I've realized more and more how important it is to be my own advocate and I also like to think of myself as a bit of a medical sleuth so hoping for thoughts on the following:
In British Columbia (Canada) we are now allowed access to all of our medical reports, labwork results, hospital treatments, etc. by way of a "portal". It is a great way of keeping track of what my body is doing. I have found some info that I believe shows that my OC started much earlier than I thought and had a CA-125 test been done at the time I might have been at Stage 1 instead of Stage 3. I'm not trying to blame anyone but maybe this can help someone else. Here's my story.
April 23, 2017 I ended up in emergency with severe pain in my right side near my ovary. Tons of tests (including CAT scan) were done with no definitive answers. Blood work was also done including GGT test which was flagged because it was higher than the reference range (45 U/L). I was sent home, no followup and the pain lasted for approx. 5 days then disappear (at the time I thought it might have been a cyst that burst).
September 2018 - (after symptoms and Ultrasound) CA-125 test ordered - higher than reference range - CAT scans done and OC diagnosed
October 2018 - CA-125 test redone and number has doubled
November 2018 - due to Blood clots in lungs many more tests were done - including another GGT test. Results were even higher (54 U/L) than the test in April 2017.
I have been researching and found that Human Ovarian tumors express gamma-glutamyl transpeptidase. My thoughts are with the severe pain I had and the higher than normal GGT results should a CA-125 test been done at that time. Maybe the GGT test could serve as a marker for identifying OC at the early stage.
I would love to hear any thoughts my OC sisters have.