Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for May 2021

Hair still coming out

I finished carbo/caelyx at Christmas, my hair is still coming out ! Its thinned all over but is worse on the top. Is this normal. I would have thought it...

I finished carbo/caelyx at Christmas, my hair is still coming out ! Its thinned ...

•3 years ago

Holiday insurance.

Good afternoon everybody. Just wonder if any of you have been brave enough to book a cruise going round the British Isles without cancer cover insurance. I...

Good afternoon everybody. Just wonder if any of you have been brave enough to bo...

Gemimablackvelvet

•3 years ago

Moving to another area

Good afternoon ladies, Is there anyone on here that attends Worcester Royal Hospital, Oncology dept. We will be moving to the area at the beginning of June....

Good afternoon ladies, Is there anyone on here that attends Worcester Royal Hosp...

•3 years ago

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4-th stage ovarian cancer update - GOOD NEWS!

Hello, everyone, I wanted to share the good news on my mother's condition and give hope to other ladies here. She was diagnosed with ovarian cancer stage 4 in...

Hello, everyone, I wanted to share the good news on my mother's condition and g...

•3 years ago

the dreaded ca125 check......

It’s now 4 years since my initial diagnosis of stage 3b PPC/Ovarian cancer. I’ve been suffering from stomach pains since my stomach reversal in September 2019,...

It’s now 4 years since my initial diagnosis of stage 3b PPC/Ovarian cancer. I’ve...

•3 years ago

Face to face appointment with oncologist

Hi Ladies, I have been following this site for several years and found this community so helpful, I am HGS stage 4 with a rising CA125. I. Just wondered have...

Hi Ladies, I have been following this site for several years and found this comm...

•3 years ago

Jennifer Young skincare in the Ovacome shop

Hello everyone You can now shop your favourite products from oncology skincare specialists Jennifer Young and Beauty Despite Cancer through the Ovacome...

Hello everyone You can now shop your favourite products from oncology skincare s...

Partner•3 years ago

Update

I posted a few weeks ago, just after having treatment for a nasty chest infection, during which I had to spend a couple of days on a ventilator. I said that I...

I posted a few weeks ago, just after having treatment for a nasty chest infectio...

•3 years ago

Oncology appointment.

Saw my oncologist yesterday, he agreed that 1200mg of Rucaparib is too much for me to tolerate, I had no quality of life, so he's reduced the dose ,so fingers...

Saw my oncologist yesterday, he agreed that 1200mg of Rucaparib is too much for ...

•3 years ago

Women's Health Strategy

Hello All The Department of Health and Social Care are currently seeking evidence to inform the development of the government's Women's Health Strategy. This...

Hello All The Department of Health and Social Care are currently seeking evidenc...

Partner•3 years ago

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Bit confused and concerned

Hi good morning, I had an mri and it was discussed in the MDT meeting , no mention of the 7x3 cm ovarian cyst but one 3.7cm , apparently he wants to discharge...

Hi good morning, I had an mri and it was discussed in the MDT meeting , no menti...

•3 years ago

Things that have helped me

Hello lovely Teal ladies. I’ve not long seen another has gained her Teal wings which saddens me but also made me think if I can help just one of you with...

Hello lovely Teal ladies. I’ve not long seen another has gained her Teal wings ...

Differentforgirls

•3 years ago

Red itchy rash

I am struggling with a red itchy rash at the moment. My cancer levels are rising and I am wondering if there is any relationship. Finished fifth line chemo in...

I am struggling with a red itchy rash at the moment. My cancer levels are rising...

•3 years ago

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Lynda

Sadly Lynda lost her battle with this horrible disease at the weekend. She is resting peacefully and passed with her family by her side. Thank you for all of...

Sadly Lynda lost her battle with this horrible disease at the weekend. She is re...

•3 years ago

Checking up on a member

Has anyone heard from kkaren? It’s been a while and was hoping she was doing ok? Worried in San Diego.... Debbie

Has anyone heard from kkaren? It’s been a while and was hoping she was doing ok...

•3 years ago

Good news stories

That is great news everyone wants to hear positive outcomes.When I was first diagnosed I just wanted to hear positive stories. I really depended on information...

That is great news everyone wants to hear positive outcomes.When I was first dia...

•3 years ago

Online groups, talks and workshops with Ovacome this week

Hello All, This is to let you know about the Ovacome online events taking place this week. Q&A with cancer exercise specialist Lizzy Davis - Tuesday 4 May,...

Hello All, This is to let you know about the Ovacome online events taking place ...

Partner•3 years ago

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Weight gain with Rubraca

I get on the scales most days and find my weight is increasing. I am not eating any more than usual, my clothes still fit fine. Always bothers me in case I...

I get on the scales most days and find my weight is increasing. I am not eating...

•3 years ago

Avastin stopped due to blood clot, niraparib next

I went for my 4th avastin on Friday, but after waiting several hours had a surprise visit from my consultant, who told me my recent scan had picked up a blood...

I went for my 4th avastin on Friday, but after waiting several hours had a surpr...

•3 years ago

Covid Vaccine and CA125

Hello ladies! I was diagnosed OC stage 3 - three years ago. I recurred a year ago and had 9 months Carbo/caelyx. When I finished chemo Ca125 was 7. Two...

Hello ladies! I was diagnosed OC stage 3 - three years ago. I recurred a year ...

•3 years ago

Still here

Well Ladies I have reached my 5year milestone. I’m fine still after stage 2C diagnosis in April 2016.I had a full Hysterectomy and 5months of chemo.I hope this...

Well Ladies I have reached my 5year milestone. I’m fine still after stage 2C dia...

•3 years ago

FRAME trial ( for low grade OC)

Hi I just wondered if anyone is currently on the FRAME phase 1 trial FAK inhibitor and duel RAF/MEK inhibitor. I am considering and being considered for this...

Hi I just wondered if anyone is currently on the FRAME phase 1 trial FAK inhibit...

•3 years ago

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