Radiotherapy for pelvic lymph node

[win_56]

Hi all hope you're doing as well s can be! Just wanted to know if anyone has had radiotherapy for pelvic lymph node. I've just had radiotherapy for superclavicular Fosse lymph node near collar bone and in two weeks start radiotherapy on the pelvic node. Im goi g in Wednesday to have the pre radiotherapy scan with contrast and signed the consent form. The possible side affects for this look worrying but as my husband said I guess they have to cover ever possible side affect. Has anyone had this done a d did you receive any side affects? Thanks

[Jud15]

Hi Win, I had radiotherapy to my abdomen/ aorta area not my pelvis as a lymph node had wrapped itself around the latter and was causing problems. So not my pelvis but some of the information I had was in relation to my specific issue, but also more general side effects like possible diahorrea, which I had for the week after treatment. I think your husband is right they have to cover everything so that you can give an informed consent. The positive thing is that you know what it's like to have radiotherapy so that part won't be particularly scary. I had 10 days of treatment and subsequently after a break had the same dose but in 5 treatments for chest lymph nodes which has so far shut them down as the treatment was palliative as they've never responded much to chemo. The bit I found hard was that these results are more long term and the radiotherapy oncologist waited nearly 3 months to scan me each time. But I wish you well as it's been a successful experience for me.

[win_56 in reply to Jud15]

Thank you for your reply Judith that very reassuring to know the outcome was positive. I had three cancerous aorta lymph nodes 2 years ago and had them removed as radiotherapy was not an option I have as advised. May I ask what hospital you had the radiotherapy on your lymph nodes? Thanks.

[Jud15]

Sorry Win I forgot to sign off Judith

[Yorkiepudd]

Hi Win, I had external pelvic radiotherapy after chemo and did have some symptoms but nothing unmanageable. I was tired and bowels got looser (opposite to chemo!) about halfway through, but found a good balance with Loperamide and Movicol. I agree the literature is a bit scary but they have to ensure you’re given every possible bit of info.

Michelle x

[win_56 in reply to Yorkiepudd]

Hi Michelle thank you for your reply. Was your outcome positive and did you have any lymphodema? Thanks

[Yorkiepudd]

Hi Win, positive so far and it’ll be four years in December since finishing all treatment. No lymphoedema. M

[win_56 in reply to Yorkiepudd]

That is great news Michelle . Im so please to hear that. XX

[soyoonsoy]

I am on it right now to kill off enlarged lymph nodes and some residual tumor left after the second debulking surgery in the peritoneum. Most difficult symptom for me to deal with is nausea. The lymph node is next to aorta near the stomach, which gets irradiated somewhat in my case causing nausea. I vomited a few times already, but residual tumor is shrinking and the aortic lymph node is not visible anymore after 14 sessions, so it appears to be working. I asked my radio-oncologist whether tumors develop resistance to radiation as they do to chemo, and was told that it is either responsive or not from the outset. I hope this radiation treatment works for me.

[win_56 in reply to soyoonsoy]

Thank you so much for your reply. I am so glad the treatment is working for you and I hope your nausea resides soon. I've had 7 radiotherapy sessions out if 10 for the superclavicular node and have been advised when I start the cyberknife radiotherapy for the pelvic lymph node it will be 5 sessions every other day as it's a more stronger radiation. Wishing you all the very best.x

[Leniko]

I had OVCA in 2006. In 2014, they discovered an OVCA-based tumor on my left psoas muscle in my back. I had 27 radiation treatments and it stopped growing. In 2020, another psoas tumor appeared. Onco said it was in a lymph node near L3 vertebra. We approached it first w Avastin, but a recent Pet Scan revealed growth. I just completed 5 rad trtmnts to knock it back. I’ll know by the end of Oct. I’m hopeful it’s as effective as before. The only side effect is twinges where they radiated, but low dose steroids have stopped that. Good luck and keep in touch. ❤️🙏