So Anxious it is killing me!

Having learnt 6 weeks ago that my CA125 had soared to 407 I suspect I am heading for a recurrence! My scan was clear so very confusing. I have today been for my bloods and CTscan to see if anything is now showing, I am hoping to god not! My pelvic pain which was so severe scared the hell out of me has eased, now its more of a mild period pain type ache, and I think some of my pain issues may be linked with my starting Metformin. I go for the results on Monday so am trying to keep busy, been to the garden centre for lunch today, meeting my cousin for lunch tomorrow, shopping Friday, cinema Saturday, just need to organise a very busy Sunday, I know you all understand and have been through the agonising wait for test results, so I am hoping you will send me lots of good vibes and possibly say a little prayer for me when you get the time. Wish me luck for Monday I really am bricking it!

[Caroles1]

Hi Hun,

You are doing the best you can do, no amount of worrying will make any difference, what will be, will be.

So, you may be worrying over nothing and keeping busy is the best.

We all know waiting is the worst, just stick it on the back burner and enjoy yourself.

A nice roast Sunday, with a lovely view and a walk as well.

I am so thinking of you Monday, just hope all the best news in the world, let us know how you get on,

Love, Carole

[Hidden in reply to Caroles1]

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[Katmal-UK]

Everything crossed for you lyn, the waiting is the pits! Do let us know how you get on x Kathy xx

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[Lyndy]

Sending love and hugs and everything crossed for you xxx

[Hidden in reply to Lyndy]

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[shortfriends]

Sending positive vibes and strong wishes that all will be well. Try and block anxious thoughts (I know it is hard) remember we have all expressed and felt these fears and we are still here!! Go mad shopping on Saturday, try it all on , on the Sunday then take it back! We are all backing you so please let us know how you get on. Love an big hugs

Pat xx

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[Manchesterlady]

The waiting is just torture, everything crossed for you Lyn xxx

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[Coldethyl]

Thinking of you - good luck for Monday x

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[delia2]

I am hoping you get good results next Monday and that you can distract yourself til then. Take care!❤️

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[sticky3006]

I’m in the same boat. Ca125 has risen to 38 and waiting for results last Monday literally made me want to be sick. I was a wreck and it was mental torture. Now I’m 99% sure I’m heading to a recurrence I’ve accepted it and feel a bit calmer. Fingers crossed that your levels will have come down and until then you’re doing the right keeping busy. On Sunday you could clean out all your cupboards! Good luck xx

[Hidden in reply to sticky3006]

Thank you 💕 - good idea cupboards certainly could do with a clean out. Sadly I have never been a domestic goddess so I think it will be the pub and a nice meal. 🤣

[sticky3006 in reply to Hidden]

Good plan and have a huge pudding as well! xx

[Samjane]

Same here, waiting is torture. My levels went up from 18 to 38 over 4 months which isn’t as high as yours, but last scan in May said all clear so I’ve no idea what’s happening. We will always be anxious don’t think it ever leaves us.

Hope you get positive news Monday.

Hugs xx

[Hidden in reply to Samjane]

Thank you 💕 38 is good and probably nothing to worry about. Your team will keep a close eye on you.

[Di16]

If you have just started taking Metformin, it's possible it could be causing some of your discomfort. I've been taking it for a few years as I'm also diabetic, & it took a little while for my body to accept it, but the problem soon wore off.

Whatever the cause, I hope you soon feel more comfortable, & that the news on Monday is better than you fear. Waiting for results is always awful. I had an appointment last week for scan & bloods results, & still get anxious every time. Di

[Hidden in reply to Di16]

Thank you 💕 the pain started 4 days after I started taking 2 x 500g 6 weeks ago. But doctor google says it could be lots of other things so of course that has added to my anxiety, I always advise people to not google, shame I cant take my own advise 😂

[bibs73 in reply to Hidden]

My friend is a diabetic nurse and they recommend taking it with food rather than before food as it’s kinder on the stomach if you are having tummy issues.

[Hidden in reply to bibs73]

Thank you - I am taking it with food but I am on the slow release, usually the slightest little thing upsets my digestion, but I am hoping I can persevere. x

[juliamillen]

Keep busy. Sunday lunch out and a walk sound good to me! Hope the time goes quickly

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[tara108]

I so hope your scan is ok for you. It's so..ooo hard to wait and so normal to feel anxious. My CA125 is now over 5000! never been over 1500 before, apart from before operation. (It's partly from targeted radiation) but scan results not good so starting my 3rd chemo very soon. I wish I could do mine for you as well. Let us know. Big hugs and lots of prayers from English gal in Oz.

[Hidden in reply to tara108]

Thank you 💟 - good luck with your chemo. x

[Cropcrop]

I’m so sorry you’re so worried, we do all know what the waiting bit it like, at least once we get our diagnosis we know what we’re dealing with and can get on with it, the waiting is so tough but you’ve done all the right things and tried to keep busy in the interim period. Of course we’re all sending positive vibes and the bestest wishes possible. I’ll remember you in my thoughts, I don’t pray I tend to ponder more. Love and hugs, let us know once you know lovely ❤️Xx Jane

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[Mommoo65]

Big hug and keeping crazy busy is an amazing idea but I know it's hard to shut off the mind. Prayers for you that your concerns are groundless.

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[gmc920]

Thinking of you, Lyn, and sending lots of positive thoughts and prayers!

xx Gina

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[Natsmb]

I can't promise but maybe to ease your mind a tiny bit until you know for sure, if you started on a new mad and it's created pain that's enough to make your ca-125 jump up. In fact every time my ca-125 is jumped up, I almost expected it to because I had an increase in inflammation in my joints or muscles or just general pain and even though that ca-125 went up my CT scans were clear so hold on and don't get too worried yet. Praying for the best.

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[Irisisme]

Hi Lyn, good luck for Monday. Do let us know how you get on ASAP.

Virtual Hugs,

Iris ❤️🍀❤️🍀

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[TudorPurr68]

Hello Lyn. I am with you on this. When I worry, which is most of the time, i try to pack my days seeing friends and going out. All the best to you. With love - T. Purr x

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[Artgreen]

I feel for you. It is so scary. Sometimes I feel that I’m rehearsing saying goodbye to everyone I know and then on other days it feels like I’m not unwell and it’s all better. Facing the fear seems to help and admitting it. And keeping a feeling of being able to employ differing approaches including mind/body ones seems to reduce the stress hormones and consequently the inflammation and starves the cancer. At least that’s what the various books I’m reading state and reminds me I used to know all this before the diagnosis made me forget it! Sending love and all good wishes

Alex

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[Calluv]

Well, it seems like the CA125 can be all over the place and yet CT pet scans and MRI can show all clear, as mine have done. My account is 30 at the moment up from 8 or so for the past 2 1/2 years, since February.

My doctor asked me if I was experiencing any joint pain, to which I replied “haven’t you been listening to me”. As we all know joint pain and chemo seem to go hand-in-hand. Anyway he said that the CA125 can jump around for other reasons apart from your cancer it responds to protein so he said that because I’m feeling arthritic and my joints are sore he has put me on a very strong anti-inflammatory, Mobil. He said I shouldn’t worry there’s no sign of cancer and just relax and I’m getting bloods done again in August and we will see then. As we all know, easier said than done. My partner now thinks everything is peachy, so I just keep on keeping on and what will be will be.At the end of the day as we all know there is nothing we can do about it, so while we are seemingly healthy and cancer free just enjoy ourselves. I do believe stress can make a difference as well but hey, no one stresses when they have cancer 🤦‍♀️

[Hidden in reply to Calluv]

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[jools53]

Sending positive vibes! You can get pass this stay strong, feeling apprehensive myself at moment ca125 still 105 after 6 rounds of cisplatin, now going on niraparib🙏😘 just another day , learning to live with it & I always think & have seen others in worse places, so I thank god im here but it is tough , but there is so much coming through plus trials etc 😘

[Hidden]

Thank you.............I think we all "have to learn to deal with it" I cope by the bury head in sand approach, but when I come up for air - wham it hits me! This time round I am going to tackle it head on and get rid of the B' once and for all! I have heard very good reports regarding Niraparib, wishing you all the very best with your continued treatment. 💕