Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,707 members • 28,077 posts

All posts for May 2013

Am I going crazy

I have got my results for various tests for lupus etc. and all came back negative. When I saw the rhuematologist last week, can you believe I was feeling a...

I have got my results for various tests for lupus etc. and all came back negativ...

Carolha

•11 years ago

2 Replies

does anyone suffer with leg muscles that feel weak as though you've just climbed a mountain?

My legs have started feeling really weak. Today I sat on the arm of a chair for 10mins and then felt as though my legs were really shaky for the next 45mins....

My legs have started feeling really weak. Today I sat on the arm of a chair for...

crazyk

•11 years ago

15 Replies

was feeling great and then....

I went out in the sun. I had been pottering around the house all morning, did some washing and ironing, and making the most of my last day off before back to...

I went out in the sun. I had been pottering around the house all morning, did so...

tjperfick

•11 years ago

4 Replies

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May’s Guest Blog – Val Wilson (Secretary of North West Lupus Group)

This month’s guest article has been written by Val Wilson. Val Wilson is the secretary for the North West Lupus Group who hosted the LUPUS UK National...

This month’s guest article has been written by Val Wilson. Val Wilson is the sec...

Paul_Howard

Partner•11 years ago

5 Replies

Could Lupos medication help me?

I was diagnosed with Fibromyalgia in 2010. Various blood tests over the last 18mths have shown Lupos. They re-test and then it shows normal. This has happened...

I was diagnosed with Fibromyalgia in 2010. Various blood tests over the last 18m...

snadra

•11 years ago

6 Replies

Recovery time after gym?

I had a session with a personal trainer on Tuesday and I still ache. Lots. My stomach hurts when I sneeze, yesterday I was crying with pain as my hands hurt...

I had a session with a personal trainer on Tuesday and I still ache. Lots. My ...

chrissiij

•11 years ago

9 Replies

Systemic lupus. HELP

Hey guy's. I got diagnosed with lupus nearly 3 weeks ago now. Took them long enough as I've been in joint pain for 5-6 years. I am still finding out...

Hey guy's. I got diagnosed with lupus nearly 3 weeks ago now. Took them long e...

blondie22

•11 years ago

13 Replies

Friday - a means to an end.

It's Friday - the end of the week. If you are happy, continue so throughout the weekend. :) If you are ill, I hope you use the weekend to take some time...

It's Friday - the end of the week. If you are happy, continue so throughout t...

chrissiij

•11 years ago

3 Replies

Pmt help!

Hi fellow lupies! Just approaching my period but feeling absolutely awful. A week before I'm going to start it all starts the fatigue, headaches and the...

Hi fellow lupies! Just approaching my period but feeling absolutely awful. ...

heda123

•11 years ago

3 Replies

Lupus SLE

I was diagnosed last August after constantly visiting my GP with various symptoms. I thought i was going mad, and that it was all in head! Anyway blood tests...

I was diagnosed last August after constantly visiting my GP with various symptom...

daphers

•11 years ago

8 Replies

Is it ok to use a progesterone cream for the relief of menopausal symptoms.

daphers

•11 years ago

4 Replies

On planquenil and given quinoric buy my pharmacy " bouncing at the reply " from the woman behind the pharmacy after asking why.

Hi everyone its a massive OMG moment someone please remove me from my ceiling. I put in my repeat scipt to my doctors which went to the pharmacy. On...

Hi everyone its a massive OMG moment someone please remove me from my ceiling. ...

willowwag

•11 years ago

17 Replies

LUPUS/M.E/CFS/POST VIRAL could they all be the same sneaky bugger

well I am having a good little spell and am currently undertaking research using the internet, emailing various organisations and talking with both medical...

well I am having a good little spell and am currently undertaking research using...

scoobydoo1

•11 years ago

13 Replies

Just wanted to say...

Today is my one year anniversary at work! It may not be the biggest achievement but I wanted to celebrate as it has been a very long time since I was able to...

Today is my one year anniversary at work! It may not be the biggest achievement...

steadilymovingforward

•11 years ago

22 Replies

Heartbroken.

I lost my Mum two years ago to breast cancer and last night, I lost my beautiful older brother to a heart attack. He was only 55. Gone too soon and never,...

I lost my Mum two years ago to breast cancer and last night, I lost my beautifu...

lillyanne

•11 years ago

19 Replies

My first day

Today I was finally diagnosed as having Lupus, two of my sisters have it, my mother had rheumatoid arthiritis and my father had osteo arthiritis, but according...

Today I was finally diagnosed as having Lupus, two of my sisters have it, my mot...

angela7m

•11 years ago

7 Replies

Lupus or me going mad??

Hi everyone, I am knew to this! I haven't been diagnosed yet just going through the tests, it's been 10months now and all blood tests etc have pointed to...

Hi everyone, I am knew to this! I haven't been diagnosed yet just going throug...

Samantha817

•11 years ago

10 Replies

Help

Hi everyone, I am knew to this! I haven't been diagnosed yet just going through the tests, it's been 10months now and all blood tests etc have pointed to...

Hi everyone, I am knew to this! I haven't been diagnosed yet just going throug...

Samantha817

•11 years ago

3 Replies

Has anyone ever complained about a tribunal panel

Has anyone ever made a complaint about the treatment they received at a hearing for an appeal. I am still distressed about the hearing I had last week for DLA...

Has anyone ever made a complaint about the treatment they received at a hearing ...

lillyanne

•11 years ago

3 Replies

Has anybody that work(s/ed) had an Occupational Therapy assessment in the workplace?

If you have and it led to some adjustments in equipment or role, would you be willing to share your experience in our new publication please?

If you have and it led to some adjustments in equipment or role, would you be wi...

Paul_Howard

Partner•11 years ago

9 Replies

A question for those of you who work(ed)

I'd like to include a couple of quotes from people with lupus for a new publication. Would anybody be prepared to share their experiences of telling their...

I'd like to include a couple of quotes from people with lupus for a new publicat...

Paul_Howard

Partner•11 years ago

10 Replies

Argh! I need to offload!

I don't normally post about how I am feeling - I prefer to bottle it up and then use humour as a defence mechanism. Today, however, I just want to scream....

I don't normally post about how I am feeling - I prefer to bottle it up and then...

chrissiij

•11 years ago

8 Replies

Lupus Brain Fog..

Could you let me know what you experience/feel like when you get 'brain fog' with Lupus? I am having the most terrible few days again - only just finding out...

Could you let me know what you experience/feel like when you get 'brain fog' wit...

trueman

•11 years ago

27 Replies

salivary gland biopsy

Having a biopsy tomorrow and I have read and been told what they do but can I have some feedback on experiences. I have allergies to most antibiotics so wonder...

Having a biopsy tomorrow and I have read and been told what they do but can I ha...

Someonesmother

•11 years ago

4 Replies

Is this that lupus feeling?........

Hi All, You will know if you have read my previous posts that I am not yet diagnosed person. Low neutrophils, platelets, aches, pains, tendonitis, dry eyes,...

Hi All, You will know if you have read my previous posts that I am not yet di...

Hidden

•11 years ago

3 Replies

Can sunshine provoke a Lupus flare?

I more and more suspect I may have seronegative Lupus (do have APS and SS). Was out in the sun all day on Sunday, without sunscreen (duh), got very tired and...

I more and more suspect I may have seronegative Lupus (do have APS and SS). Was...

Coppernob

•11 years ago

5 Replies

Last moan...promise! :)

Wondering if others have to do the same ... I am late constantly for work these days, my boss knows I have lupus and is a lovely boss but he gets...

Wondering if others have to do the same ... I am late constantly for work these...

steadilymovingforward

•11 years ago

10 Replies

PNH

I just looked up Peripheral Nerve Hyperexcitability on a few sites as I never knew there was an offical term for twiching etc before I saw trueman's your...

I just looked up Peripheral Nerve Hyperexcitability on a few sites as I never kn...

steadilymovingforward

•11 years ago

9 Replies

painfull fingers

does anybody else have this problem. I always have a painful different finger. but for the past 2 weeks my ring finger right hand has been very painful no pain...

does anybody else have this problem. I always have a painful different finger. b...

kiwe

•11 years ago

3 Replies

Dry cough sore throat since starting methotrexate

Now been on it 8weeks and this dry cough with a sore throat and runny nose has been consistent I must say that I was ready for coming off it ,as I was getting...

Now been on it 8weeks and this dry cough with a sore throat and runny nose has ...

Voutton

•11 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2013

Am I going crazy

does anyone suffer with leg muscles that feel weak as though you've just climbed a mountain?

was feeling great and then....

May’s Guest Blog – Val Wilson (Secretary of North West Lupus Group)

Could Lupos medication help me?

Recovery time after gym?

Systemic lupus. HELP

Friday - a means to an end.

Pmt help!

Lupus SLE

Is it ok to use a progesterone cream for the relief of menopausal symptoms.

On planquenil and given quinoric buy my pharmacy " bouncing at the reply " from the woman behind the pharmacy after asking why.

LUPUS/M.E/CFS/POST VIRAL could they all be the same sneaky bugger

Just wanted to say...

Heartbroken.

My first day

Lupus or me going mad??

Help

Has anyone ever complained about a tribunal panel

Has anybody that work(s/ed) had an Occupational Therapy assessment in the workplace?

A question for those of you who work(ed)

Argh! I need to offload!

Lupus Brain Fog..

salivary gland biopsy

Is this that lupus feeling?........

Can sunshine provoke a Lupus flare?

Last moan...promise! :)

PNH

painfull fingers

Dry cough sore throat since starting methotrexate

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