Encouraging news from Cambridge

[barleykeeper]

I still read this blog three years now since Carol died and follow the stories of so many of you treading this unwanted pathway. But things change, and new treatments and options come around all the time. I received this from my old university today and I thought you might find it interesting and uplifting.

cam.ac.uk/stories/ovarian-c...

I hope you can access it.

With all good wishes,

Nick

[Lyndy]

Thanks for sharing Nick!

[Caleda4]

Thank you so much for sharing this,it is very interesting.

[rosebine in reply to Caleda4]

Interesting that only 1 in 50 will be diagnosed. Ive never been "special" in any way in anything, would rather still not be special.

[Mommoo65]

Interesting to read each lady has received a parp inhibitor as part of their treament. I was diagnosed 3C in 2015, debulking, 6 rounds of chemo, plus a recurrence in an inguinal node in 2020 treated with radiation and was never offered a parp. I am BRCA negative but parps are available for those BRCA negative. I wonder if it's a US vs UK treatment policy difference.? I live in the US.

[delia2 in reply to Mommoo65]

I’m in the US as well at Dana Farber. PARPs weren’t approved when you first got sick but they were available when you had the lymph node. I wonder if they thought it was such a minor recurrence that it wouldn’t be worth taking a PARP and they’ll give it to you if you recur again. They’re no picnic to be on day in and day out though they have been a game changer. Ask your onc!

[Mommoo65 in reply to delia2]

I will. Thank you! The tumor in the inguinal node was a very isolated recurrence. A CT scan showed no tumors elsewhere and he was very aggressive with surgery and 25 rounds of radiation.

[SUE7777 in reply to Mommoo65]

I spoke to my oncologist in the UK and she said a parp wouldn't be suitable for me as I am platinum resistant and there is a platinum aspect to parps. Hope this helps, you could ask your team why they haven't offered you a parp. Sue xx

[organicinna in reply to Mommoo65]

Yes am braca negative but they offered me parp. my consultant said even before the op that after chemo you be going on Niraparib. Been diagnosed 12 month ago 4C )) XX

[Joanie12]

Thank you nic for this interesting information, very kind of you to share

[Lochawe]

kind of you to share Nick, thank you

[delia2]

Thank you. I really enjoyed the article! It’s amazing to see ovarian cancer getting such attention!

[Lilygums]

Thank you for sharing Nick. I am under the care of Professor James Brenton at Cambridge and he is a lovely, caring oncologist. He is a big advocate in trials and is very keen to get me on board with the trials team. Their work sounds very encouraging and I’d be delighted to be a part of it, not just for myself but for the future to help anyone else that has the misfortune to have to join our group. All you ladies out there - always ask if there are any trials available to you as well as regular treatment. Enjoy your (blustery) day and stay safe x

[Doglover1410 in reply to Lilygums]

James Brenton is also my oncologist. A lovely man with and real honest attitude. The conversations we’ve had over the past 4 years!

[Lilygums in reply to Doglover1410]

James Brenton certainly keeps it honest! Always explains well and keeps you informed. I can well imagine the conversations you’ve had. Hope he’s keeping you well. Best wishes Sue

[Doglover1410 in reply to Lilygums]

He is so far 🤞🏻

[meaty in reply to Doglover1410]

Addenbrooks is one of our speciality hospitals .I am in Norfolk. but I was referred to Norfolk and Norwich hospital. that is where I will be having my surgery. Mr Brenton sounds brilliant. hope my consultant is as good . xxx

[Katmal-UK in reply to Lilygums]

Totally agree with asking about trials, I have been on three now and now in my 15th year from diagnosis. Currently 8.5 years NED and on a part inhibitor x

[SUE7777]

Thank you for sharing Nick, I am going to sign up. Sue

[mrstadpole]

Thank you for this link.Very interesting to read.

[TMiPP]

Thanks for the update. Stay safe x