Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,690 members • 28,072 posts

All posts for November 2019

Shingles

Hi can anyone tell me if it's safe to be around ppl with shingles with lupus sle? I'm abit worried as my sis in law has shingles about 3 days into it didn't...

Hi can anyone tell me if it's safe to be around ppl with shingles with lupus sle...

Hidden

•4 years ago

23 Replies

Prostate Cancer

A reminder to men who are diagnosed with Prostate Cancer to get checked and make sure that they don’t have the aggressive type of Prostate Cancer. Many Drs may...

A reminder to men who are diagnosed with Prostate Cancer to get checked and make...

Melbourne-Girl

•4 years ago

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Achalasia/Helminths

Hi I have had lupus for around 7 years now. Just recently diagnosed with achalasia and awaiting treatment if any. Does anyone have any advise on this. Also...

Hi I have had lupus for around 7 years now. Just recently diagnosed with achalas...

Dancingmum

•4 years ago

5 Replies

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Influenza A

I can’t remember if I posted this on here re Influenza A (waiting for blood transfusion so excuse confusion if I have already posted this on Lupus. Having been...

I can’t remember if I posted this on here re Influenza A (waiting for blood tran...

Melbourne-Girl

•4 years ago

7 Replies

Just a bit of fun

Blue grumpily modelling another daft dog snood for his larger friend. This did give me the opportunity to practice an Italian cast on and Italian cast off,...

Blue grumpily modelling another daft dog snood for his larger friend. This did ...

Lupiknits

•4 years ago

16 Replies

Catheter fitted (update)

Hi folks, a wee update. Got my PD catheter fitted on Wednesday, god I feel like I've been punched in the stomach from Anthony Joshua. All went well and given...

Hi folks, a wee update. Got my PD catheter fitted on Wednesday, god I feel like ...

Hidden

•4 years ago

5 Replies

Gp or rheumatology nurses

Hi everyone I am having a lupus flare at the moment quite bad rash etc but I’m getting pins and needles in my hands and ringing in my ear I don’t know who see...

Hi everyone I am having a lupus flare at the moment quite bad rash etc but I’m g...

Sammymoat1986

•4 years ago

8 Replies

Mycophenolate

I’m stared today this drug ( mycophenolate) 500 mg 2 twice a day with regular blood tests . Anyone on here on this drug , I’m a bit reluctant to carry on after...

I’m stared today this drug ( mycophenolate) 500 mg 2 twice a day with regular bl...

Melaxx

•4 years ago

18 Replies

Uctd diagnosis taken away

Hi guys hope you’re well I went to see Dr **** in Tuesday He was very different to the last time I saw him I think he’s taken what his colleague said into...

Hi guys hope you’re well I went to see Dr **** in Tuesday He was very different ...

Buckley123

•4 years ago

71 Replies

Pip experience

Hello, Everyone keeps telling me you can apply for pip with lupus and fibromyalgia plus all the tablets I am taking. I am working 3 days a week but I know you...

Hello, Everyone keeps telling me you can apply for pip with lupus and fibromyalg...

blondie22

•4 years ago

9 Replies

If you take chemo drugs for lupus, what type & what dose? Has it helped? Do you have bad side effects?

I was told this is a treatment for moderate SLE. How do you know when this becomes necessary? Is it a daily treatment? Has it improved your health?

I was told this is a treatment for moderate SLE. How do you know when this becom...

Sopphie

•4 years ago

6 Replies

Shin pain

Hi All I just wanted to ask if anyone else suffers from pain in there shins? I’ve struggled with this over the last few days and it is making me less mobile...

Hi All I just wanted to ask if anyone else suffers from pain in there shins? I’v...

Button84

•4 years ago

6 Replies

More information/ and questions regarding holter monitor results and pre-eclampsia

Sorry to keep bothering everyone, I am finding out more information, and am not exactly sure where to go with it. Went to my GP and she went over results,...

Sorry to keep bothering everyone, I am finding out more information, and am not ...

JennaShi

•4 years ago

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Interesting

I saw my ⭐️ Nurse today who has been helping me with my bladder incontinence. She recognised my bowel incontinence and treatment that would help long before...

I saw my ⭐️ Nurse today who has been helping me with my bladder incontinence. Sh...

Lupiknits

•4 years ago

9 Replies

Shelagh Cheesman Memorial Lupus Information Day - 21st March 2020 - CANCELLED/POSTPONED

Due to the epidemic of the novel coronavirus (COVID-19), The Wellcome Trust Conference Centre has decided to temporarily close to reduce the spread of...

Due to the epidemic of the novel coronavirus (COVID-19), The Wellcome Trust Conf...

Paul_Howard

Partner•4 years ago

3 Replies

Just looking for advice

So this is my first post on this forum and Im not really sure what I'm doing here but I dont really know where to turn for advise, im not sure if I have lupus...

So this is my first post on this forum and Im not really sure what I'm doing her...

Johnjones4

•4 years ago

15 Replies

Lupus and hrt

I've been started on hrt - estrogen gel, and progesterone tablets - and just wanted to check it's ok to take because on the progesterone leaflet it mentions...

I've been started on hrt - estrogen gel, and progesterone tablets - and just wan...

soootired

•4 years ago

21 Replies

Help trying to find another painkiller besides Percocet

Good morning UK, Since I have been on this site last I have, in addition to Lupus, Fibromyalgia, Charcot Marie Tooth (a type of Muscular Dystrophy) Lupus Fog,...

Good morning UK, Since I have been on this site last I have, in addition to Lupu...

Brad2613

•4 years ago

3 Replies

Dialysis

So this time tomorrow morning I'll be checking into hospital to get my catheter fitted so I can start dialysis in 6 weeks time. To say I'm bricking it is an...

So this time tomorrow morning I'll be checking into hospital to get my catheter ...

Hidden

•4 years ago

7 Replies

Positive ANA test.

Hi all. My first post. I recently tested positive for Lupus. I have an appointment to see Rheumatologist in January. Is there any advice that anyone can give...

Hi all. My first post. I recently tested positive for Lupus. I have an appointme...

Mannequin18

•4 years ago

10 Replies

What should I do 🙄

Recently diagnosed with lupus by GP who has referred me to rheumatologist but asked which hospital I would like to go to. I'm confused what to say and which...

Recently diagnosed with lupus by GP who has referred me to rheumatologist but a...

Byjingo

•4 years ago

9 Replies

Left Rheumatologist appointment in floods of tears! Support needed :(

Hi there, in December last year my Dermatologist diagnosed me with urticarial vasculitis and clinical subacute cutaneous lupus and I started on...

Hi there, in December last year my Dermatologist diagnosed me with urticarial va...

Apple86

•4 years ago

24 Replies

Help and Support Available

Morning Everyone, I have recently been diagnosed with SLE and the specialist has started me on Hydroxychloroquine, since I had my appointment I have had to...

Morning Everyone, I have recently been diagnosed with SLE and the specialist ha...

Leenie0811

•4 years ago

10 Replies

Lupus and Nursing

Hey all, anyone here a nurse on Imuran ( immunosuppressant ) and working? How do you cope / manage with no immune system and the fact you are with infectious...

Hey all, anyone here a nurse on Imuran ( immunosuppressant ) and working? How do...

Hannalow

•4 years ago

8 Replies

Visible pulse in neck

Hi all, This is a bit of a random one and probably has nothing to do with my lupus, but thought I’d check! I have noticed recently that every now and again...

Hi all, This is a bit of a random one and probably has nothing to do with my lu...

Becky1995

•4 years ago

10 Replies

Why would a different hospital trust want access to my records?

My normal hospital trust has an online service that tells you when appointments are changed or notes added. Things like that... Today I’ve had an email to say...

My normal hospital trust has an online service that tells you when appointments ...

DaftCat

•4 years ago

16 Replies

Is Formaldehyde causing problems?

https://annals.org/aim/article-abstract/707181/membranous-nephropathy-formaldehyde-exposure Try removing from your life and see if there’s an improvement?...

https://annals.org/aim/article-abstract/707181/membranous-nephropathy-formaldehy...

Kevin53

•4 years ago

7 Replies

Results from my bronchoscopy - any ideas?

Hey guys, Just a little update, I had my Bronchoscopy done over a week ago and got a call from the hospital Friday to ask me to go in Monday afternoon...

Hey guys, Just a little update, I had my Bronchoscopy done over a week ago a...

Staceylouise90

•4 years ago

2 Replies

Low Vitamin D and Lupus

So today I get a letter from Rheumatologist say that I have low Vitamin D Levels, no other detail but go to your GP and get a supplement. I'm still waiting...

So today I get a letter from Rheumatologist say that I have low Vitamin D Level...

ScottishGirlGla

•4 years ago

50 Replies

Working or Not

I was wondering if anyone had to leave their career behind? I had no choice, I had to retire because I couldn't remember what people said or concentrate on...

I was wondering if anyone had to leave their career behind? I had no choice, I h...

Olderkitten

•4 years ago

20 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2019

Shingles

Prostate Cancer

Achalasia/Helminths

Influenza A

Just a bit of fun

Catheter fitted (update)

Gp or rheumatology nurses

Mycophenolate

Uctd diagnosis taken away

Pip experience

If you take chemo drugs for lupus, what type & what dose? Has it helped? Do you have bad side effects?

Shin pain

More information/ and questions regarding holter monitor results and pre-eclampsia

Interesting

Shelagh Cheesman Memorial Lupus Information Day - 21st March 2020 - CANCELLED/POSTPONED

Just looking for advice

Lupus and hrt

Help trying to find another painkiller besides Percocet

Dialysis

Positive ANA test.

What should I do 🙄

Left Rheumatologist appointment in floods of tears! Support needed :(

Help and Support Available

Lupus and Nursing

Visible pulse in neck

Why would a different hospital trust want access to my records?

Is Formaldehyde causing problems?

Results from my bronchoscopy - any ideas?

Low Vitamin D and Lupus

Working or Not

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