Is it back?

[Wahe]

l finished my maintenance in July 2024. Oncology said they’ll see me every 3 months just to keep an eye on it, they said to let them know if I have any symptoms or worries.

The last appointment I had with the oncologist l told her l can feel pain in my abdomen but she reassured me it wasn’t anything to do with ovarian cancer and all she can do is maybe refer me to gastrointestinal department. She said wait for my next appointment which is on 17 December.

My pain has got worse and it was like the pain l had before diagnosis. I call oncology who gave me helpline number to call, they told me to go to my GP or A&E. GP persuaded the on call surgeon to see me and agreed to seeing me at 8am. I was in a lot of pain and the painkillers were not helping. The surgeon saw me finally at about 2pm. I explained to her that l think it is cancer and she felt my abdomen and reluctantly agreed for me to have ct scan done but let me know she’s doing this because of my GP and that l should really be seen by the oncologist. But didn’t let me explain that was my first call. I was told l can’t eat until my scan was done and reviewed. Eventually got my scan done 8pm and at 10.30pm dr said they have sent the results to oncologist and if l don’t hear from them by Thursday to call them. Of course after hearing that l wasn’t able to eat. I have my appointment tomorrow morning and I haven’t been able to sleep well since and have been worried. It’s going to be a long night.

[Newbery3]

Hi, I totally understand as do many of us on here. I'm finishing maintenance end of January 25 and had a scan 6th November to check that things are still stable, waiting for the results has caused so much stress and sleepless nights and I'm sure it's not helping as I'm having niggling pains now too! I think I'm going to be hypersensitive when I finish olaparib and if I can't passed pillar to post like it sounds you have been then I think I'll lose it too!! Good luck for your results and keep us Informed xxx

[DianaPrince_]

It might not be back.

It could be bowel adhesions, scar tissue from surgery.

It could be something completely different.

After I completed treatment every pain, every ache meant it could be back. I think it's a lot of people do.

For me, it was the not knowing and wondering that was the worst.

But you're getting it looked into, you're taking action, and whatever it is will be dealt with.

[Sunsetime]

Hi Wahe, living with uncertainty is so so difficult, and I really hope that your appointment gives you answers. Take care. X

[Angeldust123]

Hi Wahe, I know exactly what you mean, it’s so awful having to wait for results. I’ve had ovarian cancer since 2016 and the stress has been overwhelming. I just wish they would find a cure for this awful disease. I wish you all the best for your results, I hope you get peace of mind. Sending you love.

[delia2]

Hi. Please let us know the results of your scan.

I think we all know what you’re going through and I’m sorry your oncologist was so dismissive. It’s really good you advocated for yourself. Xx

[Saintgermain]

It could be adhesions I'm in the states not sure your protocol is but I could suggest a Pet Scan or MRI of the adomen