deflated

[Kerri1402]

Hi all,

I posted on here little while ago about my mum having total abdo hysterectomy for ovarian cancer. We are now 3 weeks on from surgery. a 10cm cyst was removed which at the time, they assumed it was cancer.

We went to her results and biopsy results yesterday. We were all extremely shocked to be told it wasn’t ovarian cancer but actually bowel cancer…

I think she said when they operated, she saw small tumours on the bowel wall which literally looked like they were “sprinkles” everywhere. This was also seen on the biopsy results.

Because they were gynae specialists, they were unable to tell us much at all other than unlikely to have another op as it was all over the bowel??? And when I asked if it was advanced she didn’t really give me a straight answer.

We don’t know what this means for us going forward… again, it’s left us in limbo, in a really bad head space and starting all over again with another speciality.

We’ve gone from thinking the ovarian tumour was out and that she would need “mop up chemo” to “ your bowel is cancerous everywhere” but we will refer you on to colorectal….

I would have thought the CT scan would have picked up anything with the bowel. Her stool samples also only came back slightly inflammed. I feel like surely if they saw “small lumps:tumour” whilst operating, they should have said something? Instead it was such a shock yesterday.

So back to square one ☹️ recovering from surgery with cancer well and truly still present, waiting for a new team, a new MDT plan etc. Deflated….

[Alpacalama]

Oh I’m really sorry to hear that. It’s so much to get your head around. I can only send ❤️🙏 I hope you get support you need.

[Newbery3]

This is so annoying and upsetting for you all!!! I'd get on the phone to see if your mums appointment can be pushed through as an emergency! Waiting again to get answers is awful 😖. I think this site has a bowel cancer group too that may be able to offer some advice. Sending you all a big cwtch ❤️‍🩹x Rhian.

[0462County]

I am so sorry to read what has happened to your mum. I hope the new team/MDT act fast for your mum. Sending you all my love and hugs. Xx

[Trea3]

hi there Kerry, I was the opposite. I went in for Bowel surgery to remover the tumour which took away nearly half my large colon and while operating they noticed my ovaries didn’t look right so removed them. Two weeks later confirmed ovarian cancer 6 weeks later radical hysterectomy followed by chemo.

Bowel cancer is a slow growing cancer but I’m sure the pathway will be speedy.

Take care of yourself as well as your mum xx

[delia2]

I’m so sorry to hear this. Before my surgery they felt there was some chance mine was bowel cancer but the pathology determined it was fallopian/ovarian. You could always ask for a second opinion from a pathologist at a major cancer hospital. I hope your mum gets in to see a new consultant quickly.

[FlowerRose]

All I can offer is a hug from Los Angeles 😞

[Heatherslade]

Sorry to hear about biopsy results for your mum. I had bowel then ovarian cancer. Amazing op at Christie's. If you look at my profile details are on there and might be useful. Sending love to you all and hope your mum can get further treatment. x