Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for July 2017

More waiting!

After being referred for an urgent scan on the 28th July after seeing my gp and having a ca125 count of 295 and an abdominal mass, the scan, finally on the...

After being referred for an urgent scan on the 28th July after seeing my gp and ...

cesharpe

•7 years ago

14 Replies

Monitoring part two

Last week Iwrote about the fact that my oncologist had said that there would be no monitoring when i finish treatment next month. Well, i saw him yesterday and...

Last week Iwrote about the fact that my oncologist had said that there would be ...

27-359

•7 years ago

13 Replies

Does "warrior" ring true for you? Not for me...

I've been wondering how many of you feel about cancer being a "war" or a "battle." For me, that analogy doesn't ring true. I've been having a hard time...

I've been wondering how many of you feel about cancer being a "war" or a "battle...

kat98116

•7 years ago

33 Replies

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Travel insurance success!

Hi all For anyone looking for travel insurance look up world-first.co.uk. (Hubby found them on I think the cancer research site) I was upset that I couldn't...

Hi all For anyone looking for travel insurance look up world-first.co.uk. (Hubby...

Emsymits

•7 years ago

7 Replies

Taxol

Just been told going on this treatment second line not even been 6 mounths and it's back any success stories please xx

Just been told going on this treatment second line not even been 6 mounths and i...

Friscok12

•7 years ago

2 Replies

Advise re bloating

Hi everyone just wondered how it feels to have fluid in the abdomen? I'm stage 3/c ovarian cancer, last scan was April and it was clear, finished avastin in...

Hi everyone just wondered how it feels to have fluid in the abdomen? I'm stage ...

Mjb49

•7 years ago

8 Replies

Husbands, Boyfriends & Partners; We Don't Live With Cancer, Cancer Lives With Us.........

Hi Everybody, I have used this forum off and on over the last 9 years. Not been on here for quite a while though! It helped me through a few difficult times,...

Hi Everybody, I have used this forum off and on over the last 9 years. Not been...

SuperHubby24

•7 years ago

23 Replies

Good news

Morning. Having had brain mets diagnosed Feb have had further chemo x 5 had MRI scan and been told result today all. Clear. Hubby and I so happy. Now going...

Morning. Having had brain mets diagnosed Feb have had further chemo x 5 had M...

valo

•7 years ago

11 Replies

Weekly taxol

After first line treatment cancer came back after 3 mouths put on letrozol now in hospital tablets dont seem tto be working they talking about weekly taxol has...

After first line treatment cancer came back after 3 mouths put on letrozol now i...

Friscok12

•7 years ago

12 Replies

Ovarian warrior

Hi! I'm recurrent high-grade ovarian cancer, PLATINUM-resistant.

Geska

•7 years ago

14 Replies

New Blood Test

This makes really interesting reading, nice to know that the research is happening. As the CA test is tenuous at best this seems like a breakthrough...

This makes really interesting reading, nice to know that the research is happeni...

Lily-Anne

•7 years ago

11 Replies

Absolute disbelief at how I'm being treated! Not sure what to do next!

Hi lovely ladies, as an update, I was admitted (after fighting for a week) on 14th to have my ascites drained at last as I was so uncomfortable! They got 6...

Hi lovely ladies, as an update, I was admitted (after fighting for a week) on 14...

BeeWild

•7 years ago

47 Replies

Dosing with Low Dose Naltrexone

I have stage 4 ovarian cancer and would be grateful if anyone using the above could give me feedback they might feel useful as I'm a new starter. Thanks x

I have stage 4 ovarian cancer and would be grateful if anyone using the above co...

Sandy9

•7 years ago

30 Replies

Why do I feel like this?

I have been told i have cancer (as per my other post)... I have been told that my blood and pathologly report does not marry up with my MRI for my staging. My...

I have been told i have cancer (as per my other post)... I have been told that m...

Cathi68

•7 years ago

15 Replies

Grateful

After posting a little while ago that I was given devastating news I'm still here, I've seen my son through his GCSE's, I've seen him go to his prom and...

After posting a little while ago that I was given devastating news I'm still her...

Hidden

•7 years ago

33 Replies

No longer platinum sensitive

Hello ladies, I have been one of the women loitering in the background. I have just discovered I have a third recurrence of ovarian cancer 3 months after...

Hello ladies, I have been one of the women loitering in the background. I have ...

DollyAnne

•7 years ago

9 Replies

Saying Hello

Hi, I'm a Granulosa Tumour Cell of the Ovary Survivor. Diagnosed in 2014, stage 1C, no chemo, and I am still NED. Hello Everyone. From Canada.

Hi, I'm a Granulosa Tumour Cell of the Ovary Survivor. Diagnosed in 2014, stage...

Bonnie6959

•7 years ago

10 Replies

Sooooo nervous 1st opa this week for results!!

Hi all, well what a site I have discovered and amazing people and stories!! My journey so far is......in June suspected bowel cancer with raised ovarian...

Hi all, well what a site I have discovered and amazing people and stories!! My j...

Joanie12

•7 years ago

14 Replies

One week post surgery

Well one week on from my emergency surgery for a bowel perforation and I am improving slowly. Sepsis set in over the weekend which knocked me down again due...

Well one week on from my emergency surgery for a bowel perforation and I am impr...

Eriksendi

•7 years ago

6 Replies

NICE Appraisals for Rucaparib and Niraparib - patient experts needed

Dear All NICE will be appraising these 2 PARP inhibitors at the end of the year for approval for NHS availability and they have asked for nominated patient...

Dear All NICE will be appraising these 2 PARP inhibitors at the end of the year ...

OvacomeSupport

Partner•7 years ago

2 Replies

Gutted

Hi all , just got back from a four day break in York when my oncologist rang me to say I wasn't accepted for the trovax trial . If I had of been it would of...

Hi all , just got back from a four day break in York when my oncologist rang me ...

Juliette35

•7 years ago

25 Replies

Not so good news

Dear Warriors, thank you for the best wishes for Gauri's first annual Bloods and Pet CT, post her last chemo in May 2016. Unfortunately, the findings have not...

Dear Warriors, thank you for the best wishes for Gauri's first annual Bloods and...

Naimish

•7 years ago

34 Replies

Worried advice needeed

Sorry its me again if i think my symptoms are this granulosa tumour should i ask to see my consultsnt sooner..a girl spkme to me with the exact same symptoms...

Sorry its me again if i think my symptoms are this granulosa tumour should i ask...

mortigger

•7 years ago

5 Replies

Spread of ovarian cancer to the Brain

Morning lovely ladies. I posted not too long about my mum. She was diagnosed with stage 3c ovarian cancer back in 2014. She had 3 chemo sections to shrink the...

Morning lovely ladies. I posted not too long about my mum. She was diagnosed wit...

Cilla18

•7 years ago

22 Replies

Dying hair during chemo

I started my chemo of carboplatin only today.So I am told would not lose my hair.Is there a product out there anywhere that we can use while on chemo.I'm not...

I started my chemo of carboplatin only today.So I am told would not lose my hair...

Lynn_B

•7 years ago

20 Replies

Scan Results

We went in to see the consultant today for the results and mums tumor went down from 42mm x 27mm to 40mm x 17mm. It doesnt seem much at all. I didn't know what...

We went in to see the consultant today for the results and mums tumor went down ...

raquelmorais

•7 years ago

1 Reply

Bowel perforation

My sister had another setback on Tuesday when with increasing pain and bloating she suffered a bowel perforation. The surgeons felt she could withstand surgery...

My sister had another setback on Tuesday when with increasing pain and bloating ...

Seavccg

•7 years ago

4 Replies

Bowel

Well ended up in hospital with my first bowel obstruction yesterday any advice on how long it could be and how you felt xxx

Well ended up in hospital with my first bowel obstruction yesterday any advice o...

Friscok12

•7 years ago

11 Replies

Good news on Carboplatin and Caelyx

Hi Lovely Ladies, I have been on my 4th line treatment Carbo and Caelyx my 125 had gone up to 1300 while i was on 3rd line treatment of single Taxol, my...

Hi Lovely Ladies, I have been on my 4th line treatment Carbo and Caelyx my 125 h...

lorraine71-Australia

•7 years ago

60 Replies

Monitoring

Hi all. Is there anyone else who doesn't have regular monitoring? I am stage 3b and have two more Avastin treatments before finishing treatment. I am seeing my...

Hi all. Is there anyone else who doesn't have regular monitoring? I am stage 3b ...

27-359

•7 years ago

19 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for July 2017

More waiting!

Monitoring part two

Does "warrior" ring true for you? Not for me...

Travel insurance success!

Taxol

Advise re bloating

Husbands, Boyfriends & Partners; We Don't Live With Cancer, Cancer Lives With Us.........

Good news

Weekly taxol

Ovarian warrior

New Blood Test

Absolute disbelief at how I'm being treated! Not sure what to do next!

Dosing with Low Dose Naltrexone

Why do I feel like this?

Grateful

No longer platinum sensitive

Saying Hello

Sooooo nervous 1st opa this week for results!!

One week post surgery

NICE Appraisals for Rucaparib and Niraparib - patient experts needed

Gutted

Not so good news

Worried advice needeed

Spread of ovarian cancer to the Brain

Dying hair during chemo

Scan Results

Bowel perforation

Bowel

Good news on Carboplatin and Caelyx

Monitoring

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