Good news on Carboplatin and Caelyx

Hi Lovely Ladies, I have been on my 4th line treatment Carbo and Caelyx my 125 had gone up to 1300 while i was on 3rd line treatment of single Taxol, my oncologist said to stop and try Carbo/Caelyx. To day went to see her about results of scan and 125, good news my scan showed improvement and 125 had come down to 176 from 1300 after only 3 treatments, I have one more this week then she will check my heart results before any more Caalyx.This calls for a whole block of chocolate, sending you all my best wishes ..LorraineπŸ’™πŸ’™

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  • Great news. Enjoy the chocolate too. 🍫 xxx

  • Hi Suzanne ,Thank you for your reply ,yes I did enjoy the chocolatethis is my reward, plus when I'm down it's my reward then also ..Best wishes to you Lorraine..πŸ’™πŸ’™

  • Oh Lorraine - that's really brilliant news! I'm so pleased that it's going the right way. Long may that continue!

    Caroline x

  • Hi Caroline, I was please to hear the good news I know Caelyx does not work for everyone, we just need to find that one treatment to suite us, I hope this is the one to give me a descent break.......Sending you my best wishes also ..Lorraine xxπŸ’™πŸ’™

  • Brilliant new! Enjoy that chocolate! xx

  • Hi Katmal, Thank for your reply I did enjoy the chocolate but had to eat fast or my husband has more then his share , I went to the shops to day and stocked up.

    I know sugar is not good but I don't drink so this is my vice....Cheers and hope all is well with you ..Lorraine xxπŸ˜ŠπŸ’œπŸ’œ

  • Great news! Sounds like it's working. Enjoy the chocolate!

  • HI Love, It is great news also good to know Caelyx can help it's not for everyone but like all treatment we need to find the one to suit us. I hope you can get into the Trovax trail that you wont..Best to you Lorraine xxπŸ’œπŸ’œ

  • Hi Lorraine, I am also on this just had my fourth chemo like you I am doing ok. Well at least my ca 125 is coming down so hopefully I won't need any more.

    I am so pleased for you it has made my day. So far a lot of ladies have found Caelyx hasn't worked for them we must be the lucky ones. Take care Cindyxx

  • Hi Cindy, Glad it's working for you also ,as you said it does not work for every one so hoping that the ladies is does not work for, find that special treatment suitable for them. I'm having my 4th this Monday, then a heart test as caelyx can effect the heart, if ok 2 more . Next week I'm going to see a Sergent to see if a second surgery would be suitable my oncologist feels if it was it would be now .when the cancer is reduced it will be interesting to hear the Sergent's reply is...Best wishes to you Cindy..Lorraine πŸ’™πŸ’™

  • Hi Lorraine, its sounding really good for you. Let's hope you can have surgery anything that can get you into a good place & keep you there for a very long time.

    No one has mentioned testing my heart I have had my 4th Caelyx now. I live in the UK maybe it's that. Thinking of you take care Cindyxx

  • Hi Cindy, My oncologist said from the start Caelyx is hard on the heart that is why she keeps a eye on it, I had one before starting and now this one half way of the 6 . I'm in Australia but this should not make a differences maybe you could ask your oncologist how they feel about it

    Look after yourself best wishes Lorraine xx.

  • Hi Lorraine, thank you for that I will put it on my long growing list of questions to ask. I never know who I might see & not all of my questions are answered but this one will go to the top of my list.

    Take care love Cindyxx

  • Hi Lorraine and what fabulous news! An amazing drop that gives hope to us all! !!!

    Calls for 2 chocolate bars I reckon!

    Love Maz xxx

  • HI Maz, It was a good drop from 1300 to 175 in 3 treatment my 4th is this Monday then two more if my heart results are good, I'm sure it will be, I'm hoping for a nice long break as I've not had more then 6 months in the last 2 1/2 years,

    I hope it does give hope to as all, I know that it does not work for everyone but it gives hope that there is a treatment out there and hopefully more in the future.

    How did you go with the cam/carbo? Hope all is well Lorraine xx

  • Hi Lorraine and yep my disease the same - 8 months is the longest I've managed out of treatment. Wish it was different but wasted emotion I guess.

    The regime isn't too bad thanks for asking. My bloods have been okay so far apart from platelets been pretty low at times - have the GSF jabs etc to help support things.

    Markers have been dropping but slowly - see the team on Tuesday so we'll see.

    Keep up the fight! πŸ’ͺπŸ’ͺπŸ’ͺ

    Love Maz xxxx

  • Hi Maz, Good luck for Tuesday..Lorraine πŸ’™πŸ’™

  • That's good news, long may it continue. Enjoy the chocolate 🍫, good luck with the remaining treatments and tests ❀️Xx Jane

  • Hi Jane, Thank you for your reply, hope all is well with you sending my best wishes ..Lorraine xx.....ps I know you like elephant ,could not find a elephant so sending you a carols ole horses instead. 🎠🎠🎠🎠

  • So cute, thank you xx

  • Such good news!

  • Hi Love, Thank you it was good to hear. I read your post and you have had a hard time I hope it has all been sorted out and you are on your treatment plain, My primary was Fallopian tubes also... but treated as ovarian cancer. Best wishes ..Lorraine xxπŸ’™πŸ’™

  • That is good news, I may be going on Caelyx soon and worrying about the effectiveness xx

  • Hi Ann, I hope you get your treatment plain sorted out and if you do go on Caelyx that it is the one for you we can only keep trying, Caelyx seems to work well I know the side effect can be hard but manageable all the best ..LorraineπŸ’™πŸ’™

  • great news, I have just started Caelix, just hope it works for me, cant have carbo, alergic to it now!!, enjoy the chocolate, I am always pleased that when I go off other foods, chocolate is always OK. xxx Jeanette

  • HI Jeanette, I hope Caelyx is the one for you, I had Caelyx before and manage the 6 month

    treatment and found it effective, that is way my oncologist put me back on Caelyx but this time with carb, The side effect were hard at times then I was given steroids before chemo this help a lot with handling the side effect. Maybe you could ask about the steroids. Some ladies on Caelyx find they have very little side effect at all hope this is the case for you. Keep up the fight best wishes Lorraine xxπŸ’œπŸ’œ

  • Thanks for that Lorraine, I am already on steroids, and maybe that is why up till now I am feeling OK. apart from the shortage of breath caused by my plural effusion!!, but if this is as bad as it gets (only 5 days since chemo) I wont complain, xxx Jeanette

  • Fantastic news . Great drop in CA125 . Love and best wishes for the rest of your treatment Kim x

  • Hi Kim, It was good news always feel good when I know the beast has had a good kick in the butt. I hope all your treatment is going to plain best wishes Lorraine xxπŸ’™πŸ’™

  • Great news Lorraine really thrilled for you. This combo is working for me has well mid chemo scan shows massive shrinkage and my .CA 125 has gone down to 11 Love Chris

  • Hi What great news for you also, this treatment seems to be helping, so hopefully it will help many more, we need some good news in this fight with this beast.

    Sending you my best wishes and keep a the good fight..Lorraine xxπŸ’œπŸ’œ

  • Great result!

    Juliet x

  • HI Juliet, Thank you for your reply, glad to read that your bloods are heading in the right direction hope it continues... all n my best wish LorraineπŸ’™πŸ’™

  • Thank you Lorraine!

  • Fantastic newsπŸ‘πŸŒ»πŸŒΊπŸŒΌπŸŒΉπŸŒΈπŸŒ·jo

  • Fantastic news. Hope the chocolate tasted especially good. Hope you've got another one for laterπŸ™‚πŸŒ»πŸŒΊπŸŒΌπŸŒΈπŸŒΉπŸŒ·Jo

  • Hi Jo, 8 years was great but no recurrence is easy to hear, I hope you are on the right treatment to many many more successful years, you did it once you can do it again..Sending you my best wishes ..Lorraine xxπŸ’™πŸ’™

  • Such good news, that's a huge drop in your CA-125. Long may it continue. Enjoy the chocolate!

  • Hi Helen , Thank you it was a good drop it surprised me and I did enjoy the chocolate , as a chocolate lover, chocolate should be melted in the month as long as possible , I try telling my husband this as he devours his

    I hope your treatment is going well... sending you my best wishes LorraineπŸ’œπŸ’œ

  • Yeah!!! So happy for you. Enjoy your chocolate. I will share your post with my mom to encourage her.

  • Hi, Please give your mum my best wishes I know she is starting Caelyx tell her to keep up the fight it can be won, I hope she is managing the side effect it will be worth it..Love LorraineπŸ’™πŸ’™

  • Wow! That is remarkably "responsive results". Your doctor must also be thrilled. Your good news is an inspiration to us all. Thank you for sharing.

  • Hi Tesla Yes it was great news I did not expect the drop would be so fast, I hope it does help other ladies to feel there is hope.

    I looked up your post and there was not a recent one on how you are going, so I hope all is well..Best wishes Lorraine..πŸ’™πŸ’™

  • Lorraine, I am well, NED 11 months with CA stable. I do have another hernia which has emerged since colostomy reversal. Going to see surgeon about hernia repair tomorrow. Not looking forward to yet another surgery, but grateful to be feeling well. 😊

  • This is truly great news Lorraine. Go you!

    Netti x

  • Hi Netti, Thank you for your reply, it was good news we all need this to keep going also I had little side effect so it's been good. How are you going? .

    Have you been on your US tripe if so I hope it was all you hoped for.

    Best wishes Lorraine..πŸ’™πŸ’™

  • Hi Lorraine. No, we are going on our big trip this Monday, all being well. I agree that good news from others and stuff to look forward to are like fresh air for us all, and good news for ourselves is like a good whiskey.

    Cheers

    Netti xx

  • That's great news and so encouraging for those of us on caelyx. I have just had no 3 so will have to wait for a scan as my ca125 is not any good as an indicator but feel very hopeful about it. Won't know for a bit as off to Majorca tomorrow! Enjoy that chocolate 🍫 πŸ©πŸŽ‰ xx

  • Good news Lorraine. Enjoy your chocolate. Good luck with heart tests. Ann xx

  • Hi Ann, Thank you it was good to hear, and how encouraging is this comb, I've had a few ladies on the same with good results, we need more successful treatments.

    Sending you my best wishes ,hope all is well with you..LorraineπŸ’™πŸ’™

  • Great news - well done!

    Best wishes Dawn

  • Hi Dawn thank you, I don't know the outcome but so far so good and it helps to know some of our treatments may be the one. I hope you have yours treatment sorted out..best wishes LorraineπŸ’™πŸ’™

  • Wow Lorraine...........excellent news. Time for a chocolate bar for sure. Keep going.

    Hugs..........Sonshine1

  • Hi Sunshine, Thank you for your reply, this combo seems to be helping other ladies so it good to know some treatments help, I hope there will be many more in the near future, Best wishes to you and hope you have your pain sorted out, constant pain just drags you down. As for the chocolate you should join me in a bar or two.

    Look after your self Lorraine xxπŸ’™πŸ’™

  • Hi Lorraine......good to hear from you. Well I'll tell you I found the perfect remedy for pain........one pain pill, one tylenol, one bottle of champagne. LOL It worked for this evening and being with some friends I have not seen in awhile, what a great evening. I even "whatsapp'd" my Dr. with the remedy, he really laughed. As for the chocolate bar.......I have one in the fridge set aside for tomorrow. Sure hope you had a good day. Loved talking, keep in touch. Sonshine1 xxx

  • Your a little ray of sunshine 😎😎 Lorraine

  • πŸ‘πŸΌπŸ’ͺ🏼❀️

  • Thank you Adele, LorraineπŸ’™πŸ’™

  • Hi Lorraine

    So pleased to hear the Carbo/Caelyx combo is working well for you. It worked well for me too. I had 6 sessions (along with Avastin). After 2 sessions, the side effects were too much & my onc reduced the dose of the caelyx. That made it all tolerable. I didn't have steroids. I went into a good remission, which I'm still in. I'm thanking the Caelyx for the remission & the Avastin for keeping me there. The Avastin trial requires me to have my heart checked every 3 months as, apparently caelyx can still affect your heart for that long. Hope the chemo went well today. Best wishes Pauline

  • Hi Pauline, Thank your for your reply . Chemo went well had my heart test to day that was ok so will continue with the Carbo/ Caelyx. So glad to hear you are doing well hope it continues for a very long time..LorraineπŸ’™πŸ’™

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