sharing my latest ca125 result: I am scheduled to... - My Ovacome

My Ovacome

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sharing my latest ca125 result

Goodgirl98 profile image
19 Replies

I am scheduled to test CA125 every 2 months. Took the test this morning and had a completely crazy anxious day waiting for the results. It came back an hour back as 4.5. It was 4.4 last time. Down from 730 when I was first diagnosed. Such a relief and so looking forward to a few days vacay with my family this weekend!!

I am curious though. How much does the ca125 fluctuate for those who are NED or after the first line of treatment is done? I thought mine will do down further (went from 730 to 10 to 7.6 to 4.4 prior to today ), so I had a moment of anxiousness seeing today’s results.

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Goodgirl98 profile image
Goodgirl98
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19 Replies
ZenaJ profile image
ZenaJ

That is excellent news. Mine has only varied between 7, 8 & 9 over the last 8 years. 8 being the majority. x

Mammi profile image
Mammi

That’s a great result.Mine has varied between 7& 9 over nearly 3years.chill & enjoy your family weekend🤗Dee X

Goodgirl98 profile image
Goodgirl98

thank you so much, Zena and Mammi. So reassuring to understand this!

paulamma1 profile image
paulamma1

hi. 0-35 is within normal range. Mine goes up and down from 7-10.

Trickysite profile image
Trickysite

the blessed Marsden never tells me how often they do Ca125 nor what it is. So I sail along. No doubt, when there is an issue, they will tell me. Xxx

Goodgirl98 profile image
Goodgirl98 in reply to Trickysite

sorry but what is Marsden? Wish you the best!

Trickysite profile image
Trickysite in reply to Goodgirl98

Royal Marsden Cancer Hospital, Chelsea, London

mrstadpole profile image
mrstadpole

Mine is usually stable at 4 but has been 5.

Sisterstogether profile image
Sisterstogether

mine is between 7-12 but I have a lot of inflammation due to osteoarthritis. Pre diagnosis it was 157. xx

monkeytwo profile image
monkeytwo

I'm so, so pleased for you. xx

Realistic profile image
Realistic

Fantastic mines from 9 to 16 last and have been NED for last 3 years. Keep well keep positive we can do this. Still buying the frocks and booking the holidays. Love ,& hugs SheilaFxxx

Goodgirl98 profile image
Goodgirl98

lovely to hear that you are all ranging in the good range. Best wishes and let’s stay strong and positive!

Tabor profile image
Tabor

congratulations!!!!!!! Breathe and enjoy your time with family ❤️🦋

Katmal-UK profile image
Katmal-UK

that’s such good news. When I started on Olaparib mine went from 7 to below 3 where it’s stayed apart from one time when it came back at 3 and I panicked, daft or what? I got told that sometimes any small increase can be due to how the result is read. Congrats again on your result. Kathy x

Goodgirl98 profile image
Goodgirl98 in reply to Katmal-UK

not daft at all. I can imagine we will all panic when we do not see the results we would like.

Weaves profile image
Weaves

Your levels sound great! I’ve been NAD for 18 months & CA125 tends to be in the teens, my last was 13 x

Goodgirl98 profile image
Goodgirl98 in reply to Weaves

and may it always stay that way 🙏🏻

SopSinger profile image
SopSinger

Mine has varied between 4 and 15 since I was NED in November 2006. I have never had a recurrence.

Goodgirl98 profile image
Goodgirl98 in reply to SopSinger

that’s awesome! Thanks.

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