Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,072 members • 28,393 posts

All posts for January 2015

Burning/ hotness in legs & thighs and slightly drunk feeling?

Does anyone else feel a weird sensation descend, starting erg fast beating heart, burning legs (hot to touch, not painful) dizziness and slight shakes? Kind of...

Does anyone else feel a weird sensation descend, starting erg fast beating heart...

kittyIM

•10 years ago

13 Replies

MRI scans and Memory

So I got my MRI results back yesterday and they said it was all clear. I have now been booked in for 2, three hour sessions on my memory and concentration to...

So I got my MRI results back yesterday and they said it was all clear. I have no...

Jessicaa19

•10 years ago

3 Replies

Interstitial cystitis....what a pain :-( help

Finally managed to get a referral for my symptoms of interstitial cystitis which have plagued me on and off for 12 years but Have in the past been continually...

Finally managed to get a referral for my symptoms of interstitial cystitis which...

Chablis

•10 years ago

4 Replies

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No, YOU bought a bunch of seed in December

Oh dear, I've been at it again....I ordered a bunch of seed for the garden effort, of which I have waffled on about in another thread:...

Oh dear, I've been at it again....I ordered a bunch of seed for the garden effor...

Silvergilt

•10 years ago

3 Replies

My rhemo doc !

Hi all just been told I've lupus in April 2014! At the start I seen my rhemo so a good bit now I ain't seen him in 4 months 2day am due to see him to scan my...

Hi all just been told I've lupus in April 2014! At the start I seen my rhemo so ...

Ruth_lderry

•10 years ago

5 Replies

Trying to find a post!

Hi all seen a post on this the other day regrading someone taking lupus in the brain?? Can't find it.. Was really looking to see how they r doing! Ruth x

Hi all seen a post on this the other day regrading someone taking lupus in the b...

Ruth_lderry

•10 years ago

2 Replies

Thank you xx

Hi I hope everyone is doing well Last month, i asked for help regarding my kidney biopsy. Thank you for all the help and kind messages. It was beyond very...

Hi I hope everyone is doing well Last month, i asked for help regarding my kidn...

pearl123

•10 years ago

4 Replies

Hi my pulmonary gas function test came back at only 60% anyone know what that means i do have lupas thanks

Hi my pulmonary gas function test came back at 60 % anyone understand this the s-pirometry was normal thanks

Hi my pulmonary gas function test came back at 60 % anyone understand this the ...

MAIDMARIONMARION

•10 years ago

2 Replies

Anyone else had this cold/virus that will not go?

Has anyone else had this cold/virus that has lasted ages? I had two rituximab infusions in December and since then I have had a cold/fluey virus that will...

Has anyone else had this cold/virus that has lasted ages? I had two rituximab ...

joannebond360

•10 years ago

5 Replies

Help needed for new booklet aimed at carers of people with lupus

We are looking for anybody who is a carer for somebody with lupus to answer a questionnaire to help contribute towards a new booklet - The more feedback we...

We are looking for anybody who is a carer for somebody with lupus to answer a qu...

Paul_Howard

Partner•10 years ago

2 Replies

Loss of tissue in face

I've never come across anyone that has lost tissue in face, I've had three major operations in my twenties ( now 51 ) to build my face up to look normal. Very...

I've never come across anyone that has lost tissue in face, I've had three major...

molly19

•10 years ago

17 Replies

Lungs

Does anyone do any natural treatments for lung inflammation? I have been having labored breathing for awhile. I tried a marshmellow, chamomile tea which seems...

Does anyone do any natural treatments for lung inflammation? I have been having ...

Natura

•10 years ago

16 Replies

Now what?

Following on my 'pushed pillar to post' post. Have seen my GP who confirms I have an auto-immune response throughout my nervous system - inflammation in my...

Following on my 'pushed pillar to post' post. Have seen my GP who confirms I ha...

achydunlin

•10 years ago

23 Replies

Persistent kidney infection: comments?

Hello all. Some background (apologies in advance for my being long-winded): i have a history of rapid onset UTIs with severe multisystem symptoms. They've...

Hello all. Some background (apologies in advance for my being long-winded): ...

Barnclown

•10 years ago

14 Replies

ATOS Medical assessment

Hi everyone. I applied for PIP back in July 2014 when my kidney disease got worse as my kidneys started to shut down. I was lucky as i got help filling out the...

Hi everyone. I applied for PIP back in July 2014 when my kidney disease got wors...

Mac1967

•10 years ago

9 Replies

Symptoms & mean GP

Hi everyone, 3 years ago I was seen by a rheumy who diagnosed me as having arthritis of the hands. I was given medication and have had no problems for over 2...

Hi everyone, 3 years ago I was seen by a rheumy who diagnosed me as having arth...

Powerhouse

•10 years ago

13 Replies

Gum and teeth problems

I had my second root canal on Tuesday after a terrible week of pain. I am worried that I might be loosing my teeth as my gums are always inflamed. I use...

I had my second root canal on Tuesday after a terrible week of pain. I am worrie...

Pipido36

•10 years ago

29 Replies

New research : News type of NSAIds

It was brought to my attention there has been a total new development on NAIDS. An article appeared in Australia in which was mentioned a masking medication,...

It was brought to my attention there has been a total new development on NAIDS. ...

morlobach

•10 years ago

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Lupus and a holiday?

Hi all just looking a bit of advice.. I'd love to go away on hols this year but obvs with my lupus the really sunny places r a no go.. Any decent places out...

Hi all just looking a bit of advice.. I'd love to go away on hols this year but ...

Ruth_lderry

•10 years ago

8 Replies

Happy new year everyone

Hello everyone and happy new year , I just found this group am so happy is there any meet up groups in London ? I would like to attend to some My name is...

Hello everyone and happy new year , I just found this group am so happy is there...

Fabgran

•10 years ago

5 Replies

Can Kidney Function fluctuate in the early stages of Lupus Nephritis treatment with Mycophenolate?

I have been taking mycophenolate sodium (very similar to MMF) for nearly 6 weeks now and am at the full dose of 360 mg bd, currently tolerating the dose fine,...

I have been taking mycophenolate sodium (very similar to MMF) for nearly 6 weeks...

marni04

•10 years ago

8 Replies

Help...me..understand if on right path....?:-( :-)

OK..so had hands. Wrists xrayed... No news yet..some bloods back..vitimin c or d on low side..lupus not back!! My. Gp is the best cryed when she fame back been...

OK..so had hands. Wrists xrayed... No news yet..some bloods back..vitimin c or d...

louiseamos

•10 years ago

10 Replies

Lupus Medications

I was diagnosed with a severe form of SLE Lupus with cerebral involvement in August 2013. After 6 months of Cyclo by IV every two weeks I have been on...

I was diagnosed with a severe form of SLE Lupus with cerebral involvement in Aug...

abby1649

•10 years ago

6 Replies

Mycophenolateand flu like symptoms

I was building up to a full dose of mycophenolate. As the dose was increasing I started getting pain like I have the flu. This is then making me not sleep....

I was building up to a full dose of mycophenolate. As the dose was increasing I...

adrienneioannou

•10 years ago

6 Replies

Share your experiences of claiming benefits for our blog

Happy New Year! To start off our blog this year, we would like some people to share their experiences of claiming benefits with lupus. As a member of this...

Happy New Year! To start off our blog this year, we would like some people to s...

Paul_Howard

Partner•10 years ago

11 Replies

Lupus?

I've have had positive ANA for over two years and other symptoms and have been on medication for Lupus im now confused as when I had a check up the other day...

I've have had positive ANA for over two years and other symptoms and have been o...

steph1

•10 years ago

2 Replies

DLA awarded

I originally had low rate care, no mobility, which everyone agreed was inaccurate. I had to file for a renewal claim, and due to the rather awful year I've...

I originally had low rate care, no mobility, which everyone agreed was inaccurat...

Silvergilt

•10 years ago

10 Replies

Broken hip

Broken hip On the 18th October I slipped on decking landed on my hip and broke my hip. I am 56 years old , have lupus , aps and raynauds and have never broken...

Broken hip On the 18th October I slipped on decking landed on my hip and broke ...

clova

•10 years ago

4 Replies

Positive ANA&Positive DsDna/ Negative ANA & Positive DdDna

Hello everyone, I am from the United Statesand saw your blog and thought I'd join. I am 33 recently had tests done positive ANA positive DsDna then sent to...

Hello everyone, I am from the United Statesand saw your blog and thought I'd joi...

Stormyweather541

•10 years ago

7 Replies

PIP awarded :-)))))

Received standard rate PIP for 3 years backdated to March 2014 YAY!!!!!!!!!!!! What a relief was very dubious about getting it as my medical was with a...

Received standard rate PIP for 3 years backdated to March 2014 YAY!!!!!!!!!!!! W...

Hidden

•10 years ago

14 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2015

Burning/ hotness in legs & thighs and slightly drunk feeling?

MRI scans and Memory

Interstitial cystitis....what a pain :-( help

No, YOU bought a bunch of seed in December

My rhemo doc !

Trying to find a post!

Thank you xx

Hi my pulmonary gas function test came back at only 60% anyone know what that means i do have lupas thanks

Anyone else had this cold/virus that will not go?

Help needed for new booklet aimed at carers of people with lupus

Loss of tissue in face

Lungs

Now what?

Persistent kidney infection: comments?

ATOS Medical assessment

Symptoms & mean GP

Gum and teeth problems

New research : News type of NSAIds

Lupus and a holiday?

Happy new year everyone

Can Kidney Function fluctuate in the early stages of Lupus Nephritis treatment with Mycophenolate?

Help...me..understand if on right path....?:-( :-)

Lupus Medications

Mycophenolateand flu like symptoms

Share your experiences of claiming benefits for our blog

Lupus?

DLA awarded

Broken hip

Positive ANA&Positive DsDna/ Negative ANA & Positive DdDna

PIP awarded :-)))))

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