Will I get a PARP: I have just completed 2nd line... - My Ovacome

My Ovacome

18,249 members20,377 posts

Will I get a PARP

dramaredgerbil profile image
8 Replies

I have just completed 2nd line therapy Carbo/Caelyx. There has been reduction in tumours but it doesn’t constitute a partial response. I was hoping to go on Niraparib but I’ve read it’s only available if you’ve had a partial or complete response. I won’t see my consultant for a few weeks. I’m really worried as I can’t face chemo again. Nothing seems to be going in my favour. Does anyone know whether I’d get it or not?

Written by
dramaredgerbil profile image
dramaredgerbil
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Lindaura profile image
Lindaura

Dear Drama,

I am afraid I can’t advise you about the PARP, except to say it is unlikely at this point.

As you seem to have a particularly stubborn cancer, my suggestion is to ask your Oncologist to refer you to one of the several Cancer research centres for a trial.

If you Search posts, put in Second Opinions and see what comes up.

Be brave.

It is worth looking into.

Hugs,

Laura

dramaredgerbil profile image
dramaredgerbil

Thanks Laura. I’ll look into this.

Maxjor profile image
Maxjor

If there is reduction from your treatment, do you know why they are saying it is not a partial response? Not enough? I hate to say it but if you are being defined as not having even a partial response, I have to agree with Laura....and also agree to look into other opinions of what to try. Not all treatments are the same--and although we may have a similar diagnosis, each person's cancer reacts differently to different treatment. Hoping they (and they referring to a 2nd opinion or other opinion) find the one that gets you to the response you need! Hugs, Judy

dramaredgerbil profile image
dramaredgerbil in reply toMaxjor

Thanks Judy. Had word from my consultant and I should still get a PARP as I’ve had some response as long as my CA125 doesn’t climb too much. Here’s hoping.

I’m breathing a sigh of relief for you.

I’m in almost the same position but a few weeks behind you. I’m on my 6th cycle of Carbo/Caelyx after my first recurrence. Had a good response after 3 months (50% reduction) but my tumours were really quite large and I worry they won’t have reduced enough to start Niraparib. I read your post with interest and found a lot of encouragement from it. If you can do it - I can too. Good luck with the Niraparib I hope to follow in your footsteps.

Love to you,

Angela xx

dramaredgerbil profile image
dramaredgerbil in reply toGemimablackvelvet

Thanks Angela. Sounds like your tumours will have reduced enough.

Gemimablackvelvet profile image
Gemimablackvelvet in reply todramaredgerbil

Xx

sticky3006 profile image
sticky3006

Hello dramaredgerbil.

Well a reduction in size does count as a partial response surely? Thankfully your consultant has said yes to a PARP. Do you know when you will be starting? I've got everything crossed for you. Good luck,

sticky3006

Not what you're looking for?

You may also like...

Good news (I think!) from scan result.

Morning everyone, yesterday my OC rang with the results of my half way CT scan. I'm on ICON 8 and...
baxbird profile image

Parp inhibitor

Think after my final chemo will be put on a parp inhibitor. My question is will my hair regrow,...
Lizzieanne profile image

How to get on a trial

I have read of ladies being accepted for a trial, can I ask how you go about it my onc isn't very...
nikki9 profile image

Parp inhibitors

Hello I'm new to the group ...I was diagnosed with stage 2a fallopian tube cancer and a faulty...
Karengarci profile image

Living a long time with late stage Ovarian/peritoneal cancer

Hello All... I hope so many people are as well as they can be. It's a long time since I've...
TinaB1 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.