Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for May 2021

Chemo Stopped

Hi lovely ladies, Had my scan results yesterday and the caelyx/Carbo has not worked on my 1st recurrence. She has referred me to Royal Marsden and Christie’s...

Hi lovely ladies, Had my scan results yesterday and the caelyx/Carbo has not wor...

Esmerelda101

•3 years ago

12 Replies

Scan

Hi Iv had 3 lots of chemo now so ct scan next .well I count myself lucky as my kidney function has improved and Iv not lost weight Iv had no problems with...

Hi Iv had 3 lots of chemo now so ct scan next .well I count myself lucky as my k...

polo2014

•3 years ago

6 Replies

Rising CA125

I have been On Rubraca for three months and have just had a CA125 blood test. Before starting Rubraca my reading was fourteen but is now twenty two. Obviously...

I have been On Rubraca for three months and have just had a CA125 blood test. Be...

27-359

•3 years ago

23 Replies

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TV this eve 18th May

The most wonderful Prof CF was on the tv programme ‘Hospital’ on BBC2 earlier this eve. She ended up giving a lady ( Natasha) surgery when everyone else wasn’t...

The most wonderful Prof CF was on the tv programme ‘Hospital’ on BBC2 earlier th...

Differentforgirls

•3 years ago

30 Replies

Postmenopausal, elevated CA125 update

Hi everyone, hope things are looking positive for you this week. I'm feeling completely lost. I spoke to the Gynaes secretary last week to find out when the...

Hi everyone, hope things are looking positive for you this week. I'm feeling com...

Kat4494

•3 years ago

27 Replies

Update

Hi Ladies Hope everyone is keeping as well as possible, got my first hug in a long time from my daughter and 4 year old granddaughter yesterday which was very...

Hi Ladies Hope everyone is keeping as well as possible, got my first hug in a l...

Hidden

•3 years ago

16 Replies

Successful surgery after being told not suitable?

Hello, I’m looking to see if anyone has had successful debunking surgery after being initially told they aren’t suitable? We have just had a second opinion...

Hello, I’m looking to see if anyone has had successful debunking surgery after b...

Suziejasp

•3 years ago

18 Replies

Can it be ascites

Ive had the op 8 weeks ago now and came out 5kg lighter. In a week since I weighed myself I have put on 2kg! Worried that its ascites, is that possible when I...

Ive had the op 8 weeks ago now and came out 5kg lighter. In a week since I weigh...

rosebine

•3 years ago

4 Replies

free-counselling-via-macmillan/bupa

remember-someone-writing-needing-emotional-support.-this-service-might-help.-https://deref-mail.com/mail/client/D8gAsjD3Lh0/dereferrer/?redirectUrl=https%3A%2F%

remember-someone-writing-needing-emotional-support.-this-service-might-help.-htt...

candyapplegrey

•3 years ago

3 Replies

1st Recurrence 🥺

Hi everyone. After being diagnosed 3c in October 2016 and the usual debulking and chemo I've been disease free since until now 🥺 My checkups were every 4...

Hi everyone. After being diagnosed 3c in October 2016 and the usual debulking a...

Kouyate

•3 years ago

24 Replies

Swollen lymph node

Just had ct scan and one lymph node is slightly swollen. They called it indeterminate. What do swollen lymph nodes mean please? Bluetilly

Just had ct scan and one lymph node is slightly swollen. They called it indeter...

Bluetilly

•3 years ago

2 Replies

Mis match gene repair deficit

I completed treatment and have been told that my pathology shows evidence that I may have this defect which can be related to a genetic syndrome called lynch...

I completed treatment and have been told that my pathology shows evidence that I...

Bluechef3

•3 years ago

2 Replies

Why am I getting burning abdo pain nearly 12 months post surgery for ovarian cancer ( hysterectomy, omentum,BSO and node removal

I am 12 months post surgery and completed chemo for bilateral ovarian cancer. It was stage 1 C. This pain was present immediately post op and improved but now...

I am 12 months post surgery and completed chemo for bilateral ovarian cancer. It...

Bluechef3

•3 years ago

8 Replies

Sorry

Doddery not fodder!

27-359

•3 years ago

2 Replies

Explanation please

I have just received a copy of the letter sent to my GP after phone consultation with my oncologist. I know that I am BRCA negative, but the letter mentions...

I have just received a copy of the letter sent to my GP after phone consultation...

27-359

•3 years ago

9 Replies

Pleural effusion

CA125 went down after pleural effusion drainage? Mother is scheduled for PE thoracentesis next week. Is it possible that CA125 will go down after fluid...

CA125 went down after pleural effusion drainage? Mother is scheduled for PE thor...

Hope4allG

•3 years ago

3 Replies

Ultra radical surgery next week!

I know many of you have undergone this type of surgery. It is a daunting thought. I’d assumed that I’d been deemed u suitable for surgery 18 months ago when my...

I know many of you have undergone this type of surgery. It is a daunting thought...

Fishfinger4

•3 years ago

12 Replies

CA 125 went up after 1st Treatment of Doxil

Well Hello, Went in for my 2nd treatment today on Doxil which went well. But my CA 125 went up from last month from 59 to 198. From reading articles and even...

Well Hello, Went in for my 2nd treatment today on Doxil which went well. But my ...

PCCDaisy

•3 years ago

3 Replies

Second opinion

Hi ladies, following on from my recent post, about whether to have tamoxifen or chemo, I have had further consultation with my oncologist today. He is going to...

Hi ladies, following on from my recent post, about whether to have tamoxifen or ...

Laz66

•3 years ago

5 Replies

In the news: cancer screening trial update

A large scale ovarian cancer screening trial - UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS) – has not been able to demonstrate that annual...

A large scale ovarian cancer screening trial - UK Collaborative Trial of Ovaria...

OvacomeSupport

Partner•3 years ago

10 Replies

Why am I so breathless.?

Hi ladies, I started carbo/caelyx a week ago and now Ihave a tight wheezy chest causing breathlessness and a feeling of chest pressure. I went to GP yesterday...

Hi ladies, I started carbo/caelyx a week ago and now Ihave a tight wheezy chest ...

Duskygem

•3 years ago

9 Replies

Holiday dilemma

Huge thanks to everyone for their helpful replies. Has given some questions I need to answer. I'm about 95,% thinking I'll book it. But going to give myself a...

Huge thanks to everyone for their helpful replies. Has given some questions I ne...

Euphori

•3 years ago

1 Reply

Unable to complete Transvag U/S due to pain

After 10 doctors and lots of tests for symptoms that have come on suddenly and worsened over the past 6 weeks, I was sent for pelvic and transvaginal...

After 10 doctors and lots of tests for symptoms that have come on suddenly and w...

BlueEmpath

•3 years ago

5 Replies

Holiday dilemma

I have stage 3 c ovarian cancer and am on 3monthly check ups now.Diagnosed Dec 2019. Have had 6 chemo and a debulking operation last June last year. Had my...

I have stage 3 c ovarian cancer and am on 3monthly check ups now.Diagnosed Dec 2...

Euphori

•3 years ago

8 Replies

Avastin

Does avastin make you gain weight

Madmolly

•3 years ago

12 Replies

Advice please

Hi all. I hope you’re all as well as can be. I’m looking for some advice please. Bit of a long story so here goes Mum, 60, diagnosed with stage 3A OC Jan...

Hi all. I hope you’re all as well as can be. I’m looking for some advice please...

N-A-58

•3 years ago

9 Replies

Weight gain

Why am I gaining so much weight since chemo and op 9 months ago

Madmolly

•3 years ago

7 Replies

Do parps cause dry skin -- advice needed

I have been on Niraparib parp inhibitors for a couple of months and cannot find any moisturisers which work. The skin on my face feels taut all the time, and...

I have been on Niraparib parp inhibitors for a couple of months and cannot find ...

Cumbrianlass5

•3 years ago

27 Replies

Olaparib side effects advice please

Hey I have advanced germ cell/clear cell ovarian cancer which is extremely rare but my onco is giving the parp a go. It came up from my molecular report of my...

Hey I have advanced germ cell/clear cell ovarian cancer which is extremely rare ...

NIKKibailie

•3 years ago

10 Replies

Large complex ovarian cyst

If anyone can give me some advice I'd be very grateful! I was recently diagnosed with a complex ovarian cyst measuring 5.5x4x5cm. With an endometrium of 1mm....

If anyone can give me some advice I'd be very grateful! I was recently diagnose...

kym46

•3 years ago

17 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2021

Chemo Stopped

Scan

Rising CA125

TV this eve 18th May

Postmenopausal, elevated CA125 update

Update

Successful surgery after being told not suitable?

Can it be ascites

free-counselling-via-macmillan/bupa

1st Recurrence 🥺

Swollen lymph node

Mis match gene repair deficit

Why am I getting burning abdo pain nearly 12 months post surgery for ovarian cancer ( hysterectomy, omentum,BSO and node removal

Sorry

Explanation please

Pleural effusion

Ultra radical surgery next week!

CA 125 went up after 1st Treatment of Doxil

Second opinion

In the news: cancer screening trial update

Why am I so breathless.?

Holiday dilemma

Unable to complete Transvag U/S due to pain

Holiday dilemma

Avastin

Advice please

Weight gain

Do parps cause dry skin -- advice needed

Olaparib side effects advice please

Large complex ovarian cyst

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