Posts - My Ovacome | HealthUnlocked

My Ovacome

18,141 members • 20,291 posts

All posts for May 2017

Joint Pain

I finished my chemo of carboplatin and taxol on 30th January this year. About 6 weeks after I started to get joint pain. Mainly my knees ,wrists and nuckles....

I finished my chemo of carboplatin and taxol on 30th January this year. About 6...

Corribrae

•7 years ago

8 Replies

Managed to get on a trial !

At last after a few months of being informed of new trials then not to meet the criteria I was getting a little down hearted. Then along comes another - yes I...

At last after a few months of being informed of new trials then not to meet the ...

Lucidalil

•7 years ago

11 Replies

Fluid in lung

I was told i have a small amount of fluid on my right lung not on chemo can you fly with this just seen a good holiday on line not sure if it be ok or not xxx

I was told i have a small amount of fluid on my right lung not on chemo can you ...

Friscok12

•7 years ago

12 Replies

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IBS

Hi to all you lovely ladies, have any of you suffered with irritable bowel syndrome ? Im in a lot of pain and of course worried its the beast on its way back.I...

Hi to all you lovely ladies, have any of you suffered with irritable bowel syndr...

Hidden

•7 years ago

16 Replies

Third recurrence and elevated AFP but nothing on scans? So confused and scared 😞

Hello all, My mum was diagnosed with IIIC ovarian carcinosarcoma in June 2013. Various chemo and surgery later, she was clear. In October 2015 it returned,...

Hello all, My mum was diagnosed with IIIC ovarian carcinosarcoma in June 2013. ...

Mayski

•7 years ago

12 Replies

Been reading first time post

My name is Judy and my diagnosis was a serious cancer grade 3 Found by accident within 3 weeks the surgeon did the debunking surgery or radical hysterectomy he...

My name is Judy and my diagnosis was a serious cancer grade 3 Found by accident ...

Calluv

•7 years ago

15 Replies

Time

Anybody had a longer remission second line treatment than they did first line treatment or does this just not happen xxx

Anybody had a longer remission second line treatment than they did first line tr...

Friscok12

•7 years ago

11 Replies

Post Avastin

Started to write a post and lost it in the middle - it may appear but I just need a bit of support for fellow fighters as I have virtually given up. Avastin...

Started to write a post and lost it in the middle - it may appear but I just nee...

steffi123

•7 years ago

10 Replies

PARP trials and approvals

just thought I share some of info as it sucks that women have to go through unnecessary chemo when it clearly isn't going to work. unfortunately it's not...

just thought I share some of info as it sucks that women have to go through unne...

Hidden

•7 years ago

21 Replies

CANNOT GET TRAVEL INSURANCE FOR GREECE

Well I've tried and tried.... CANNOT get insurance . Today I've tried Free spirt and MIA . Not interested. Looks like I'll have to take my E111 card and credit...

Well I've tried and tried.... CANNOT get insurance . Today I've tried Free spirt...

ricky23

•7 years ago

39 Replies

Reflux

Morning to you all, I'm so thankful for this contact we have. I was asking about reflux last week. It progressively got worse, so much my chemo has been...

Morning to you all, I'm so thankful for this contact we have. I was asking abo...

MyLife1

•7 years ago

4 Replies

PPC newbie here - scared and sick

I'm grateful for this forum. Last week I was diagnosed with stage 3 PPC. I have been very sick with ascites, pelvic pain, and nausea. I'm getting my chemo...

I'm grateful for this forum. Last week I was diagnosed with stage 3 PPC. I hav...

kat98116

•7 years ago

23 Replies

surgary didnt work..

it seem im gonna be wering the colostomy bag for the rest of my life. this is so depesing.. laying in the hospital, wonder why i just wish they could have...

it seem im gonna be wering the colostomy bag for the rest of my life. this is so...

Veronica08

•7 years ago

11 Replies

3rd line treatment in less than 2 years!

Finished 2nd line carbo taxol on 28th March'17, CA125 still 150. Oncologist said wanted to keep me stable for 6 to 12 months. Wasn't too happy about this so...

Finished 2nd line carbo taxol on 28th March'17, CA125 still 150. Oncologist sai...

agnesslouise

•7 years ago

13 Replies

Had my first appointment at the lymphedema clinic today.

Evening ladies. Well it went as I expected. The fluid in my left leg has been caused by the removal of lymph nodes during my surgery last year. It leaves me...

Evening ladies. Well it went as I expected. The fluid in my left leg has been ca...

triplets

•7 years ago

4 Replies

Octopus

Anybody on the octopus trial with good results this could be a option for me xxx

Anybody on the octopus trial with good results this could be a option for me xxx...

Friscok12

•7 years ago

4 Replies

Mucinous Ovarian Cancer - chemo - what type works?

Hi, formal staging yesterday was Stage 1a (Grade 2) and, after waiting 6 weeks for this result, I feel exhausted. Consultant and CNS both very happy. I'll get...

Hi, formal staging yesterday was Stage 1a (Grade 2) and, after waiting 6 weeks f...

GillianWright

•7 years ago

40 Replies

Tomaxafin

Good Morning My mom is stage 3c high grade. She had ascites before diagnosed but after frontline of carbo/gem and Avastin for 6months her ca-125 is very low...

Good Morning My mom is stage 3c high grade. She had ascites before diagnosed but...

Christinebetty

•7 years ago

11 Replies

Cancer free!!

I don't have a clue what to write. I'm 42 and I'm a cancer survivor. I just would like to connect with people who've experienced the battle.

I don't have a clue what to write. I'm 42 and I'm a cancer survivor. I just woul...

Robyn74

•7 years ago

17 Replies

my mum....

Hi Ladies, Today mum received the results from her scan following 6 chemo, hysterectomy and 2 chemos and it is all clear :) :) Not sunk in yet

Hi Ladies, Today mum received the results from her scan following 6 chemo, hyste...

MissEd

•7 years ago

23 Replies

Confidence

Hello all, I finished with the company last month after 24 years ,after being off sick for nine months going through treatment. It was quite emotional for me...

Hello all, I finished with the company last month after 24 years ,after being of...

ellseybellsey

•7 years ago

34 Replies

Help and advice please? I'm new here!

Hi Ladies, This is my first post on this site although I have been reading a lot of your inspirational posts since March when my lovely sister was diagnosed,...

Hi Ladies, This is my first post on this site although I have been reading a lot...

Kjmc63

•7 years ago

12 Replies

Paclitaxel reaction

Had my second round of Paclitaxel and Carboplatin on Thu. Unfortunately took a bad reaction to taxel. To go back to consultant to see what I can get next....

Had my second round of Paclitaxel and Carboplatin on Thu. Unfortunately took a b...

Sh-x

•7 years ago

6 Replies

Manuka Honey

I'm using Manuka Doctor honey on a surgical wound. As a nurse I did a lot if research on types of honey, they are not all the same and raw may cause bigger...

I'm using Manuka Doctor honey on a surgical wound. As a nurse I did a lot if res...

Kryno

•7 years ago

5 Replies

Getting there

Got up today feel bit better put my fighting pants on but they not fully pulled up yet just at my knees thank you all for the support over the last few days...

Got up today feel bit better put my fighting pants on but they not fully pulled ...

Friscok12

•7 years ago

9 Replies

Clinicians' Names - Please do not use

Hello all There have been a few posts recently naming individual clinicians. Please do not name individuals in your posts. If you want to share clinicians...

Hello all There have been a few posts recently naming individual clinicians. Ple...

TheOvacomeTeam

Partner•7 years ago

14 Replies

Side effects

Hi I am new to posting. Was diagnosed stage 111c high grade Jan 2016. Had 4 lots of carboplatin and paclitaxel then hysterectomy followed by further two...

Hi I am new to posting. Was diagnosed stage 111c high grade Jan 2016. Had 4 lots...

Peppertombs

•7 years ago

8 Replies

Has anyone been on cyclophosphamide?

Has anyone had any success with cyclophosphamide? It is chemotherapy, but I have been told it is not as bad as others on your immune system. I'd love to know...

Has anyone had any success with cyclophosphamide? It is chemotherapy, but I have...

Hectoria

•7 years ago

2 Replies

Cannabis oil

Hi everyone, I want to spread the word about a Dundee group who are getting together on May 27 from 12 - 4pm. FB page is Cannabis oil cures ... Dundee...

Hi everyone, I want to spread the word about a Dundee group who are getting toge...

breechat

•7 years ago

12 Replies

Thought of the day

This is for everyone out there

Bobbyo1

•7 years ago

9 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2017

Joint Pain

Managed to get on a trial !

Fluid in lung

IBS

Third recurrence and elevated AFP but nothing on scans? So confused and scared 😞

Been reading first time post

Time

Post Avastin

PARP trials and approvals

CANNOT GET TRAVEL INSURANCE FOR GREECE

Reflux

PPC newbie here - scared and sick

surgary didnt work..

3rd line treatment in less than 2 years!

Had my first appointment at the lymphedema clinic today.

Octopus

Mucinous Ovarian Cancer - chemo - what type works?

Tomaxafin

Cancer free!!

my mum....

Confidence

Help and advice please? I'm new here!

Paclitaxel reaction

Manuka Honey

Getting there

Clinicians' Names - Please do not use

Side effects

Has anyone been on cyclophosphamide?

Cannabis oil

Thought of the day

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