Dosing with Low Dose Naltrexone

[Sandy9]

I have stage 4 ovarian cancer and would be grateful if anyone using the above could give me feedback they might feel useful as I'm a new starter. Thanks x

[Yoshbosh]

Hi Sandy,

Are you based in the U.K.? There's a clinic in Glasgow that prescribes it and can recommend the correct dose for you. I can give you more info if you need, but I can't remember it off the top of my head.

LDN is next on my list, but I'm waiting on my ALT to improve before introducing something new for my liver to process!

Yosh x

[Nicky100 in reply to Yoshbosh]

Hi both,

The Clinic in Glasgow is Clinic 158. Tel: [phone]

I am starting it this week and my prescription should arrive in the next day or two. I DO need to still check this with my onc though as I am still on chemo.

I would be really interested to hear from anyone too. The Dr in Bristol I spoke to, Dr PP, gave it good reviews.

Nicky xx

[Agility in reply to Nicky100]

Hi Nicky LDN was recommended to me this week. Could you recommend any good sources to read up about it. Thanks jane

[Yoshbosh in reply to Agility]

Hi Agility, whist not OC specific, this website has general info on LDN:

ldn-international.com/

Yosh x

[Agility in reply to Yoshbosh]

Thanks!

[badger4218 in reply to Agility]

Hi, There is an L.D.N page on Health Unlocked that links to LDN radio. xx

[Agility in reply to badger4218]

Thanks

[Yoshbosh in reply to Nicky100]

Thanks Nicky! Am in the depths of West Wales at the moment with patchy internet and couldn't remember the name of the clinic!

I spoke the the Care Oncology Clinic about LDN and they were supportive of it, but recommended I wait to see if my ALT resolves itself before starting it. They don't offer it themselves as part of their protocol.

[Nicky100 in reply to Yoshbosh]

I thought I would add it rater than sending a PM as it was recommended to me by the Dr above. It is great to know that the COC is also supportive of it? I hope it is beautiful where you live? I love Wales xx

[Yoshbosh in reply to Nicky100]

Sadly, I don't live here, just here for my holibobs 😊 We live in Hampshire so have had a busy few days what with Harry Potter on Saturday and driving to Pembrokeshire on Sunday! Beach day today...

[Nicky100 in reply to Yoshbosh]

Have fun and enjoy some sun xx

[Shellc in reply to Nicky100]

Hi Nicky how r u on the LDN ?

[Nicky100 in reply to Shellc]

Hi am getting on quite well with it I think. I need to get back to taking it every day advice I’ve been feeling so tired recently, I’ve been a bit demotivated with supplements.

Are you trying it?

[SCWI]

Hello Sandy

Just to say I am on LDN and have been since January. I take 3mg a day one week on and one week off. Whether it is working for me or not I can't really say but my last scan was NED but I do have a rising CA125 level. It can make me feel mildly jittery but I tolerate it pretty well. I hope it is helpful for you. Best Wishes

[Sandy9 in reply to SCWI]

Hi SCWI

I'm on 4.5 once every day but am concerned I am not giving it my best shot as I'm taking it in a morning (not night time as recommended as I suffered with nightmares and also with food which I've now read is not right) Hoping to get hold of a doctor/pharmacist to advise. Likewise I'm not sure how helpful it is but certainly don't feel any worse - fingers crossed eh! I'm not due back at hospital now until September and as yet don't know if my ca count has improved or not it was very high last time. Have you been advised how best to take it? With Best Wishes Sandy x

[SCWI]

Hi Sandy

Thanks for your reply. I was told by my holistic doctor in Bath that it is good for boosting the immune system and the reasoning for taking it one week on and one week off was that if you take it constantly the body gets used to it and it doesn't work as effectively. Therefore if you take it in bursts so the body takes more notice and responds better. She didn't really specify when I should take it but said if taken at night it can disturb sleep. I was interested to read your comments about taking it at night and not with food. I think probably best to pick a time and stick to it, which I haven't been very good at. All best wishes Sophia x ps let me know how you get on going forwards.

[Sandy9]

Thanks for your reply will keep in touch when I know more until then all the best Sandy x

[Sandy9]

High Sophia - I managed a phone call with a doctor in Scotland who informed me that I could take it any time of day with or without food as it didn't make any difference to its effectiveness so it makes life a little easier. I am now waiting for LDN sublingual drops to arrive hoping (as they by-pass the stomach) to stop feelings of sickliness which I sometimes get. Just feeling pleased its all sorted now. Hope everything is OK with you. Sandy x

[Nicky100]

I have just started it and it arrived yesterday. I feel quite excited about it and was. More pleased when my oncologist said yesterday that she is happy for me to take it.

There are good books out there to read on it.

It's an interesting thing to add to our arsenal I think x

[Sandy9]

Hi Nicky I feel there is nothing to loose taking LDN and hopefully if it improves the immune system can only be a plus and they certainly seem to be putting more emphasis on immunotherapy now which gives me more hope for the future as presently it is the only medication I am on. Wishing you well. Sandy x

[Shellc]

Hi all

I’m looking into ldn for my asthma and bronchiectasis, just reading a book called the ldn book by Linda Elsegood

There is also a website called ldn research trust

[Jessica-DianeB]

Could someone give me some info on LDN please? That is substantial enough to present to my Oncologist.

I'm in the midlands, so where to buy it from and who would recommend the dose would be fab, thank you xx

[badger4218 in reply to Jessica-DianeB]

If you join ldn. Research trust page through health unlocked, the radio programmes are most interesting. I have been researching it for my sister , she won't google or YouTube anything in case it scares her😯 and so far everything I have watched on YouTube or heard on ldn radio looks very promising. I believe a few of our ladies here take it, think Nicky may be one and if I remember correctly you can get prescriptions from bristol for one place but there are others. Any doctor can prescribe it as I understand on the NHS. But they simply do know anything about ldn. Best wishes to you and please let me know how you get on. Do give ldn radio a listen to if you have not already, very interesting hearing from doctors as well as patients. ☺😃

[badger4218 in reply to badger4218]

Oops. Sorry. Jessica, I should have read shellics. Answer as she already brought the research trust up! 😉😕

[Jessica-DianeB in reply to badger4218]

Thank you! On it! Xx

[Shellc in reply to Jessica-DianeB]

There is a chemist in Scotland that prescribed this too , if u want more info I can get the address fir this

[Nicky100 in reply to Shellc]

That is where I get mine. I added it in the thread above for anyone that wants the contact details. The clinic is in Glasgow and they will post it to you.

Nicky x

[SarahsJourney]

I’ve just started taking LDN this week. Not sure what you were told about dosing? I’m currently only taking around 1ml a night? This doesn’t seem very much. Are you all still taking or not? What are your thoughts? x

[Nicky100 in reply to SarahsJourney]

Hi, yes. The recommended dose from the Glasgow Clinic is 4ml, which I take. Are you finding pulsing working?

Nicky

[SarahsJourney in reply to Nicky100]

Thanks Nicky. Not sure the pulsing comment is for me albeit I’ve just shaken up my supplement regime to switch it up as the Olaparib isn’t working for me... xxx