Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for February 2019

A few questions

Hello ladies! I'm new to this forum. My sister recently had a scan which picked up that she has a 6cm cyst with a septum which looks fairly unusual on her...

Hello ladies! I'm new to this forum. My sister recently had a scan which picked ...

•5 years ago

Low red blood cell count

Hi all! Just came from my oncologists office where I got my bloodwork results. It seems my white blood cell count and my platelet counts are back to normal...

Hi all! Just came from my oncologists office where I got my bloodwork results. ...

•5 years ago

Newby by the way 🤗 my name is Jenny looking for a friend to chat and share this whole crazy rollercoaster of emotions with

I’m not sure what to say this is all alien to me but get in touch if u like to chat and become friends xx

I’m not sure what to say this is all alien to me but get in touch if u like to c...

•5 years ago

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Ovacome Health and Wellbeing Day 9 March

Hello All This is to let you know about the next Ovacome Health and Wellbeing Day, which is taking place on 9 March 2019 10am-4pm at Friends House, 173-177...

Hello All This is to let you know about the next Ovacome Health and Wellbeing Da...

Partner•5 years ago

I had good news today

I know it's hard proclaiming good news when so many others are struggling with recurrences but it's early days for me. I finished my firstline carbo/taxol a...

I know it's hard proclaiming good news when so many others are struggling with r...

•5 years ago

Palliative care

Hi Dear ladies especially those who are on palliative care I shifted mom out of active cancer treatment in November she has been doing well and is very...

Hi Dear ladies especially those who are on palliative care I shifted mom out of...

•5 years ago

Aliens , chemo and Cymbalta ?

This is day 7 after my first infusion last Tuesday for second recurrence in my peri Aortic lymph nodes. It's the heavy guns of Carbo / TaxoI which first zapped...

This is day 7 after my first infusion last Tuesday for second recurrence in my p...

•5 years ago

Update

As posted before i have been on Niraparib for about 6 months. I had my results of my CT scan this morning and i now have cancer of the vaginal vault. Has...

As posted before i have been on Niraparib for about 6 months. I had my results o...

•5 years ago

Rotterdam Regimen Update

Just a quick update. I didn’t respond well to the second treatment on the Rotterdam Regimen and was very unwell and have ended up as an in patient with the...

Just a quick update. I didn’t respond well to the second treatment on the Rotter...

•5 years ago

Hair loss carbo/gem

I’m on my second cycle of carbo/gem for first recurrence. My hair is coming out in handfuls. The leaflet suggests your hair ‘may thin’ but this is a lot more...

I’m on my second cycle of carbo/gem for first recurrence. My hair is coming out ...

•5 years ago

HuffPost article on OC in women in their 30’s

Good morning ladies. I’ve just read an article in HuffPost about younger women and their struggle to get their symptoms taken seriously. I hope that the recent...

Good morning ladies. I’ve just read an article in HuffPost about younger women a...

•5 years ago

Incisions Hernia and Insurance

THis is a question about insurance. I having real problems getting insurance at the moment I am on watch and wait , I also have an incisionalm hernia. As...

THis is a question about insurance. I having real problems getting insurance at ...

•5 years ago

Chemo hair

I finished Chemo 6 months ago, and my hair has grown back grey, i used my old loreal colour to go back blonde but it did not touch the grey, has anyone else...

I finished Chemo 6 months ago, and my hair has grown back grey, i used my old lo...

•5 years ago

Hormone therapy!

Afternoon Has anybody had a good response from letrozole? Unfortunately I’m still deemed inoperable due to too much “peppering” on small Bowels after...

Afternoon Has anybody had a good response from letrozole? Unfortunately I’m sti...

•5 years ago

Avastin and 2nd line chemo, Aurelia trial?

Hi there I'm on 2nd line weekly Taxol for recurrance 2 months after end of first line treatment. I am considering whether to self fund Avastin to be added to...

Hi there I'm on 2nd line weekly Taxol for recurrance 2 months after end of first...

•5 years ago

Platinum challenge - reversing platinum resistance

Hello All I am platinum resitant after recurring just 2 months after 1st line treatment. Am now on 2nd line weekly Taxol. I have been trying to read up a bit...

Hello All I am platinum resitant after recurring just 2 months after 1st line tr...

•5 years ago

NEIGHBOURS STORYLINE?

I don't normally watch soaps, but was intrigued enough to get Neighbours on catch up and view the Ovarian Cancer story line. Apart from wondering why I had to...

I don't normally watch soaps, but was intrigued enough to get Neighbours on catc...

•5 years ago

Stopping Avastin

Hello lovely ladies, I saw my oncologist yesterday and discussed with her stopping Avastin. As my blood test results are good, CA125 stable between 8-10, and...

Hello lovely ladies, I saw my oncologist yesterday and discussed with her stoppi...

•5 years ago

Groundglass shadowing in a lung anyone?

Hello People. I’ve started stewing so it’s time to ask you, the people who really know. My Oncologist told me my scan was negative, that is really great, we...

Hello People. I’ve started stewing so it’s time to ask you, the people who reall...

•5 years ago

Eastenders

Hi lovelies, Just read that Eastenders are doing an Ovarian Cancer storyline, hopefully it’ll raise awareness to this disease the way it needs to be raised,...

Hi lovelies, Just read that Eastenders are doing an Ovarian Cancer storyline, ho...

•5 years ago

Useful article today to share

https://wholefoodsmagazine.com/supplements/news-supplements/study-delta-tocotrienols-may-help-extend-lifespan-of-ovarian-cancer-patients/ Marian x

https://wholefoodsmagazine.com/supplements/news-supplements/study-delta-tocotrie...

•5 years ago

Good CA125 result again

Hi everyone. Just a quick post to say that my CA125 was 6 again this week. It is now over 4 years since my last dose of chemo - Nov 7th 2014. And it will...

Hi everyone. Just a quick post to say that my CA125 was 6 again this week. It ...

•5 years ago

Ok ladies next chapter

Had a wonderful wedding ! Pictures to follow shortly! Had laparoscopy yesterday, lots of pictures! , lots of seeding, and on lower end of colon, they are quite...

Had a wonderful wedding ! Pictures to follow shortly! Had laparoscopy yesterday,...

•5 years ago

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