Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,725 members • 28,086 posts

All posts for January 2015

Lupus&pregnancy

Hi all, I got RA/SLE. At the moment I'm using methoraxate and hydroxychloroquine 200mg daily.i know I need to stop MTX to try for a baby and I can still keep...

Hi all, I got RA/SLE. At the moment I'm using methoraxate and hydroxychloroquine...

Hidden

•9 years ago

5 Replies

LDH and Potassium Serum - Correction

I was mistaken in my previous post - my LDH was 264, but the Potassium Serum was 5.5 - both flagged as high. In my research (which is not always a good idea),...

I was mistaken in my previous post - my LDH was 264, but the Potassium Serum was...

tennissenior

•9 years ago

10 Replies

Hi.here goes.been rumotoligist... Here's the letter.....help.please x

Undifferentiated connective tissue disease. Probable lupus.+/- antiphospholipid antibody syndrome....why me..my back.bones are gone..very painfully.I've...

Undifferentiated connective tissue disease. Probable lupus.+/- antiphospholipid ...

louiseamos

•9 years ago

13 Replies

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Get out of jail card

I have been through the same process. It would seem that Fibromyalgia is the default cause. Sorry must'nt be cynical

I have been through the same process. It would seem that Fibromyalgia is the def...

LesJames

•9 years ago

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Raspberry Ketone

Any comments ? I have picked up quite a bit of weight since starting Amitriptyline. Trying to lose weight I have started taking Raspberry Ketone caps. It...

Any comments ? I have picked up quite a bit of weight since starting Amitriptyli...

Taweet

•9 years ago

7 Replies

HIGH LDH AND POTASSIUM

Can anyone tell me what a high LDH (264) and a slightly high potassium (256) mean?? Am I in trouble? Numbers just came thru and it's Friday night here in the...

Can anyone tell me what a high LDH (264) and a slightly high potassium (256) mea...

tennissenior

•9 years ago

1 Reply

Fibromyalgia

Hi everyone well got letter through from reumatolgy he is now saying have fibromyalgia maybe that's why I am getting body tremors that's on top of every thing...

Hi everyone well got letter through from reumatolgy he is now saying have fibro...

Hodgson57

•9 years ago

7 Replies

Methotrexate

Just started methotrexate with my first dose don't know how I feel I think I feel sick and dizzy is this normal after only one dose

Just started methotrexate with my first dose don't know how I feel I think I fee...

diane46

•9 years ago

7 Replies

Knee pain

It's been a while since I was diagnosed with something to do with my legs and I can't remember what it's called, but my legs bend backwards when I stand up and...

It's been a while since I was diagnosed with something to do with my legs and I ...

Jessicaa19

•9 years ago

5 Replies

PIP resubmitted

Hi there, wondering if anyone has done this. Actually had my PIP assessment today, I'm so annoyed with myself. So tired all the time always feel like I'm on...

Hi there, wondering if anyone has done this. Actually had my PIP assessment toda...

Gail41

•9 years ago

2 Replies

January's Blog (Part 2) - Peter and Sandra's experiences of claiming benefits with lupus

The second part of this month's blog has been written by Peter* about the experiences of him and his wife Sandra* claiming benefits for her lupus. Thank you...

The second part of this month's blog has been written by Peter* about the experi...

Paul_Howard

Partner•9 years ago

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Why do people suffer more when they have a cold or other infection/virus?

I suspect this is a silly question and I should know the answer but I don't so I am consulting my learned friends ;-) Been fighting the cold for over a week...

I suspect this is a silly question and I should know the answer but I don't so I...

Chablis

•9 years ago

5 Replies

Osteoporosis and lup

Hi been diagnosed with lupad dont know anything about but i had a low impact fracture of the vertibrae and they are away to check bone density are osteoporosis...

Hi been diagnosed with lupad dont know anything about but i had a low impact fra...

MAIDMARIONMARION

•9 years ago

4 Replies

muscle cramps with leflunomide?

Hi my rheumy started me on Leflunomide in November along with my methotrexate. Ihave had muscle cramps in the past but these are making life really difficult.I...

Hi my rheumy started me on Leflunomide in November along with my methotrexate. I...

kate47

•9 years ago

7 Replies

IV zoledronic acid osteoporosis treatment anyone?

hello all. following on from my earlier questions/posts on this subject: today i attended the metabolic bone unit in our lupus & vasculitis rheumatology...

hello all. following on from my earlier questions/posts on this subject: today...

Barnclown

•9 years ago

9 Replies

Iv Flolan

Hi guys I am gong into hospital next week to have to have flolan. This will be done by IV and will have to have it every day for a week. This is another...

Hi guys I am gong into hospital next week to have to have flolan. This will be d...

dzagotskillz

•9 years ago

1 Reply

Confused

Im confused and new to lupus and my other conditions (just accepted them) ... is lupus once u have it you have got it for good .. or do you actually cure it...

Im confused and new to lupus and my other conditions (just accepted them) ... is...

janejoyce12

•9 years ago

8 Replies

Dizziness, irregular heart beat, pain in legs and thighs?

Hi all, do any of you suffer from random bouts of dizziness, light headedness, weakness and irregular/raid heart beat? And pain in legs when standing? My...

Hi all, do any of you suffer from random bouts of dizziness, light headedness, w...

kittyIM

•9 years ago

4 Replies

Health insurance

health insurance just quoted me £70.oo a month are they crazy...

avionne

•9 years ago

7 Replies

Is It Me Or Today's Society

Hey guys I just wanted to share with you guys that have me appointment for my first Rituximab Infusion next week. And the first thing I randomly thought was...

Hey guys I just wanted to share with you guys that have me appointment for my ...

wotshernameagain

•9 years ago

7 Replies

January's Blog (Part 1) - Kevin's experiences of claiming benefits with lupus

For January and February this year we are featuring stories from people with lupus on the topic of benefits. The first part of this month's blog has been...

For January and February this year we are featuring stories from people with lup...

Paul_Howard

Partner•9 years ago

5 Replies

Anyone in scotland pls

Hi all please myself and mum i contemplating moving out of london because the cost of living is too expensive. We are struggling to pay the rent. So we are...

Hi all please myself and mum i contemplating moving out of london because the c...

ijeasike

•9 years ago

15 Replies

Lupus rash on neck

I just wondered if anyone else had a Lupus rash on their neck? I didn't realise this was Lupus as it came on from being in the sun, or so I thought, then I...

I just wondered if anyone else had a Lupus rash on their neck? I didn't realise...

Iona467

•9 years ago

14 Replies

The radio programme for people living with chronic pain. Tune in to the brand new series!

Airing Pain is a digital radio programme which brings together people with chronic pain and top specialists to talk about the resources which can help and...

Airing Pain is a digital radio programme which brings together people with chron...

Hidden

•9 years ago

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Sore throat, nausea and headache

Just recently had a cold and now I have symptoms again of sore throat, nausea and headaches first one it was treated with antibiotics I have had a flu jab in...

Just recently had a cold and now I have symptoms again of sore throat, nausea an...

Danielle2419

•9 years ago

13 Replies

BuTrans

Hi there is anybody using BuTrans patches for pain relief ? In so much pain with lupus & fibromyalgia. I have trochanteric bursitis. My hips & legs are so...

Hi there is anybody using BuTrans patches for pain relief ? In so much pain with...

tremarel

•9 years ago

14 Replies

Clotting question

I have been taking a natto k enzyme (helps with sticky blood) since rheumy said my bloodwork even though I had a positive ANA, doesn't mean I have lupus and...

I have been taking a natto k enzyme (helps with sticky blood) since rheumy said ...

Natura

•9 years ago

65 Replies

Results of first blood test and confused!!

Good evening everyone, Received a copy of a letter, that was sent to my GP ,by the Rheumy I saw on 16/01/15. States that autoimmune screen negative and ESR...

Good evening everyone, Received a copy of a letter, that was sent to my GP ,by ...

Powerhouse

•9 years ago

3 Replies

Night Time

Morning Everyone, I've been going through a fairly 'quiet' period after having my skin graft and being off work for 5 weeks over the festive period and I...

Morning Everyone, I've been going through a fairly 'quiet' period after having ...

Debbiemay

•9 years ago

7 Replies

Wee update good things and a moan ha..

Well things 4 me still hasn't been the greatest still having my facial falls, an all GP wants to do is admit me but am on a neuro list and just waiting 2 get...

Well things 4 me still hasn't been the greatest still having my facial falls, an...

Ruth_lderry

•9 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2015

Lupus&pregnancy

LDH and Potassium Serum - Correction

Hi.here goes.been rumotoligist... Here's the letter.....help.please x

Get out of jail card

Raspberry Ketone

HIGH LDH AND POTASSIUM

Fibromyalgia

Methotrexate

Knee pain

PIP resubmitted

January's Blog (Part 2) - Peter and Sandra's experiences of claiming benefits with lupus

Why do people suffer more when they have a cold or other infection/virus?

Osteoporosis and lup

muscle cramps with leflunomide?

IV zoledronic acid osteoporosis treatment anyone?

Iv Flolan

Confused

Dizziness, irregular heart beat, pain in legs and thighs?

Health insurance

Is It Me Or Today's Society

January's Blog (Part 1) - Kevin's experiences of claiming benefits with lupus

Anyone in scotland pls

Lupus rash on neck

The radio programme for people living with chronic pain. Tune in to the brand new series!

Sore throat, nausea and headache

BuTrans

Clotting question

Results of first blood test and confused!!

Night Time

Wee update good things and a moan ha..

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