Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,688 members • 28,071 posts

All posts for April 2019

Finger Nail Changes

Can anybody tell me if my finger nails look the correct colour ? They are all the same with a white patch in the middle I have ridges going down them and some...

Can anybody tell me if my finger nails look the correct colour ? They are all th...

Aleigh44

•5 years ago

10 Replies

Finally good news and sending all good vibes!

I finally have got a new job! Full time and office so no more being worn out after running around :) I hope everyone else gets to hear some good news too :)

I finally have got a new job! Full time and office so no more being worn out aft...

Penguintaz

•5 years ago

13 Replies

Is Hydroxychloroquine a good idea?

Hello everyone, I have recently been diagnosed with APS and in process of lupus being investigated. My consultant has asked me to consider taker...

Hello everyone, I have recently been diagnosed with APS and in process of lupus ...

Hidden

•5 years ago

14 Replies

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A & E visit

Hey all, So not had the best of weeks. On Monday night I was really hot like boiling whilst trying to sleep. I had the same on Tuesday and also noticed some...

Hey all, So not had the best of weeks. On Monday night I was really hot like b...

LouLamb

•5 years ago

19 Replies

New here, Leg pain

Hi, my first post here, I have Sjogren's, Raynaud's syndrome and now possibly Lupus. I'm on Hydroxy to suppress my immune system and have the butterfly rash...

Hi, my first post here, I have Sjogren's, Raynaud's syndrome and now possibly Lu...

RiabaRosie

•5 years ago

3 Replies

Hyperreflexia anyone else

Hyperreflexia confirmed today anyone heard or have this xx

Buckley123

•5 years ago

4 Replies

Second opinion,

I'm trying to keep everything as short as I can. I had a tonsilectomy 2 yrs ago since then my health has declined : I've lost 30 kg's, still losing atm, I...

I'm trying to keep everything as short as I can. I had a tonsilectomy 2 yrs ago...

Theodora23

•5 years ago

5 Replies

Any tips??

Hi I am just about to request my hospital records. Any tips? I want all of it from the day I was born to my last appointment last week is this possible and do...

Hi I am just about to request my hospital records. Any tips? I want all of it fr...

whiteyswifey

•5 years ago

4 Replies

Hi guys second opinion neuro today

Hi all I’ve been to the royal three hospital today and finally fingers crossed I have found a neurologist who’s taking it seriously. He wants me to transfer...

Hi all I’ve been to the royal three hospital today and finally fingers crossed I...

Buckley123

•5 years ago

19 Replies

Younger doctors seem to be more in the loop of the affects of autoimmune. Would you agree? Bladder problems can be an issue for some

If you scan over all my Hospital letters they all make reference to my bladder problems which has not been addressed and causes me a lot of life limitations....

If you scan over all my Hospital letters they all make reference to my bladder p...

Lisalou19

•5 years ago

46 Replies

London Marathon 2019

I just wanted to say a personal thank you to everyone who ran in the London Marathon, helping raise funds and awareness for Lupus, and the charity Lupus UK in...

I just wanted to say a personal thank you to everyone who ran in the London Mara...

fabwheelie

•5 years ago

1 Reply

New symptoms

Some advice please I have not had bad SLE symptoms for a few years now, and not on medication. I'm just handling my pain by rest and sometimes pain killers. On...

Some advice please I have not had bad SLE symptoms for a few years now, and not ...

Mocking

•5 years ago

4 Replies

Pigmentation and Plaquenil

Hi, its been 1.6 yrs im on plaquenil. I have started to develop pigmentation around my neck. I want to know whether this will go away after i stop taking the...

Hi, its been 1.6 yrs im on plaquenil. I have started to develop pigmentation aro...

Appy0322

•5 years ago

1 Reply

Jaccoud Arthropathy and SLE

Has anyone on the forum been diagnosed with Jaccoud Arthropathy? I'd never heard of the condition until I began researching the changes to the joints in my...

Has anyone on the forum been diagnosed with Jaccoud Arthropathy? I'd never hear...

KeepingUpBeat

•5 years ago

Be the first to reply

My foot aid. Cannot believe how common this foot pain is. I was starting to believe it’s because I’m obese until this recent flare.

Just thought I would share this photo of the foot massager I use. It works better when wearing socks. It does massage quite deep, depending how much pressure...

Just thought I would share this photo of the foot massager I use. It works bett...

Lisalou19

•5 years ago

18 Replies

Feel free to ignore me

I’m sorry for this. I know theres a lot of people far worse off than i am, but i just can’t stop myself. Im tired, i am so so sick and so tired of pretending,...

I’m sorry for this. I know theres a lot of people far worse off than i am, but i...

Lili18

•5 years ago

63 Replies

RE: Possible Breast Implant associated CTD -- Surgeon appt already!

2 days after ringing the breast care centre to ask for a consultation with my breast surgeon in order to have the questionable implants removed (which -- if...

2 days after ringing the breast care centre to ask for a consultation with my br...

panda2

•5 years ago

9 Replies

Plaquinil and pain.

When the Plaquinil starts working, how much pain relief can one expect? Does it relieve stomach pain?

When the Plaquinil starts working, how much pain relief can one expect? Does it ...

Aleish

•5 years ago

5 Replies

No medication again! GP surgery and Chemist playing games with my health! Half has not been told!

I No medication again! GP surgery and Chemist playing games with my health! 14 days running. Why? Who is the insane ones here? Them or me? Why is this...

I No medication again! GP surgery and Chemist playing games with my health! 14...

denden

•5 years ago

1 Reply

Has H.U. been hacked?

I have about 20 messages this morning from HU trying to sell me things. Anyone else got this?

I have about 20 messages this morning from HU trying to sell me things. Anyone e...

suzannah16

•5 years ago

15 Replies

ESA assessment feeling anxious

Hi My esa assessment is on Saturday morning & I'm feeling anxious, worried. I had thought that I wasn't going to need 1 as the letter I had received said I was...

Hi My esa assessment is on Saturday morning & I'm feeling anxious, worried. I ha...

Cal66

•5 years ago

6 Replies

Neck pain / weakness tiredness

Please help Anyone else get stiff weak ish neck and a odd swallow im so uncomfortable xxx

Please help Anyone else get stiff weak ish neck and a odd swallow im so uncomfo...

Buckley123

•5 years ago

2 Replies

Dealing with Lupus

Hello, I’m new here. I’ve joined as I feel I’m not coping well with lupus and my symptoms. Also I don’t feel my doctors are really doing much for me or...

Hello, I’m new here. I’ve joined as I feel I’m not coping well with lupus and my...

Ashleigh12992

•5 years ago

10 Replies

Newbie looking for help

Hi everyone, I’ve been back and forward from my doctors for the last year having various blood work done but after today’s consultation I thought I would post...

Hi everyone, I’ve been back and forward from my doctors for the last year havin...

Leenie0811

•5 years ago

17 Replies

Medication and gastroparesis

Just a quick one. As some of you are aware, I have gastroparesis at the moment and have eaten next to nothing for the past 6 days. There is movement according...

Just a quick one. As some of you are aware, I have gastroparesis at the moment ...

Georgie-girl

•5 years ago

21 Replies

Jaw and teeth pain

I have UCTD and have been struggling with extreme tooth/jaw/face pain on the right hand side of my face for weeks now. I have had a root canal filling on one...

I have UCTD and have been struggling with extreme tooth/jaw/face pain on the rig...

paula-moo

•5 years ago

31 Replies

Keep getting this rash

Any idea? I’m negative to lupus

Clairesager

•5 years ago

15 Replies

Return to work

I've been signed off for the last 3 weeks, and this week I already had booked off as holiday, so in total I will have been off for a month. I'm due back on...

I've been signed off for the last 3 weeks, and this week I already had booked of...

Bubble89

•5 years ago

3 Replies

My little symptom diary!!!!! I feel horrendous . This is no way to live 😣

Current situation: I post here as a useful reminder tool, sorry if I bombard you with my rubbish Burning red lumpy skin rash on face , red rash on chest....

Current situation: I post here as a useful reminder tool, sorry if I bombard you...

Lisalou19

•5 years ago

22 Replies

Folate and iron deficiency

Anyone know about links to folate and iron deficiency and taking methotrexate I was told should have mtx injections not tablets

Anyone know about links to folate and iron deficiency and taking methotrexate I...

louisea11

•5 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2019

Finger Nail Changes

Finally good news and sending all good vibes!

Is Hydroxychloroquine a good idea?

A & E visit

New here, Leg pain

Hyperreflexia anyone else

Second opinion,

Any tips??

Hi guys second opinion neuro today

Younger doctors seem to be more in the loop of the affects of autoimmune. Would you agree? Bladder problems can be an issue for some

London Marathon 2019

New symptoms

Pigmentation and Plaquenil

Jaccoud Arthropathy and SLE

My foot aid. Cannot believe how common this foot pain is. I was starting to believe it’s because I’m obese until this recent flare.

Feel free to ignore me

RE: Possible Breast Implant associated CTD -- Surgeon appt already!

Plaquinil and pain.

No medication again! GP surgery and Chemist playing games with my health! Half has not been told!

Has H.U. been hacked?

ESA assessment feeling anxious

Neck pain / weakness tiredness

Dealing with Lupus

Newbie looking for help

Medication and gastroparesis

Jaw and teeth pain

Keep getting this rash

Return to work

My little symptom diary!!!!! I feel horrendous . This is no way to live 😣

Folate and iron deficiency

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