Posts - LUPUS UK | HealthUnlocked

LUPUS UK

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All posts for August 2013

does this sight cover psoriatic artritu s

jimsalisbury12345

•11 years ago

2 Replies

Acute Kidney Failure???

Okay so recently I have been very ill and have an intolerance to food ie chicken, rice, kebab etc. Some foods I can tolerate others I will bring up also there...

Okay so recently I have been very ill and have an intolerance to food ie chicken...

Danielle2419

•11 years ago

4 Replies

Help - ESA Tribunal in a couple of weeks

Hi, I have had lupus for the past 25 years but more recently was diagnosed with scleroderma. I had to take six months off work last year because the stress of...

Hi, I have had lupus for the past 25 years but more recently was diagnosed with ...

florence1884

•11 years ago

1 Reply

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Possibly testing positive for Lupus.

Hi everyone, I'm new to this site and I would appreciate some insight just in case I test positive for Lupus. (I tested positive once for Lupus, but the NHS...

Hi everyone, I'm new to this site and I would appreciate some insight just in ca...

Eatpower

•11 years ago

6 Replies

Lupus and the menopause

I am interested in hearing any experiences as to whether the menopause has any effect on Lupus symptoms. My very first lupus consultant said something to the...

I am interested in hearing any experiences as to whether the menopause has any e...

overnighthearingloss

•11 years ago

35 Replies

Sun exposure, first time I have been effected.

Hi. This is the first summer I have been effected by the sun! I love summer and holidays abroad, we didn't go away this year because of it, makes me ache and...

Hi. This is the first summer I have been effected by the sun! I love summer and ...

joannebond360

•11 years ago

17 Replies

I have known I have got mild sle a few years ago by few blood tests my specialist told me have skin biopsy will results tell me sle is worse

after having my first bby I had few symptoms of sle then I had blood tests results saying I had sle n hypermobility n then I had few miscarriages too the sle...

after having my first bby I had few symptoms of sle then I had blood tests resul...

shakylove

•11 years ago

1 Reply

August's Blog Post - Smartphone apps to help manage aspects of your lupus

The latest figures show that around 7 in 10 people in the UK own a smartphone. There are billions of apps available to download, which have an almost endless...

The latest figures show that around 7 in 10 people in the UK own a smartphone. T...

Paul_Howard

Partner•11 years ago

4 Replies

Ooh dear, why me? Hope it stops before its all gone.

Had lots of thick dark hair but in the past few weeks its got thinner and thinner and it seems to be turning bleach white, to think i actually used to complain...

Had lots of thick dark hair but in the past few weeks its got thinner and thinne...

crankyme

•11 years ago

5 Replies

Fatigue Say it aint so!

I had been living in hope that at some point I would be freed from my prison of fatigue Even after my mum told me that there is nothing that can be done about...

I had been living in hope that at some point I would be freed from my prison of ...

wotshernameagain

•11 years ago

10 Replies

Swollen Lymph Nodes = Biopsy

Was told by my Rheumy that my recent CT scan showed that I had swollen lymph node in my arm pits. I told the doctor that I have had a swollen lymph node in my...

Was told by my Rheumy that my recent CT scan showed that I had swollen lymph nod...

wotshernameagain

•11 years ago

4 Replies

I need some advice about a letter

I was told of specialist I need biopsy to see if my lupus has flared up tht he will sort out it for me to have biopsy. so I got letter a month ago saying...

I was told of specialist I need biopsy to see if my lupus has flared up tht he w...

shakylove

•11 years ago

6 Replies

HI all i joined this community because i have been stinged by flying brown insect

When it stinged my left hand hurt alot for 4 hours after that it stop hurting but i am feeling like something burning inside there is no swelling even the sign...

When it stinged my left hand hurt alot for 4 hours after that it stop hurting bu...

sundridoll

•11 years ago

2 Replies

ASPARTAME

Don't know how much to read into this (as I found this on facebook). The article is suggesting that people with Lupus (and other illnesses) should avoid diet...

Don't know how much to read into this (as I found this on facebook). The article...

LloydE

•11 years ago

12 Replies

Taking medication on a plane

I go away on Saturday for a week I take daily Herapin injections I have a dr's note and my repeat prescription and I called First Choice a few weeks ago to let...

I go away on Saturday for a week I take daily Herapin injections I have a dr's n...

Butterflywings

•11 years ago

3 Replies

Pregabalin - I've gone barmy!!!!

Oh what a wally, I fell off my trolley, my lift doesn't reach the top floor. I've lost a screw, 2 sandwiches 2 but, there's 1 thing I know 4 sure. They don't...

Oh what a wally, I fell off my trolley, my lift doesn't reach the top floor. I'v...

jayniey

•11 years ago

1 Reply

Anyone else on iron tabs?

Have tried ferrus fumerate, sulphate and now on gluconate- the first two reaked havoc with my system, the last one I have just started But how I feel is worse....

Have tried ferrus fumerate, sulphate and now on gluconate- the first two reaked ...

Hidden

•11 years ago

7 Replies

Anyone affected by low sex drive?

For years now, well ever since having a child, my desire is really low. Do not even think about it. Feel guilty towards my husband. Is it a symptom?

For years now, well ever since having a child, my desire is really low. Do not e...

Hidden

•11 years ago

19 Replies

We're seeking case studies for our Lupus Awareness Month press release. Can you help? Now Closed

***We have now found a suitable story for the release. Thank you to everybody that volunteered to help.*** We're currently finishing off our press...

***We have now found a suitable story for the release. Thank you to everybody th...

Paul_Howard

Partner•11 years ago

6 Replies

Update on Back pain

For a year I have suffered excruciating back pain. I told my rheumy and he said that it was from the Lupus and there was nothing he could do about it and...

For a year I have suffered excruciating back pain. I told my rheumy and he said ...

lillyanne

•11 years ago

8 Replies

Has anyone got sensory overload with their lupus? And can fibromyalgia co-exist with it.

Apparently having fibromyalgia can lead to over active senses too. My lupus is in my joints but there are places that hurt when touched on the rest of my body....

Apparently having fibromyalgia can lead to over active senses too. My lupus is i...

Simmer

•11 years ago

2 Replies

Do employers have a legal obligation to adapt the work environment for an employee with lupus?

I am very sensitive to sunlight, fluorescent lighting and low energy lightbulbs. Think I may also be sensitive to electro magnetic fields too. So that means...

I am very sensitive to sunlight, fluorescent lighting and low energy lightbulbs...

Simmer

•11 years ago

4 Replies

For the ladies, problems with periods and hormones.

Hey all you ladies. I have been having problems with periods being all over the place, late and hormones in a right state! Does anyone else have this? Feel...

Hey all you ladies. I have been having problems with periods being all over the ...

joannebond360

•11 years ago

14 Replies

Feet & hand problems & pain.. Any ideas folks??

Since about June I've been having varying degrees of pain in my feet & hands. When I wake up in the morning or the middle of the night (sleeping terribly), my...

Since about June I've been having varying degrees of pain in my feet & hands. Wh...

Maraid

•11 years ago

18 Replies

Allergy

Has anyone had an allergic reaction to hydroxychloroquine and what did they do about it?

Has anyone had an allergic reaction to hydroxychloroquine and what did they do a...

Simmer

•11 years ago

20 Replies

Anyone had Amitriptyline and Co-Codamol for neuropathic pain? If so, what is your experience....side-effects, degree of success etc?

I have SLE, Hughes Sydrome and Sjogrens Syndrome and now have nerve damage where my C6 & C7 vertebrae are compressing the nerves, causing severe pain across...

I have SLE, Hughes Sydrome and Sjogrens Syndrome and now have nerve damage where...

Rockhopper

•11 years ago

9 Replies

Really struggling with hair loss. Any tips on how to cope??

I've just lost my hair and finding it really traumatic. It happened whilst we were on holiday in France and my GP thinks it may have been the sun triggering...

I've just lost my hair and finding it really traumatic. It happened whilst we we...

Belee

•11 years ago

11 Replies

Having dizzy episodes for last few days. Feels like I have had too much to drink. Anyone else get this and how do you manage it?

Hidden

•11 years ago

27 Replies

What is happening to our appointments???

ive read on here a few times in the past re clinics been closed or people unable to get appointments with their specialists and I always thought thank goodness...

ive read on here a few times in the past re clinics been closed or people unable...

poodlegal

•11 years ago

5 Replies

Anyone have red eyelids like yr wearing makeup?

dawsden

•11 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2013

does this sight cover psoriatic artritu s

Acute Kidney Failure???

Help - ESA Tribunal in a couple of weeks

Possibly testing positive for Lupus.

Lupus and the menopause

Sun exposure, first time I have been effected.

I have known I have got mild sle a few years ago by few blood tests my specialist told me have skin biopsy will results tell me sle is worse

August's Blog Post - Smartphone apps to help manage aspects of your lupus

Ooh dear, why me? Hope it stops before its all gone.

Fatigue Say it aint so!

Swollen Lymph Nodes = Biopsy

I need some advice about a letter

HI all i joined this community because i have been stinged by flying brown insect

ASPARTAME

Taking medication on a plane

Pregabalin - I've gone barmy!!!!

Anyone else on iron tabs?

Anyone affected by low sex drive?

We're seeking case studies for our Lupus Awareness Month press release. Can you help? Now Closed

Update on Back pain

Has anyone got sensory overload with their lupus? And can fibromyalgia co-exist with it.

Do employers have a legal obligation to adapt the work environment for an employee with lupus?

For the ladies, problems with periods and hormones.

Feet & hand problems & pain.. Any ideas folks??

Allergy

Anyone had Amitriptyline and Co-Codamol for neuropathic pain? If so, what is your experience....side-effects, degree of success etc?

Really struggling with hair loss. Any tips on how to cope??

Having dizzy episodes for last few days. Feels like I have had too much to drink. Anyone else get this and how do you manage it?

What is happening to our appointments???

Anyone have red eyelids like yr wearing makeup?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2013

does this sight cover psoriatic artritu s

Acute Kidney Failure???

Help - ESA Tribunal in a couple of weeks

Possibly testing positive for Lupus.

Lupus and the menopause

Sun exposure, first time I have been effected.

I have known I have got mild sle a few years ago by few blood tests my specialist told me have skin biopsy will results tell me sle is worse

August's Blog Post - Smartphone apps to help manage aspects of your lupus

Ooh dear, why me? Hope it stops before its all gone.

Fatigue Say it aint so!

Swollen Lymph Nodes = Biopsy

I need some advice about a letter

HI all i joined this community because i have been stinged by flying brown insect

ASPARTAME

Taking medication on a plane

Pregabalin - I've gone barmy!!!!

Anyone else on iron tabs?

Anyone affected by low sex drive?

We're seeking case studies for our Lupus Awareness Month press release. Can you help? ***Now Closed***

Update on Back pain

Has anyone got sensory overload with their lupus? And can fibromyalgia co-exist with it.

Do employers have a legal obligation to adapt the work environment for an employee with lupus?

For the ladies, problems with periods and hormones.

Feet & hand problems & pain.. Any ideas folks??

Allergy

Anyone had Amitriptyline and Co-Codamol for neuropathic pain? If so, what is your experience....side-effects, degree of success etc?

Really struggling with hair loss. Any tips on how to cope??

Having dizzy episodes for last few days. Feels like I have had too much to drink. Anyone else get this and how do you manage it?

What is happening to our appointments???

Anyone have red eyelids like yr wearing makeup?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

We're seeking case studies for our Lupus Awareness Month press release. Can you help? Now Closed