Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,727 members • 28,087 posts

All Things LUPUS UK posts

Sort posts by:

Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?

So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body....

So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I hav...

Severancered9

•11 days ago

3 Replies

eye problems?

Have just had a Hydroxy eye check referral to my local hospital where I was told I have a significant change in my right eye due to fluid build up affecting...

Have just had a Hydroxy eye check referral to my local hospital where I was told...

Littleandperfect

•1 month ago

6 Replies

World-first discovery may enable an effective long-term lupus treatment 🍀

That's really good news lupis 🦋💜🐺🙂...

Naladog

•3 months ago

1 Reply

Want to take advantage of all our features? Just log in!

🧬UNC93B1 New genetic findings open up perspectives for future therapeutic approaches in Lupus

Hi lupis! 👋🏼 New study demonstrates a direct causal link between an overactive UNC93B1/TLR7 axis and lupus pathogenesis and indicates that blocking...

Hi lupis! 👋🏼 New study demonstrates a direct causal link between an overactive...

Naladog

•3 months ago

1 Reply

Vitamins for fatigue?

Another photo of the Whitwell area. On my good days I love to walk alone, with a friend or a group of friends. We go all over the Island, up the downs, along...

Another photo of the Whitwell area. On my good days I love to walk alone, with ...

IsleofWight1

•3 months ago

9 Replies

Just an introduction

Hi everyone! Hope y'll doing just fine. Let me introduce myself. You guys can call me Xechoo. I was diagnosed with Lupus 3months ago and am 25 years old. I...

Hi everyone! Hope y'll doing just fine. Let me introduce myself. You guys can c...

xechoo

•5 months ago

19 Replies

Adenomynosis treatment with CTD-SLE/Raynaud's & C4 deficiency

Hi Lupies and Debbie_kinsey , I have just been told by ultrasound that I have adenomynosis. I'm not surprised because of the extreme pain and heavy periods...

Hi Lupies and Debbie_kinsey , I have just been told by ultrasound that I have a...

Naladog

•5 months ago

Be the first to reply

New research about SLE

The immune system activation through XIST and TLR7 is female-specific, helping explain the observation that lupus is so much more common in women compared to...

The immune system activation through XIST and TLR7 is female-specific, helping e...

Naladog

•5 months ago

Be the first to reply

Flu and Covid vaccine

I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone...

I was diagnosed with lupus in March this year. I dont know if I should take the ...

kali9

•5 months ago

16 Replies

Interdisciplinary Research Could Lead to New Targeted Treatments for Rheumatoid Arthritis - No more guess and test 🙏

Good morning 🌞 📖👩‍🔬 https://news.cuanschutz.edu/medicine/research-could-lead-to-new-targeted-treatments-for-rheumatoid-arthritis #RheumatoidArthritis...

Good morning 🌞 📖👩‍🔬 https://news.cuanschutz.edu/medicine/research-could-lea...

Naladog

•6 months ago

Be the first to reply

Lupus and ECT teacher

I'm a 26 year old First year ECT and I'm really struggling with my mild lupus at the moment. I was thinking of leaving teaching after my ECT years are finished...

I'm a 26 year old First year ECT and I'm really struggling with my mild lupus at...

WellReadHead

•6 months ago

8 Replies

Rash on Feet

hello everyone, I recently just joined after discovering this. For the last few days I’ve been suffering burning on the top of my feet as well as swelling in...

hello everyone, I recently just joined after discovering this. For the last few ...

Hidden

•6 months ago

6 Replies

Lupus flare/chickenpox

I had swollen glands 2 weeks ago and white spots (tonsilitis). I got penicillin for it and tonsils got aided to pay better but then it started to get like...

I had swollen glands 2 weeks ago and white spots (tonsilitis). I got penicillin...

Shine54

•6 months ago

12 Replies

Paul Howard to step down as LUPUS UK Chief Executive

It is with sadness that I must announce I will be stepping down from my role as Chief Executive of LUPUS UK at the end of March 2024. I have been a...

It is with sadness that I must announce I will be stepping down from my role as ...

Paul_Howard

Partner•6 months ago

30 Replies

lupus

Hi, so I’ve been under investigation for months now. I haven’t felt well since this time last year, had a miscarriage, pneumonia, swelling on brain.. I see a...

Hi, so I’ve been under investigation for months now. I haven’t felt well since t...

Hidden

•6 months ago

2 Replies

Light sensitivity study

Hello all, I have only come across the subject of light sensitivity in connection with medical conditions such as lupus and migraines a few weeks ago and am...

Hello all, I have only come across the subject of light sensitivity in connecti...

hunkyd0ry

•7 months ago

10 Replies

Hello all!

I just wanted to pop in and say hi to everyone. 👋 I have been a member of Lupus uk since 1995 and have enjoyed the rollercoaster ride that is Lupus for...

I just wanted to pop in and say hi to everyone. 👋 I have been a member of Lup...

Linds70

•7 months ago

14 Replies

How to manage energy

I'm struggling to manage my energy, I gave up work three years ago as I was too unwell to continue. The rheumatologist suggested swimming, I did 20 mins on...

I'm struggling to manage my energy, I gave up work three years ago as I was too ...

DogsMakeLifeGood

•8 months ago

22 Replies

Does knitting count as exercise? 🤔

Hello everyone, This post contains more than one topic …. My Rheumy’s assumptions, exercise, fatigue, medication expectations + knitting! I...

Hello everyone, This post contains more than one topic …. My Rheumy’s assumpti...

Turquoise-1

•9 months ago

33 Replies

Does knitting count as exercise? 🤔

Hello everyone, This post contains more than one topic …. My Rheumy’s assumptions, exercise, fatigue, medication expectations + knitting! I...

Hello everyone, This post contains more than one topic …. My Rheumy’s assumpti...

Turquoise-1

•9 months ago

17 Replies

lupus

Dear guys, i have SLE which was diagnosed 2 months ago! How did I find out? Anemia, hair loss and swelling of the joints. Doctors gave me therapy plaquenil 2...

Dear guys, i have SLE which was diagnosed 2 months ago! How did I find out? Anem...

SpreadWing

•9 months ago

5 Replies

Corn or Wart

Hi, 2nd attempt at sending this but as you can see from the image I have something on my foot. And I can't get a straight answer on what it is. It's either a...

Hi, 2nd attempt at sending this but as you can see from the image I have somethi...

HantsMan

•10 months ago

12 Replies

photosensitivity study

Hi all, I am following a thread about light sensitivity in the SRUK (Scleroderma & Raynauds UK) forum with great interest and would like to learn more about...

Hi all, I am following a thread about light sensitivity in the SRUK (Scleroderm...

hunkyd0ry

•10 months ago

15 Replies

Advice for preparing for rheumatology appointment?

Hi everyone, I haven't posted in here in a while, but I finally have my rheumatology appointment on Tuesday. I'm currently trying to prepare everything to...

Hi everyone, I haven't posted in here in a while, but I finally have my rheumat...

Retsuko

•10 months ago

5 Replies

Vulnerable or not?

Hello I have not posted on here for years, but reaching out for a bit of virtual hand holding. I was diagnosed with Lupus 7 years ago, end of 2021- 2022 was...

Hello I have not posted on here for years, but reaching out for a bit of virtual...

Beau2016

•1 year ago

25 Replies

SPRING BOOSTER

if you log in to this it might make things clearer

AgedCrone

•1 year ago

Be the first to reply

Driving licence renewal medical conditions

I was just wondering if anyone had had any problems with their driving licence? I was diagnosed with peripheral neuropathy 3 years ago and dutifully informed...

I was just wondering if anyone had had any problems with their driving licence? ...

Occasion99

•1 year ago

4 Replies

Lupus and upper and lower and mid back pains.

Hi everyone, I was diagnosed with lupus 3 years ago and I had back pains (sciatica, so back pains is not new) before my diagnosis with lupus. But recently,...

Hi everyone, I was diagnosed with lupus 3 years ago and I had back pains (sciat...

Sunflowers_2020

•1 year ago

6 Replies

Potential new therapeutic target for inflammatory diseases such as lupus and sepsis 🍀🤞

Morning lupis! I hope you are doing very well. Scientists have made an important breakthrough in understanding what goes wrong in our bodies during the...

Morning lupis! I hope you are doing very well. Scientists have made an import...

Naladog

•1 year ago

2 Replies

Do these numbers mean anything to anyone?

I’ve had my blood fest results back and this time it has a test that wasn’t on previous ones. Serum C reactive protein level was 12.6mg. GFR 84ml. I...

I’ve had my blood fest results back and this time it has a test that wasn’t on p...

rareoldme

•1 year ago

23 Replies

Write a post or ask a question

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All Things LUPUS UK posts

Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?

eye problems?

World-first discovery may enable an effective long-term lupus treatment 🍀

🧬UNC93B1 New genetic findings open up perspectives for future therapeutic approaches in Lupus

Vitamins for fatigue?

Just an introduction

Adenomynosis treatment with CTD-SLE/Raynaud's & C4 deficiency

New research about SLE

Flu and Covid vaccine

Interdisciplinary Research Could Lead to New Targeted Treatments for Rheumatoid Arthritis - No more guess and test 🙏

Lupus and ECT teacher

Rash on Feet

Lupus flare/chickenpox

Paul Howard to step down as LUPUS UK Chief Executive

lupus

Light sensitivity study

Hello all!

How to manage energy

Does knitting count as exercise? 🤔

Does knitting count as exercise? 🤔

lupus

Corn or Wart

photosensitivity study

Advice for preparing for rheumatology appointment?

Vulnerable or not?

SPRING BOOSTER

Driving licence renewal medical conditions

Lupus and upper and lower and mid back pains.

Potential new therapeutic target for inflammatory diseases such as lupus and sepsis 🍀🤞

Do these numbers mean anything to anyone?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive