Radiation

[Madmolly]

I was diagnosed oc 4c had op chemo finished trial ICOn 8b march. This year. was told I had two nodules inside lymph nodes at back of Right kidney. after pet scan told they could see activity in another 3 lymph nodes still small but have been offered up radiology for five weeks every day

I have never heard of anyone having radiation for that amount of time every day for five weeks

I suffer from osteoarthritis and have a lot of joint pain my oncologist told me I would have a lot of joint pain with radiation and said if she was me she would not have it done. No op as too near major blood vessels can anyone advise I have written something g similar about two weeks ago and got some good feedback but had not mentioned the length of time the treatment took HELP

[Yorkiepudd]

Hi, I had womb cancer as well as OC and had external pelvic radiotherapy for that after chemo. I went every day for five weeks and whilst it’s a bit of a chore going backwards and forwards, the treatment itself is very short and it was nearly as long getting the positioning correct each time as the treatment. I can’t advise you what to do but the percentages for me were a no brainer for trying to keep it away forever x

[Madmolly in reply to Yorkiepudd]

Thank you so much for the info we’re you in a lot of pain after in the joints with the osteoarthritis

[Yorkiepudd in reply to Madmolly]

No not at all. I was tired but not in the bone crunching way of chemo. As it was in the pelvic region I did have some diarrhoea but was able to keep it under control with medication x

[Ruebacelle]

I think since you have several locations that is the reason for the time frame. I just got mapped to start radiation in a month. 5 sessions but just one nodule in the node. I have osteo also but am glad it's available as surgery is not an option. Good luck from paris

[Madmolly in reply to Ruebacelle]

What meds are you on for osteoarthritis I’m on naproxen and feel it does not work

[Ruebacelle in reply to Madmolly]

Hi. Here we can't take nsaids if on blood thinners which I am so I do exercises 3 dogwalks a day some yoga if pain won't go away 1g of tylenol but almost never and lidocaine patch I put on lower back.

[bamboo89]

I had a friend with breast cancer who had radiotherapy every day for 5 weeks, so that length of time is not unusual at all. As Ruebacelle said, the actual radiation doesn't last long each time, the worst thing is having to go there every day.

As for osteoarthritis, well chemotherapy aggravates that too, which I believe you have already had. Really, its for you to decide - what happens if you don't have the treatment has to be set against having the treatment, that's the decision really... Good luck

Miriam

[Madmolly in reply to bamboo89]

Yes I’m wondering how long I would have without it

[bamboo89 in reply to Madmolly]

That might be a question worth putting to your oncologist...

Miriam

[thejoannabell]

If it were me, I would take whatever I needed for the pain for that limited amount of time. If your doctors are willing to prescribe something stronger in order to keep you as comfortable as possible, and then taper down when the radiation is over, it may well be worth it.

[Riverflo]

Please can I ask, I have some enlarged ganglia next to the aortic artery, behind the bowel. Offered surgery and chemo, but radiotherapy was not considered as an option. Why were you offered radiotherapy instead of chemo? Just for me to understand the different usage. Thanks xx

[Madmolly in reply to Riverflo]

They said to near major veins to operate so would do radiation

[Riverflo in reply to Madmolly]

Okay, thanks 😊