Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,690 members • 28,072 posts

All posts for July 2019

Accept & Adapt. The boy who paints using his mouth after being paralysed!!! Inspiration 😊

https://henryfraserart.com/about/ I hope the link works. My boss buys this Young mans art and in the meeting room at work is a print “ACCEPT & ADAPT”. I...

https://henryfraserart.com/about/ I hope the link works. My boss buys this You...

Lisalou19

•5 years ago

6 Replies

Plasmaquine out of stock in SA

Good Evening All, I've recently been for a check up with my Rhuemy and was advised plasmaquine is no longer in stock in South Africa, along with its generic....

Good Evening All, I've recently been for a check up with my Rhuemy and was advis...

Blessings101

•5 years ago

2 Replies

Diagnosis update for you all nearly a year on

Hi guys, so I promised I would update my journey here with how I got on after needing a second opinion and attending The Kellgren Centre at Manchester. Well...

Hi guys, so I promised I would update my journey here with how I got on after ne...

Littlemisssunshine87

•5 years ago

63 Replies

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At what point do you need to go to hospital?

Hello everyone, I have gone to A&E a few times when my pain levels in my back and stomach have gotten unbearable. The response has been very similar each...

Hello everyone, I have gone to A&E a few times when my pain levels in my back an...

Crazy_Cat_Woman

•5 years ago

17 Replies

My mum missed so much

In other news my brother is doing a skydive in memory of our mum for the ms charity ❤️ proud of him ❤️

In other news my brother is doing a skydive in memory of our mum for the ms char...

Buckley123

•5 years ago

10 Replies

👋 hello

Hi I’m Joanne and I joined due to just getting a lupus diagnosis 👎 reading that other people are going through similar and worse than myself made me feel less...

Hi I’m Joanne and I joined due to just getting a lupus diagnosis 👎 reading that...

Jj81

•5 years ago

7 Replies

Cancer undiagnosed thanks to GP

Some of you may remember my posts about having kidney problems that my GP and rheumatologist states were nothing to do with Lupus and despite emergency visits...

Some of you may remember my posts about having kidney problems that my GP and rh...

Iona467

•5 years ago

20 Replies

Diagnosis

Is it possible to have a positive Ds-Dna with lots of symptoms and all other bloods come back negative and still have Lupus???? Sorry if I am going round in...

Is it possible to have a positive Ds-Dna with lots of symptoms and all other blo...

Cyprusgal

•5 years ago

15 Replies

Short term memory

Is anyone else struggling with short term memory? Week 8 on myfenax/cellcept..exhaustion and short term memory a struggle- really impacting my work..its quite...

Is anyone else struggling with short term memory? Week 8 on myfenax/cellcept..ex...

Hidden

•5 years ago

1 Reply

How do you confirm a diagnosis

Hi guys as a lot of you know my bloods are all negative but I do have some organ involvement (brain) and lymph nodes go up and down like a yo-yo. My question...

Hi guys as a lot of you know my bloods are all negative but I do have some organ...

Buckley123

•5 years ago

50 Replies

Searing pain one side of body

Hey, I have recently been diagnosed with Uctd with a close eye on lupus. I also have past diagnosis's of crohns (which is currently being checked is correct)...

Hey, I have recently been diagnosed with Uctd with a close eye on lupus. I also...

cbear28

•5 years ago

3 Replies

Hair Loss with SLE ?

Does anyone have hair loss due when on Hydrochloroquine to treat SLE ?

GodsGlory

•5 years ago

5 Replies

Lupus and dating-I despair!

Having trouble finding someone who doesn't see an issue with having lupus. What can I do, are there any dating sites for sufferers? Help me please. X

Having trouble finding someone who doesn't see an issue with having lupus. What ...

Comeonpeeps

•5 years ago

14 Replies

Lidocaine infusion for chronic pain

Hi Does anyone know of an NHS facility that DEFINITELY offers lidocaine infusions for chronic pain? They were recommended by a private consultant, who I saw...

Hi Does anyone know of an NHS facility that DEFINITELY offers lidocaine infusion...

JRyder

•5 years ago

13 Replies

Test results

Does anyone know what the rules, ie time frames, are on receiving test results? I had to have a cardiogram and have a heart monitor on me for 5 days. Over 2...

Does anyone know what the rules, ie time frames, are on receiving test results? ...

Hollydebs

•5 years ago

6 Replies

Chronic pain and Lupus.

I have decided to learn how to swim finally. This is something I have been planning to do for a long time. Since, I have been diagnosed with Lupus; I have...

I have decided to learn how to swim finally. This is something I have been plan...

SLE-Warrior

•5 years ago

2 Replies

Getting on with it..

Hi All Haven’t posted for a while as I’ve basically just been getting on dealing with the new me. I’ve readjusted, stopped looking for diagnosis, given up on...

Hi All Haven’t posted for a while as I’ve basically just been getting on dealing...

MsAndyIvy

•5 years ago

8 Replies

Running with lupus

Hi All How have you all been. I have found this heat a struggle and doing my best to manage it. I wondered if anyone who has lupus still runs. I used to run...

Hi All How have you all been. I have found this heat a struggle and doing my be...

Sallmell

•5 years ago

18 Replies

Does anyone know anything about ANCA-C BLOOD TEST

Hi having more bloods run to rule out other autoimmune disease and ANCA-C Blood test come back negative at 1.80 titer it says positive is over 1.80 can anyone...

Hi having more bloods run to rule out other autoimmune disease and ANCA-C Blood ...

Cyprusgal

•5 years ago

16 Replies

Lupus Rash?!

Has anyone experienced this rash with Lupus?! All over body not just my legs. I’ve had larger rashes that almost mimic burn marks but recently have been...

Has anyone experienced this rash with Lupus?! All over body not just my legs. I’...

Skye916

•5 years ago

7 Replies

Discoid lupus advice needed

Hi. I need some advice. My partner was diagnosed with discoid lupus 6 years ago. His sister has systemic lupus for 15 years and hers it managed by anti malaria...

Hi. I need some advice. My partner was diagnosed with discoid lupus 6 years ago....

Monkeypants

•5 years ago

3 Replies

Amylase levels?

This is a bit of a random one, but I was wondering if anyone could give me any pointers? Rheumatology requested that I get some bloods done, and one of the...

This is a bit of a random one, but I was wondering if anyone could give me any p...

November90

•5 years ago

12 Replies

Fluoxetine

I’m back on fluoxetine 20 mg for a week and I feel very restless, I can’t relax , I haven’t had a good night of deep sleep , the Dr said I should give it a bit...

I’m back on fluoxetine 20 mg for a week and I feel very restless, I can’t relax ...

Melaxx

•5 years ago

5 Replies

Any suggestions for good Rheumys

I have finally given up the ghost with my current Rheumy Dr. ***** at Salford Royal. I went there after my brilliant doctor at North Manchester, Dr. Pattrick...

I have finally given up the ghost with my current Rheumy Dr. ***** at Salford Ro...

Blueeyes57

•5 years ago

4 Replies

Is it this really Lupus?

Hello All , I have just been diagnosed with Lupus. My ANA and Anti Ro was also +. Anti DsDNA was neg. Rhemo factor also neg. I dont have any outward signs...

Hello All , I have just been diagnosed with Lupus. My ANA and Anti Ro was als...

GodsGlory

•5 years ago

9 Replies

Pin prick blood spots on insides of lower foot from heel to toe. Having a run of skin issues of late 🤨

These are super duper tiny. At first I actually thought I had black heads in my feet 🤮 But they are blood spots. Deffo a first for me this one. My skin is...

These are super duper tiny. At first I actually thought I had black heads in my...

Lisalou19

•5 years ago

30 Replies

Despairing after a new Rheumatology Visit

Hi everyone. I apologise in advance if this post is full of self pity but I feel defeated, depressed and very anxious. In March I saw a new Rheumatologist. I...

Hi everyone. I apologise in advance if this post is full of self pity but I feel...

CecilyParsley

•5 years ago

76 Replies

Positive ANA test result today now waiting to see Dr

Hi, I’m new here and after a little bit of advice. I’m 38 and had a miscarriage at 7 weeks back in April. After the initial grief I read that there can be a...

Hi, I’m new here and after a little bit of advice. I’m 38 and had a miscarriage ...

Ilovechips81

•5 years ago

9 Replies

Mild shifting joint pain

Im 26yr old male... I have sun burn in my neck portion alone for past 7 yrs which goes and comes.... At first it was occured due to my job where i have to...

Im 26yr old male... I have sun burn in my neck portion alone for past 7 yrs whic...

Whoknowswho

•5 years ago

1 Reply

Cardiff Lupus Group Meeting - Saturday 24th August 2019

Hi everyone, The second meeting of the new Cardiff Lupus Support Group will take place on Saturday 24th August 2019 from 1.30pm – 4pm...

Hi everyone, The second meeting of the new Cardiff Lupus Support Group will take...

Paul_Howard

Partner•5 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2019

Accept & Adapt. The boy who paints using his mouth after being paralysed!!! Inspiration 😊

Plasmaquine out of stock in SA

Diagnosis update for you all nearly a year on

At what point do you need to go to hospital?

My mum missed so much

👋 hello

Cancer undiagnosed thanks to GP

Diagnosis

Short term memory

How do you confirm a diagnosis

Searing pain one side of body

Hair Loss with SLE ?

Lupus and dating-I despair!

Lidocaine infusion for chronic pain

Test results

Chronic pain and Lupus.

Getting on with it..

Running with lupus

Does anyone know anything about ANCA-C BLOOD TEST

Lupus Rash?!

Discoid lupus advice needed

Amylase levels?

Fluoxetine

Any suggestions for good Rheumys

Is it this really Lupus?

Pin prick blood spots on insides of lower foot from heel to toe. Having a run of skin issues of late 🤨

Despairing after a new Rheumatology Visit

Positive ANA test result today now waiting to see Dr

Mild shifting joint pain

Cardiff Lupus Group Meeting - Saturday 24th August 2019

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