Really down

[Rosebine2]

Just had my nurse review and CA125 is up again. Its gone up 2 points each of the last two mon ths, I know this is not much but it had been steady at 14 for just over a year. I had a horrible premonition that it was recurring. No other reason for it going up. Got CT scan today. hopefully as yesterday cancelled because machine was broken, but it might not show anything yet. Results wont be in for 2 weeks either.

Feel quite sick with worry , you always think you might be one [of the people] that dont recur.

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[Lyndy2]

Hi Rosebine 2, yes I completely get it. Had a week of sleepless nights after I discovered that my ca125 rise is due to a lymph node progression. I find that I do some fretting and then I sort of get used to the idea a bit more and it seems a bit more doable.

I will have a scan in 3 months (unless Marsden steps in ) and I am just determined to enjoy this time xx

[delia2]

Hi Rosebine. I’m sooo sorry you might be having a recurrence but you don’t actually know anything yet. It might not show up on a scan for months. I’m hoping your news is okay. It’s so hard waiting. Sending hugs. Xx

[Leniko]

my CA 125 is very steady as well. Lately, it has been going up about two points every month. A CT did show some activity at my tumor site. We are trying carboplatin and gemzar combination to knock it back. Try to stay positive, because there are many drugs and compounds out there now. This is my fourth recurrence but it’s usually a few years between each one. We just gotta keep moving forward.. Prayers for you.

[Lizz49]

Hello there,

Sorry to hear you are worried and am in a similar situation but wanted to reach out and say hope this is nothing to worry about, your numbers are still very low and that’s reassuring. I’m having recurrence worries as my numbers have tripled after being very low for nearly 5 years…I had a CT scan today and the way I’m feeling is telling me a recurrence is likely. But- can’t fault the speed with which my team have reacted so am grateful for that and hope to get answers soon.

I know we would both be gutted if that was the outcome but as my onc pointed out the treatments for OC have come on massively in the past 5 years and there are so many options now for us ladies. Anyway let’s stay positive and hope this is just a temporary blip for both of us, and if not there’s plenty of hope and support on here 💖 sending hugs

Liz Xx

[Lovedogs41]

Unfortunately most of us here can relate to how your feeling.It’s literally unbearable waiting for results.I really hope it’s better than your thinking it’s going to be.Big hugs xxx

[Lind58]

thinking of you and sending prayers ♥️

[Goodgirl98]

I pray that you find that it’s nothing. Hugs.

[Rosebine2]

Thanks all. I should stop reading other peoples experiences as I send myself down a rabbit hole worrying.