Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,713 members • 28,080 posts

All posts for September 2014

About to start Etanercept (Enbrel) injections - any helpful tips?

I am about to start Etanercept injections (also taking MTX hydroxychloroquine, predisolone 10mg, tramadol etc) for RA/lupus overlap. I was wondering if anyone...

I am about to start Etanercept injections (also taking MTX hydroxychloroquine, p...

loulou74

•10 years ago

4 Replies

Rheumatologist and Neurologist?

i was referred to both when I was first Ill, the Neurogist thought I had MS but after 2 x MRIs's I was told the Rheumatolgist would sort me out! I get 'Nerve...

i was referred to both when I was first Ill, the Neurogist thought I had MS but ...

Swizzle14

•10 years ago

17 Replies

Methotrexate

I have just had an ultrasound as I have been having appetite problem's with pain.I have been on methotrexate for about a year now(if not longer)1x17.5...

I have just had an ultrasound as I have been having appetite problem's with pain...

Binkey

•10 years ago

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Tiredness and racing heart

Hi all I was wondering if anyone else suffers from mad tiredness not just a wee bit tired but mind numbing tiredness which floors your whole system to the...

Hi all I was wondering if anyone else suffers from mad tiredness not just a wee ...

eejit

•10 years ago

10 Replies

Sex

Just looking to know if us people with lupus ever get our sex life or drive back again now I know that when in pain it's the last thing on mind but I'm 4years...

Just looking to know if us people with lupus ever get our sex life or drive back...

Limerick5

•10 years ago

11 Replies

Very Frustrated

Hello, I was having issues with swollen lymph node in groin area. Surgeon removed it everything tested ok. Now I have rash again on upper thighs. I'm still...

Hello, I was having issues with swollen lymph node in groin area. Surgeon remove...

Sally79

•10 years ago

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Fed up of pain

Sorry to moan about something so small but my wrist is killing me. The nobbly bone between my thumb and wrist. Not done anything to it but the pain is...

Sorry to moan about something so small but my wrist is killing me. The nobbly ...

chandlermandy

•10 years ago

2 Replies

Malabsorption and medication

Hi everyone. I was diagnosed with Lupus last Tuesday. I was given some information at Dermatology but was in shock really to learn that I had an incurable...

Hi everyone. I was diagnosed with Lupus last Tuesday. I was given some informati...

Gail41

•10 years ago

4 Replies

Bad weekend

Hi folks .bad weekend missed my dermatology appointment work being arkward they dont think lupus is well important if u know what i mean .missed a week of my...

Hi folks .bad weekend missed my dermatology appointment work being arkward they ...

barbdockeray

•10 years ago

1 Reply

GP Appointment

Just an update and a moan! I had a GP appointment to find out the results of the latest batch of blood tests because of the vasculitis on Friday. There are...

Just an update and a moan! I had a GP appointment to find out the results of the...

lorac1

•10 years ago

11 Replies

Chest tissue flare....again

Forgive the moan: Haven't been around much. Been rather crashingly awful to the point a friend did a fundraiser for me to get some money together to get...

Forgive the moan: Haven't been around much. Been rather crashingly awful to the...

Silvergilt

•10 years ago

4 Replies

Itching only at night

I couldn't seem to figure out Why I am itching at night but seeing guys post have helped me. Thanks

I couldn't seem to figure out Why I am itching at night but seeing guys post hav...

randa_lupie

•10 years ago

3 Replies

Newby

Hi I have recently just found out I have connective tissue disease/ lupus , which I have never heard of, I am finding it very hard to manage the pain, and my...

Hi I have recently just found out I have connective tissue disease/ lupus , whic...

cazza42

•10 years ago

10 Replies

Rheumie appointment today, waste of time!?

45 mins late but expected that. Was in and out in 8 mins! New consultant and not seen a consultant for over 12 months due to seeing nurse. Asked me a few...

45 mins late but expected that. Was in and out in 8 mins! New consultant and not...

Swizzle14

•10 years ago

5 Replies

Good news at last.

Have been awarded pip at the higher rate until 2017 then they will review. What a weight of me and my hubby shoulders, we have been struggling for so long to...

Have been awarded pip at the higher rate until 2017 then they will review. What ...

KarenC

•10 years ago

3 Replies

Should I buy house with stairs?

Help! Will I ever be able to manage stairs or should I be living in ground floor flat? I'm being offered a house with stairs and need to snap it up or it'll be...

Help! Will I ever be able to manage stairs or should I be living in ground floor...

Roromatic

•10 years ago

11 Replies

So stressed out, advice needed please.

Rhumy has just added azathioprene to the mix of meds, and im having to have fortnightly bloods on a tuesday. I can work any day of the week except sundays but...

Rhumy has just added azathioprene to the mix of meds, and im having to have fort...

willowwag

•10 years ago

8 Replies

Sulfasalazine drug - thoughts??

Hey. Is any body taking Sulfasalzine tablets at all? Im due to start them next week, but want to know what other people think of these tablets? I have lupus...

Hey. Is any body taking Sulfasalzine tablets at all? Im due to start them next w...

Dandy_14

•10 years ago

3 Replies

Good NHS Rheumatology

Hi all, I am from East Yorkshire and am looking for a new NHS rheumatologist. I am prepared to travel. I am currently considering Dr Paul Emery at Leeds or...

Hi all, I am from East Yorkshire and am looking for a new NHS rheumatologist. I...

Jessie_2014

•10 years ago

23 Replies

September's Blog (Part 1) - Emily's experience of pregnancy with lupus

The topic of our blog for September and October is lupus and pregnancy. For the first part of this month's blog Emily has written about her pregnancy. Thank...

The topic of our blog for September and October is lupus and pregnancy. For the ...

Paul_Howard

Partner•10 years ago

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Cortisol causing havoc……… and I don't seem to be able to see my consultant, and my GP won't treat me as she wants me to see the consultant!

Hi, I am looking for some help from people who no doubt have suffered from low cortisol levels at some point. To keep my story short (you can read my...

Hi, I am looking for some help from people who no doubt have suffered from low c...

Chablis

•10 years ago

5 Replies

Looking after my hair

Hi everyone. I've just been diagnosed 2 days ago with Discoid Lupus. I've been given some information of my consultant which says I could loose my hair and...

Hi everyone. I've just been diagnosed 2 days ago with Discoid Lupus. I've been g...

Gail41

•10 years ago

18 Replies

Lupus and Meniere Disease

Hello everyone! I just happened to stumble upon your forum today and really would appreciate any suggestions, advice and support that can be given. Been...

Hello everyone! I just happened to stumble upon your forum today and really woul...

denden

•10 years ago

10 Replies

Lupus and travel sickness - connected?

I have been on a school trip today (I am a Teaching Assistant) and we travelled just 10-15 minutes on a coach each way. I suffered terrible travel sickness as...

I have been on a school trip today (I am a Teaching Assistant) and we travelled ...

Wendy39

•10 years ago

5 Replies

CNS Lupus symptoms

It is 18 months since diagnosis and I am now on 3g Mycophenalate and 10mg Prednisolone. Whilst the Lupus type symptoms are showing signs of retreat the CNS...

It is 18 months since diagnosis and I am now on 3g Mycophenalate and 10mg Predni...

DaleDiva

•10 years ago

6 Replies

Cyclosporine - which brand?

Hi all, I've just come back from my rheumatologist and he's changing my immunosuppressant from mycophenolate to cyclosporine (because the disease has changed...

Hi all, I've just come back from my rheumatologist and he's changing my immunosu...

Purpletop

•10 years ago

3 Replies

ANCA negative lupus

I have had an abnormal lupus anticoag Had repeat last week. All other results neg ( ANA, ANCA, DsDNA etc etc) Anyone any info on ANCA negative lupus.

I have had an abnormal lupus anticoag Had repeat last week. All other results n...

Howsaboutit

•10 years ago

11 Replies

Changing meds epic fail..

Hi All. I usually try and post positive messages but am having a rough run. I have SLE and hypothyroidism and hypertension. I have been having a flare since...

Hi All. I usually try and post positive messages but am having a rough run. I ha...

lupie46

•10 years ago

3 Replies

Bruised

Hi, I take Plaquenil, predisolone, and azathioprine--over 4 months ago fell and got bruises on my legs. Still now the bruises are on my legs and don't think...

Hi, I take Plaquenil, predisolone, and azathioprine--over 4 months ago fell and ...

TonyaM868

•10 years ago

7 Replies

Coincidence?

Had a fairly stressful day yesterday, my boss and I had a conversation in which he told me he thinks I'm a hyperchondriac and That in addicted to pain killers,...

Had a fairly stressful day yesterday, my boss and I had a conversation in which ...

Debbiemay

•10 years ago

14 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2014

About to start Etanercept (Enbrel) injections - any helpful tips?

Rheumatologist and Neurologist?

Methotrexate

Tiredness and racing heart

Sex

Very Frustrated

Fed up of pain

Malabsorption and medication

Bad weekend

GP Appointment

Chest tissue flare....again

Itching only at night

Newby

Rheumie appointment today, waste of time!?

Good news at last.

Should I buy house with stairs?

So stressed out, advice needed please.

Sulfasalazine drug - thoughts??

Good NHS Rheumatology

September's Blog (Part 1) - Emily's experience of pregnancy with lupus

Cortisol causing havoc……… and I don't seem to be able to see my consultant, and my GP won't treat me as she wants me to see the consultant!

Looking after my hair

Lupus and Meniere Disease

Lupus and travel sickness - connected?

CNS Lupus symptoms

Cyclosporine - which brand?

ANCA negative lupus

Changing meds epic fail..

Bruised

Coincidence?

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