Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for July 2019

Does anyone have the same weird kind of ovarian cancer as me?

Hello, I'm new to this forum but I've heard great things ... I was told that my ovarian cancer was unusual because my original ovarian cyst had a malignant...

Hello, I'm new to this forum but I've heard great things ... I was told that my ...

Susanna-Jane

•5 years ago

5 Replies

The ambience of hospital waiting rooms

Hi all I just spotted a post on Facebook by a midwife whose local hospital has just decorated a room for ladies who have experienced a miscarriage. I thought...

Hi all I just spotted a post on Facebook by a midwife whose local hospital has j...

koffeekat99

•5 years ago

19 Replies

Good News

Hi All, I hope you are all in the best place physically,mentally and spiritually that you can be. I am been treated for my second reoccurence and having single...

Hi All, I hope you are all in the best place physically,mentally and spiritually...

dryden1

•5 years ago

25 Replies

Want to take advantage of all our features? Just log in!

Update on surgery for secondaries

A month after my operation to remove my spleen, gallbladder and any visible cancer, I was back at the Royal London Hospital yesterday. The train journey was...

A month after my operation to remove my spleen, gallbladder and any visible canc...

Lockygill

•5 years ago

13 Replies

Vaginal bacteria

I have just read an interesting report discussing the possibility that ovarian cancer could be linked to vaginal bacteria. (www.bbc.co.uk/news/health) This is...

I have just read an interesting report discussing the possibility that ovarian c...

27-359

•5 years ago

15 Replies

So Anxious it is killing me!

Having learnt 6 weeks ago that my CA125 had soared to 407 I suspect I am heading for a recurrence! My scan was clear so very confusing. I have today been for...

Having learnt 6 weeks ago that my CA125 had soared to 407 I suspect I am heading...

Hidden

•5 years ago

45 Replies

Tamoxifen

Hi everyone, this is my first post , I’m new on here however I’m not new to Primary Pertineal Cancer (ppc) I’ve had it nearly 4 years . I’ve been through all...

Hi everyone, this is my first post , I’m new on here however I’m not new to Prim...

Xtetx

•5 years ago

5 Replies

Oh hell give me a break.

Hi I'm new ,I've been coping well for six months ,positive and hopeful ,but suddenly after my sixth cycle of chemo I've all but given up ,turned into psycho...

Hi I'm new ,I've been coping well for six months ,positive and hopeful ,but su...

fendweller

•5 years ago

43 Replies

Update on Onyx trial

Mum has been treated at the Royal Marston in London for some time now. Her most recent scan has showed 14% shrinkage which takes it to an overall shrinkage of...

Mum has been treated at the Royal Marston in London for some time now. Her most ...

MissEd

•5 years ago

4 Replies

I’m new here

Does anyone sleep a lot when taking Lynparza?

Klinker

•5 years ago

4 Replies

Chemo Resistance?

Resistant to Paclitaxel? I have been receiving weekly doses of this taxol and built up a resistance and am now also on Avastin that is administered every 3rd...

Resistant to Paclitaxel? I have been receiving weekly doses of this taxol and bu...

AlaNtO

•5 years ago

Be the first to reply

low grade serous oc and parps

Does anybody know if low graders, non BRACa (germline) are eligible for Parps.Thanks all. Gwen Xx

Does anybody know if low graders, non BRACa (germline) are eligible for Parps.Th...

thomas62

•5 years ago

23 Replies

Weekly Taxol side effects pros and cons???

Hi lovelies, Im curious about weekly Taxol and it's side effects, unfortunately this looks like the only treatment available to my special person now due to...

Hi lovelies, Im curious about weekly Taxol and it's side effects, unfortunately ...

CallmeMum

•5 years ago

26 Replies

Leaky legs

I have lymphadoema which is a bit up and down. I use tubigrip rather than the compression stockings which require a WWW wrestler to get on and off. Anyway,...

I have lymphadoema which is a bit up and down. I use tubigrip rather than the co...

PhillipandBettykid

•5 years ago

7 Replies

Help with catastrophising other halves!

I worry more about how any letter, scan result or news will affect my other half rather than me! She can't see anything positive, is constantly living in fear...

I worry more about how any letter, scan result or news will affect my other half...

Madmarilyn

•5 years ago

4 Replies

No new advances?

Hi all, Is anyone heard about new advances in treating high grade serous type? I'm from US - Texas but lately everything was somehow silent regarding new...

Hi all, Is anyone heard about new advances in treating high grade serous type? I...

Simona_ro

•5 years ago

5 Replies

Is this Angina

I had a heart attack on the 13 June and had two stents. On returning home I have tried to follow the guide lines for exercise each week but have pain in my...

I had a heart attack on the 13 June and had two stents. On returning home I hav...

bobbycam

•5 years ago

3 Replies

THANK YOU LADIES FOR THE POST OP RECOVERY TIPS

Thank you to all of those that gave me tips on how to survive after surgery. Absolutely amazing. it is great to see such a wealth of knowledge and between all...

Thank you to all of those that gave me tips on how to survive after surgery. Abs...

dieneke

•5 years ago

2 Replies

Taxol side effects

HiI have just had the first round of taxol chemo for low grade oc. Had it over 3 hours on Monday. Wednesday started to get pains down my thighs which have...

HiI have just had the first round of taxol chemo for low grade oc. Had it over 3...

CountryChick78

•5 years ago

9 Replies

Lets get outrageous!!

What one thing do you really really want to do, but have not summoned up the courage? I would like to horse ride naked through the streets on a nice sunny day....

What one thing do you really really want to do, but have not summoned up the cou...

Hidden

•5 years ago

16 Replies

Trying not to feel depressed

I was diagnosed last February 2018. Since that time I've had to start three different treatments. The current treatment is working but with a great deal of...

I was diagnosed last February 2018. Since that time I've had to start three diff...

Natsmb

•5 years ago

19 Replies

MAC -27

If another member of the forum has already posted this sad news, please forgive me as I've been 'absent' from keeping up with the postings for some weeks....

If another member of the forum has already posted this sad news, please forgive ...

lesleysage

•5 years ago

26 Replies

PEACOCC Trial update

A few of you may recall that Chris (Mac-27) and I took on the role of Patients Reps for Cancer Research UK-UCL Cancer Trials Centre for gynae and lung cancer...

A few of you may recall that Chris (Mac-27) and I took on the role of Patients R...

lesleysage

•5 years ago

4 Replies

Any tips to recover from surgery?

Hello lovely ladies, my long story has taken a rather surprising twist! Trying to get a second opinion and hospital for my ovarian cancer surgery which hasn’t...

Hello lovely ladies, my long story has taken a rather surprising twist! Trying t...

dieneke

•5 years ago

34 Replies

To chemo or not to chemo?

Hi lovely ladies can you give me some advice please? I’m due to have my 5th Carbo/Taxol tomorrow. Last week we went away for a few days to Suffolk where we...

Hi lovely ladies can you give me some advice please? I’m due to have my 5th Carb...

Barmycharm

•5 years ago

10 Replies

Obesity and Cancer

Hi lovely ladies. I saw on TV this morning that more cancers are due to obesity than cigarettes. Ovarian cancer was one of the ones mentioned. I'm wondering...

Hi lovely ladies. I saw on TV this morning that more cancers are due to obesity ...

ZenaJ

•5 years ago

73 Replies

Special Person Update

Hi lovelies, I was at the hospital today with my special person (she's still in...) a palliative care nurse came along and started saying what she was doing...

Hi lovelies, I was at the hospital today with my special person (she's still in...

CallmeMum

•5 years ago

24 Replies

Low Grade & Cyclophosphamide

Hello ladies. Had anyone with Low Grade Serous Ovarian Cancer had oral chemotherapy called “Cyclophosphamide”. It’s an old chemo drug that apparently works on...

Hello ladies. Had anyone with Low Grade Serous Ovarian Cancer had oral chemother...

Levanah

•5 years ago

27 Replies

Today is one of those days

I try 2 be positive but realistic. Today is one of those tuff days. Doctor called 2 inform me that my oral Etoposide is not working. CA 125 keeps climbing. Now...

I try 2 be positive but realistic. Today is one of those tuff days. Doctor calle...

Luvliving

•5 years ago

30 Replies

Update on my mum's saga

Hi Just a quick update on my mum. Her CA125 has now risen to 298. As she has no symptons her consultant was keen for her to just keep on going with the avastin...

Hi Just a quick update on my mum. Her CA125 has now risen to 298. As she has no ...

sjg81

•5 years ago

6 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for July 2019

Does anyone have the same weird kind of ovarian cancer as me?

The ambience of hospital waiting rooms

Good News

Update on surgery for secondaries

Vaginal bacteria

So Anxious it is killing me!

Tamoxifen

Oh hell give me a break.

Update on Onyx trial

I’m new here

Chemo Resistance?

low grade serous oc and parps

Weekly Taxol side effects pros and cons???

Leaky legs

Help with catastrophising other halves!

No new advances?

Is this Angina

THANK YOU LADIES FOR THE POST OP RECOVERY TIPS

Taxol side effects

Lets get outrageous!!

Trying not to feel depressed

MAC -27

PEACOCC Trial update

Any tips to recover from surgery?

To chemo or not to chemo?

Obesity and Cancer

Special Person Update

Low Grade & Cyclophosphamide

Today is one of those days

Update on my mum's saga

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive