Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,727 members • 28,087 posts

All posts for July 2012

Topic of the Month: July - Getting the most out of Doctors' Appointments

One of the most important ways you can stay healthy is to be an active member of your own health care team. One way to get high-quality health care is to find...

One of the most important ways you can stay healthy is to be an active member of...

Paul_Howard

Partner•12 years ago

5 Replies

Can anyone help - my friend has some worrying symptoms and she asked me to ask you all for any advice

She has just had her first round of tests that show a positive for lupus. She hasn't seen the rheumy yet. My friend writes: "I live in Weston-Super-Mare,...

She has just had her first round of tests that show a positive for lupus. She ha...

Maya23

•12 years ago

3 Replies

help to find a consultant in london

Hello everyone! i am a portuguese girl, new in the UK and i live in London at the moment. I have Lupus since september of 2000, so i really...

Hello everyone! i am a portuguese girl, new in the UK and i live in London a...

claradias

•12 years ago

7 Replies

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Plaquenil

Had 2 weeks taking plaquenil liquid (one dose a day). I even felt there was an improvement with my joints in that short time! After 2 weeks my dose was then...

Had 2 weeks taking plaquenil liquid (one dose a day). I even felt there was an i...

janekins

•12 years ago

9 Replies

Do you take long time steroids?

Hi everyone, my daughter has been told that for het own good,it would be best if she stayed on prednisilone long term. Which is what she is doing at the...

Hi everyone, my daughter has been told that for het own good,it would be best if...

nanny4

•12 years ago

8 Replies

Do you have a funny story to share that has occurred because of lupus?

I have read a few anecdotes on here that have made me chuckle. Small things such as using the wrong word due to word finding difficulties etc. Does anyone have...

I have read a few anecdotes on here that have made me chuckle. Small things such...

Petey

•12 years ago

9 Replies

Has anybody had a problem with a lump on the back of neck? Been told its Buffalo Hump !!!!!!

I had this lump come up on the back of my neck/shoulders and was told it was called a Buffalo Hump and caused by steroids. I had not been on steroids for more...

I had this lump come up on the back of my neck/shoulders and was told it was cal...

helentad

•12 years ago

2 Replies

Lupus specialist

Hi all we have hit a big wall once again !!!!! Am on mytax (can't spell it) lol 6000mg by day 600 quin by day 60mg preds by day plus ur normal meds lol .......

Hi all we have hit a big wall once again !!!!! Am on mytax (can't spell it) lol ...

discoqueen

•12 years ago

6 Replies

Sleep or lack of...

I've always slept well and lupus has always made me even more sleepy. However this latest flare has left me waking every few hours and finding it very...

I've always slept well and lupus has always made me even more sleepy. However th...

Alupie

•12 years ago

4 Replies

Should you keep quiet or shout from the roof tops?

Hey, this is not a question about my illness itself but more about my mind, I dont know how I feel about my illness its taken me along time to get my head...

Hey, this is not a question about my illness itself but more about my mind, I do...

shay1

•12 years ago

7 Replies

What blood tests do you have and what results should you expect . Would be good to understand what to look out for.

Gillyg

•12 years ago

10 Replies

I am very worried about my friend, she is just being diagnosed with lupus and she is very ill -can you help?

She has acute pain in her kidneys and joints and is unable to look after herself so her mum has moved in to look after her. She's been in hospital twice in...

She has acute pain in her kidneys and joints and is unable to look after herself...

Maya23

•12 years ago

8 Replies

i am 18 and had lupus since i was 12 and now finding it very hard, any advise ?

lornaedwards

•12 years ago

5 Replies

what contraception should i use.

i am 18 and had lupus for a log time since i was 12 anddoctors have prescribed me contraception but i just have flare ups from them

i am 18 and had lupus for a log time since i was 12 anddoctors have prescribed m...

lornaedwards

•12 years ago

6 Replies

In hospital again

Yet another infection. 3uti and passing blood again and another course of antibiotics what a year it had been. Now on bed rest for a day or two. As per usual...

Yet another infection. 3uti and passing blood again and another course of antibi...

medic1969

•12 years ago

5 Replies

WHAT HAPPENS NEXT

so friday after my rhumy appointment i got told i have Sle lupus but my doctor was a waist of time she spent most of the time looking at her pc and not...

so friday after my rhumy appointment i got told i have Sle lupus but my doctor ...

fairy_leggins

•12 years ago

5 Replies

Holiday!

Well it's finally hear and I can't wait. I've been looking forward to this for months. It's been nearly 6 months since I was diagnosed and I have made such...

Well it's finally hear and I can't wait. I've been looking forward to this for m...

Lg1968

•12 years ago

4 Replies

Getting back on your feet and being normal?!*@$£!

It makes me feel ever so slightly stupid when I slow down and suddenly remember I have Lupus. I ignore it but its comes back, I choose to carry on like nothing...

It makes me feel ever so slightly stupid when I slow down and suddenly remember ...

kaw86

•12 years ago

6 Replies

pains down the side?!

Ellie has just come home after having 3 days on steroids intravenously. Lupus now diagnosed , she has been put on Hydroxychloroquine..(took 5 before going in...

Ellie has just come home after having 3 days on steroids intravenously. Lupus no...

Northerner123

•12 years ago

4 Replies

Urodynamics clinic

I have SLE but have been told there is no organ damage. Have just received an appointment through for the Uro Gynaecology dept. No warning about this from my...

I have SLE but have been told there is no organ damage. Have just received an a...

prescilla

•12 years ago

3 Replies

body v brain

body, oh body why have u denied me, my brain is strong but you Body, u have defied me......

body, oh body why have u denied me, my brain is strong but you Body, u have d...

poncho

•12 years ago

4 Replies

is it possible to have lupus but not have proper positive test results?

dizzdora

•12 years ago

8 Replies

A Quick poem...

I waned to say something to my partner that I can't. So I'm posting this poem out there in the community, just to see if I'm loosing my mind, (even more)!...

I waned to say something to my partner that I can't. So I'm posting this poe...

SLE15

•12 years ago

15 Replies

rash !!!?? Hydrocloriquine !!??????????????

i got a rash on my foot ( on 2 occasions ) in the sun( red, raised and itchy ) but now i can be in the sun and .... no rash !? is this possible !? I have...

i got a rash on my foot ( on 2 occasions ) in the sun( red, raised and itchy ) b...

larissa

•12 years ago

3 Replies

burning sensation on the right side of my back, and right breast anyone help??

i have recently been feeling this burning numb sensation on my right side of my back under the shoulder, and the numbness has moved around to my breast, it is...

i have recently been feeling this burning numb sensation on my right side of my ...

jahlioness80

•12 years ago

4 Replies

Lupus specialist

Does anyone know of a good lupus specialist in the Glasgow area or even Edinburgh. Would prefer Glasgow but would travel if necessary. Thanks!

Does anyone know of a good lupus specialist in the Glasgow area or even Edinburg...

bennett

•12 years ago

2 Replies

Foamy pee

I have low moods mood swings in the mornin and foamy pee and strong pee, has any body. Had these systoms x

I have low moods mood swings in the mornin and foamy pee and strong pee, has any...

lpatterson

•12 years ago

4 Replies

Employment- what do luies do to earn a wage?

Hi, I was a postlady for 30 years. In my 29th year I had a rheumatic virus, last July, It was suggested a couple of months later, that I had polymyalgia...

Hi, I was a postlady for 30 years. In my 29th year I had a rheumatic virus, last...

lowicklady55

•12 years ago

15 Replies

Depression.

I'm suffering from bad depression currently, probably the worst I've had in the 20 years I've suffered from it. I thought depression was another symptom of...

I'm suffering from bad depression currently, probably the worst I've had in the ...

Alupie

•12 years ago

5 Replies

Fatigue treatments for Lupus?

Hi everybody. I am new to this site - new to the possibility of Lupus. I realise that Lupus has many similarities to MS - I have MS and am in the progressive...

Hi everybody. I am new to this site - new to the possibility of Lupus. I realise...

anniesensi

•12 years ago

17 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2012

Topic of the Month: July - Getting the most out of Doctors' Appointments

Can anyone help - my friend has some worrying symptoms and she asked me to ask you all for any advice

help to find a consultant in london

Plaquenil

Do you take long time steroids?

Do you have a funny story to share that has occurred because of lupus?

Has anybody had a problem with a lump on the back of neck? Been told its Buffalo Hump !!!!!!

Lupus specialist

Sleep or lack of...

Should you keep quiet or shout from the roof tops?

What blood tests do you have and what results should you expect . Would be good to understand what to look out for.

I am very worried about my friend, she is just being diagnosed with lupus and she is very ill -can you help?

i am 18 and had lupus since i was 12 and now finding it very hard, any advise ?

what contraception should i use.

In hospital again

WHAT HAPPENS NEXT

Holiday!

Getting back on your feet and being normal?!*@$£!

pains down the side?!

Urodynamics clinic

body v brain

is it possible to have lupus but not have proper positive test results?

A Quick poem...

rash !!!?? Hydrocloriquine !!??????????????

burning sensation on the right side of my back, and right breast anyone help??

Lupus specialist

Foamy pee

Employment- what do luies do to earn a wage?

Depression.

Fatigue treatments for Lupus?

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