OC3C survivor since 2009

[Lizzy-joined2009]

Hi, I first joined this forum shortly after I was belatedly diagnosed in 2009. It was a very small place then, and I dejectedly detected a whiff of bitchiness.

I had work related PHI then, via Jim - my husband's - job. So we used the local Spire outfit. Alas that hospital didn't have enough ICU capacity, so my private surgery was called within 20 hours of my admission appt. I was picking up a few essentials ATT, my husband took the call.

I was furious. I tried to talk to the fellow. But curiously none of his numbers ever answered me. I as a typical Scot with multiple medics in my family (and also a few crooks!) knew that Ovarian Cancer is known also as The Silent Killer...

I had a mini nervous breakdown and wound up on a NHS psych ward for a few days...

Thanks to God I am still here, after the catastrophe in Hull, we went to Harley Street. Our onc. is still alive, and I am still in touch with him to this day. Since we know consider each other as friends, he hasn't charged me a penny for the last 10 years.

Update: my beloved Jim died of a brainstem glioma 15/09/2020. I am still dealing with that...

I am here to help.

[Lizzy-joined2009]

Oops literal - surgery was cancelled, not called...

[Grumps3 in reply to Lizzy-joined2009]

Hi

I'm so sorry to hear about your husband Jim. Sending love 💕

[Mammi]

So sorry for the loss of your beloved Jim,who I’m sure like my husband,was your rock! Still however wonderful to hear from any long term survivor.I’m now 6yrs clear but still find it difficult to believe I could possibly beat this. Just lost my dad & that sadness definitely brought back doubts so can imagine how you are feeling. My go to is the poem The Oak Tree …helps get me back on track 😊X Dee

[Morini]

You are being helpful just being here and posting. This gives me hope that OC can sometimes be survived.

So sorry to hear of your bereavement, it sounds like you and Jim got through much together xx

[Katmal-UK in reply to Morini]

OC can sometimes be survived. I’m in my 18th year and although I was originally told I had 2 years for the last 14 months my onc has used the word ‘cured’……

[Grumps3 in reply to Katmal-UK]

That is wonderful to know!! 💞

[win_56 in reply to Katmal-UK]

I've followed your story and it's absolutely fantastic that you've come this far. I'm so happy for you. You truly are an inspiration to all of us going through this awful disease. I want to thank you personally for all your support over these years and thought of us less fortunate. X 💞

[Katmal-UK in reply to win_56]

Awww Ty. I sometimes hesitate to post but I want ppl to know there is hope. I hope you do well. Big hug xx

[delia2]

I am really sorry to hear about your husband. But glad you have survived so wonderfully! Thanks for posting.

[win_56]

First of all I'm so very sorry to hear about your husband my sincere condolences It's truly inspirational that you are a stage 3 survivor after all these years..We need to hear more of these great survivors stories to give us hope. Thank.you..

[Lizzy-joined2009]

Thanks all - very sincerely appreciated.

As I said I am here to help and I will try to do that. But I am not a medic and I cannot answer medical questions. I can only tell you what happened to me, what I think helped and what I think didn't.