At the Velindre Hospital in Cardiff telling Patients about Us!

[Whippit]

Hi ladies

I'm at the Velindre Hospital in Cardiff to tell them about the Ovacome Community.

Please tell the ladies visiting my stand how great this site is!

[wendydee]

Hi Annie! Great to see you out and about and looking soooooo much better. Yes, it's a brilliant site. No questions too small, no remarks too silly, and honest answers and debate.

All the best to your visitors today

Love Wendy xx

[ScardyCat40]

*waves* Welcome sorry you have joined the club but I find it easier to cope as I know in a virtual sense that I am not alone and there are other women out there that feel the same. Sometimes me manage to laugh as well.

[Whippit]

Introducing Kathleen, in the photo, and many other ladies who've dropped by. xxx

[coochy]

Hi Annie

Shame you are soooo far away i would have joined you. Love the hair

Elaine x

[Whippit in reply to coochy]

I'd have loved that Elaine! xxxx

[Sunfleury-UK]

Great that you are sharing this amazing resource of first-hand information, support and friendship Annie. It was a lifeline for me when I was diagnosed and undergoing treatment as I was better able to make sense of what was happening. I hope that the remainder of the day goes well. All best wishes to you and to anyone else newly reading posts! Sxx

[Anitaalmond]

Looking great Annie, you're doing a great job! X

[Whippit in reply to Anitaalmond]

I posted up the worst pic of me with hair standing on end just to show we're real friends on here and we don't need to be glam to post! xxx

[Izzystep in reply to Whippit]

You look glam to me xxx

[doodoolatrice]

Ovacome is a wonderful site and the advice and support I have received from all the members has helped me through some worrying times. There's always someone there ready to listen who understands. Kerry x

[Whippit]

Dear lovely ladies

Thanks so much for your posts of welcome to the women who visited the Ovacome stand at the Velindre this morning. It was so helpful to actually create a post in front of them and most of the ladies came back on their way out of the hospital and were really excited to read your comments and welcome.

It made it a much more realistic demonstration than I could have done by trying to explain.

Home again now having demonstrated this site and promoted the SE Wales Ovarian Cancer Support Group and Target's Be Together Day in Cardiff on 12 May.

What an amazing resource this is!!!!

Love Annie xxx

[thesilent1 in reply to Whippit]

Sorry I have just logged on a couple of minutes ago or I would have responded earlier. I echo what the other ladies have said. The fact that there is always someone on line who is prepared to 'talk' to you when you are worried or even just to have a laugh with, is brilliant. Well done Annie, you are doing a fabulous job in Wales. Ann

[Whippit in reply to thesilent1]

The comments won't be too late Ann. If our ladies join this evening they will probably go to this blog to have a look - so all the messages of welcome and friendship will not be missed! xxxx Annie

[AnnieMae]

Hi Annie, well done for raising the profile of Ovacome and Ovarian cancer once again and so soon after your gruelling treatment. Especially well done for all your work raising the issues with getting treatments for the women of Wales.

Best wishes

Annette xxx

[Whippit in reply to AnnieMae]

Thanks so much Annette. I met some really lovely ladies today and it was so good to be able to create a blog with them this morning and upload it so they could see how it works. Let's hope we see some of them joining our friendship circle here on Ovacome.

Let's hope we see reform in Wales. The oncologists and their teams want it just as much as the patients.

Love Annie

[Hidden]

And hello to Kathleen... glad you had a good day Annie... xxx

[Langstonelady]

Waving Hello from a South East Wales resident,

Love Carol xx

[Whippit in reply to Langstonelady]

Hopefully see you tomorrow Carol. I think a couple of ladies I met today will be coming along too. Do you know how to get to Churchills Hotel? xxx

[Izzystep]

You do some fantastic work to increase awareness of OC and the Ovacome community we have here.

I agree there is always someone willing to listen, to "talk" to, someone been through or going through the same as you who can give tips and advice. But more importantly gives you a better understanding of OC so that we can go and question our oncologists about our treatments.

Keep up the good work but don't overdo it, remember you have recently been through 2nd line, have a bit of a rest. Love Izzystep xxxxx

[francescahannah]

What a great job you are doing Annie. This site is a place for getting and giving support, information and experience sharing and for me helps me to feel part of a community and not so alone with this illness. Its a great resource. Francesca xx

[Dyana]

Hello to all , Annie you are looking really great and what a fab idea , dy xxx

[Whippit in reply to Dyana]

It was a really enjoyable day Dyana and the ladies who visited the stand said they felt isolated and they'd appreciate joining our friendship circle here. I'd offer to lend others my display materials but as you can see they're in Welsh! xxx

[Hidden in reply to Whippit]

I saw that Annie .. I was surprised they weren't in both xx

[Whippit in reply to Hidden]

That's always problematic in Wales Sue. You would then have the debate as to whether English or Welsh goes on top so we generally get round the problem by having two pull-ups which doubles the cost. It wasn't really suitable for a hospital waiting room audience as it listed the symptoms of Ovarian Cancer but luckily few people would have been able to read it and it served the purpose to have a bilingual display.

I also had an English pull-up (out of the pic) which was designed for a hospital waiting room. It lists all the brilliant services Ovacome offer people affected by Ovarian Cancer giving the URL for this community, the Ovacome Nurse Help-Line and the Ovacome website.

Which reminds me, these pull-ups and some other display materials are stored at my home in Cardiff. If anyone would like to borrow them for an event please let me know. Perhaps I should do a separate blog with a pic. If you're doing a talk or an exhibition stand they are eye-catching and they service the purpose of drawing in visitors.

[Hidden in reply to Whippit]

I know language is at the core of everything, but that's amazing. That the prominence and order is so important. There could be a heading .. In view of the fact that Ovarian is in a State of Emergency, all health signs relating to it will be in English to save costs. However, all slow signs on roads will continue to be in Welsh and English in the form of Araf Slow in that order.Thank you for your patience and understanding. T xx

[Aurelie]

So sorry I didn't see this earlier, Annie. Do hope the ladies you met will find us - no need for them to feel isolated anymore and they will certainly be made very welcome.

Jill xx