Ovarian

[Pianoanddisco]

Hello beautiful ladies,

Has anyone been on Avastin or Elahere maintenance after chemo? If so can you share your experience. What were your side effects? How soon afterwards do the Drs recommend a CT scan while on maintenance.

Thanks for sharing.

[nordic5]

Hi, I was on Avastin, without great problems. First it was Avastin alone, then with Olaparib. CT every 6 months. Elahere is for platinum-resistent patents, so mayby in future.

[Pianoanddisco in reply to nordic5]

thanks for sharing nordic5, it's great to know you were ok with it.

[Alpacalama]

Hi I was on avastin inc with chemo carboplatin and paclitaxel after that finished it was avastin and olaparib. Avastin 18 months and finished Olaparib the month after (10 mths instead of 24 ) due to chronic fatigue. I think the Avastin was one responsible for high blood pressure as I after stopped it went back to normal. Also think it caused the neuropathy as that more or less righted itself once I finished it too.

[Pianoanddisco in reply to Alpacalama]

Hi Alpacalama, I too had chemo carbo and taxel with avastin together. but now they want to put me on maintenance only. Either Avastin or Elahere.

Are you done with your maintenance and if so, are they monitoring you with bloodwork and scans every 3 to 6 months?

[Alpacalama in reply to Pianoanddisco]

Yes I was moved to 3monthly checks and my last scan was August last year. CA125 stable around 45/50. I’ve normally got some inflammation in my body due to having psoriasis/arthritis. This last month I’ve had niggly period type aches, so I’m getting a ct scan soon just to be sure everything is ok. I maybe moved to 6month checks if all is clear. My oncologist seems to think because I’ve passed the 2yr NED it will be unlikely to recur. I can only hope he’s right! He’s always been very positive but quick to do scans if I’m worried so I can’t complain about treatment as it’s always the best. Unlike a few other ladies experience on here.

Keep in touch, wishing you the best

Pauline

[Pianoanddisco in reply to Alpacalama]

thanks so much for sharing Alpacalama. That's good to know...I'm glad your CA125 is stable. Wishing you all the best as well and yes, keep in touch !