the same issues as yourself.'re the vaccination, I had Astra Seneca and had a sore arm for a few days, and was a bit sore and shivers for twenty four hours.
Jenny
I had covid vaccine 3 weeks ago with no problems. I also took Metformin for, I think, about 10 years with little problem. I've had 3 types of chemo so far, & they want to start me on another. No-one looks forward to chemo, but if it helps... Di
Hello and welcome. Sorry to hear your news. This is a horrible disease but I hope we can offer some support and comfort. Just picking up on a couple of your comments. I have been on Metformin for a couple of years now for type 2 diabetes. Whether or not it is helping with the cancer is debatable but I do know that there is a treatment protocol that includes Metformin, Atorvastatin and some chemo drugs. I am sorry to be so vague I didn't save the member's post that mentioned this. Perhaps one of the other ladies on here can remember or supply the details. As far as side effects go the only problem I had was some diarrhea which was sorted after a while with dose adjustment and changing time I took it. I have had the Astrazeneca COVID vaccine. I didn't get a bad reaction although I did get some mild side effects. I had a dull headache, a raised temperature (nothing too serious) and felt a bit shivery for about 48 hours max. I also got the slightly sore arm but, again, this didn't last for long. I was well able to cope with this. It's great that you are still hearing fighting and I truly hope you have some positive results from your chemo. Please let us know how you get on. Jackie x
Thanks Jackie!! U r fab to reply. I’m just reading my posts and I sound so nutty comparedTo everyone else!! So grateful
For every day I wake up - I think it’s just beenlocksown and being isolated and not had much ‘fun’ for v long time. It’s all getting on top
Of me. I will rally! I watched my mum
Go through cancer three times
And she was utterly amazing but I understand her so much more now and why she was so low...... bring on more Michael
Macintyre!!! Hope u have a great day! Love lorna
Hi Lorna. Don't worry about sounding a little nutty. It's not uncommon. I think most of us feel a bit overwhelmed with it all at times. When I have looked back at some of my posts I wonder what the heck I was thinking. I think lockdown had s lot to answer for. I am the sort of person who can always find something to do and I like a certain amount of routine but the shere monotony sometimes drives me nuts. I sometimes wonder what I am fighting for but I have a good wallow, pick myself up and push forward. Sometimes we just have to let the grief out instead of keeping it inside. Your mum sounded wonderful a real role model and you are doing all you can to fight this horrible disease. Sending lots of virtual hugs your way 🤗 Jackie
Hello and welcome! You will find others here with PPC and with BRCA 1 (me) and with lots of experience to share. Good luck with your treatment xx
Welcome to the group. I don’t know much about peritoneal cancer but I know that being braca positive opens up a lot of treatment options.
Wow Thanknu neona - I’ve been told because I’mBRCA 1 my options are v limited - can u enlighten?
Not knowledgeable on this as BRCA negative but I know Parps work better for BRCA positive patients. I’m sure there are others - will see if can find our more
Olaparib seems to be approved for after you’ve had 3 lines of chemotherapy. I think you should look into clinical trials too and possibly HIPEC
You are lovely neona - ibmve already had Oliparib and cancer returned within theee months after chemo and debulking so can’t have that again🤨but I wil ask my oncologist about the other thing u mentioned thank u!!
I too was diagnosed in 2019 with peritoneal cancer (Stage 2 b HG at age 70) Had surgery to remove tumor and 6 sessions of taxol/carbo - side effects tolerable. Just do what nurses tell you which includes at least 64 oz of water every day. Was NED and oncologist found another tumor- more surgery in 2020 but praise God not cancer. Once said 99% of time it is cancer. Have my next checkup 3/1 🙏🤞
good luckWith your results !! And Thanknu for replying 👍😀
Hi thereI was diagnosed with high grade serous stage 3c PPC in 2011. I was considered inoperable but Carboplatin and Taxol for 6 Months cleared the cancer cells and I was considered NED ( no evidence of disease ) . I remained stable for 5 years when it returned to my Peri Aortic lymph nodes. More chemo followed. Then a totally unrelated breast cancer struck out of the blue ! I had a mastectomy followed by radiation .
The cancer is still growing in my lymph nodes although slowly I have been told . I had my most recent CT scan last Monday and I am anxiously awaiting the results. My CA125 was 113 at the last count and I will repeat the test on Monday. All this time Covid 19 is rearing it’s ugly head and I have not been offered my vaccination yet. I will be with my GP on Monday to do the blood test so I’m hoping I will be offered the vaccine at the same time.
I started telling my story to let you know that up to now at least I have been a long term survivor. I wish you all the best in your own journey .
X X
💚💕
Chemo delayed again as I’m 0.7 neutrapenic
Update 
Primary Peritoneal Cancer
New diagnosis - feeling frightened
