Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for August 2011

Remembering 10 years on

I'm just watching the Firemen's Story on C4 I just can't believe that 10 years have passed and it took me back to that day, I didn't know anyone who died that...

I'm just watching the Firemen's Story on C4 I just can't believe that 10 years h...

momo_special

•13 years ago

Be the first to reply

Where have the years gone?

Hi All - I'm now 35 years old and my oldest son is just about to start school - I'm feeling a little old and sad, I can't believe where the last 5 years have...

Hi All - I'm now 35 years old and my oldest son is just about to start school - ...

momo_special

•13 years ago

2 Replies

steroids

i know the steroids help us with the sle but i do worry about taking them for all these years. Just worry about the future as they can be just as damaging....

i know the steroids help us with the sle but i do worry about taking them for al...

melj

•13 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Finally found somewhere

Well I have commented and asked a question so thought I had better introduce myself and start logging. I am a stay at home mum to 4 little ones aging from 6...

Well I have commented and asked a question so thought I had better introduce mys...

Hidden

•13 years ago

6 Replies

BACK TO WORK

Back to work tomorrow after 3 weeks. It seems like 3 months!! I will feel like the new girl and have to repeat the sentence a hundred times "Yes i feel alot...

Back to work tomorrow after 3 weeks. It seems like 3 months!! I will feel like ...

Jello

•13 years ago

4 Replies

How good is Hydroxychloroquine, and any side effects?

What are people's experiences of taking Hydroxychloroquine? It has been suggested I might begin taking this after my next visit to the Rheumatology Consultant,...

What are people's experiences of taking Hydroxychloroquine? It has been suggeste...

larsonsmum

•13 years ago

40 Replies

light at the end of the tunnel!

Hi to all of you. my first time here .first thing i did was read the problems that lots of you have blogged about the problems that lupus causes. There is so...

Hi to all of you. my first time here .first thing i did was read the problems th...

melj

•13 years ago

2 Replies

I don't feel so isolated

Hi All I was diagnosed with lupus 19 years ago, I spent 2 months in Bristol Royal Infirmary where It was confirmed I had lupus. During that time I...

Hi All I was diagnosed with lupus 19 years ago, I spent 2 months in Bristol...

dustydile

•13 years ago

3 Replies

Does anyone else feel giddy/off balance?

I have SLE and for years have felt giddy for much of the time but it has got worse as time has gone on. My rheumatologist says that the lupus must have...

I have SLE and for years have felt giddy for much of the time but it has got wor...

Jude65

•13 years ago

4 Replies

APART FROM FREEXING HANDS & FEET AM ALSO LOSING MUSCLE TONE.

I have noticed that my bottom is disappearing (honestly, not joking). It seems that all the muscle has/is just fading. It is quite so to sit for long...

I have noticed that my bottom is disappearing (honestly, not joking). It seems ...

Maggie81

•13 years ago

3 Replies

Freezing hands and feet.

My hands and especially my feet are constantly cold. I can be sweating, but my hands and feet are freezing. I have lupus/sjs, at the moment there is no pain,...

My hands and especially my feet are constantly cold. I can be sweating, but my ...

Maggie81

•13 years ago

14 Replies

Frustration !!!

Hi All, I was diagnosed with Lupus SLE and Anti Phospholipid syndrome in May 2004 after several missed oportunites, I was in hospital for 3 months i...

Hi All, I was diagnosed with Lupus SLE and Anti Phospholipid syndrome ...

Hidden

•13 years ago

3 Replies

Victim? or Survivor?

It’s great to see so many people using this site - a big thank you to LUPUS UK for setting up such a safe way for us all to communicate with each other. I...

It’s great to see so many people using this site - a big thank you to LUPUS UK f...

Hidden

•13 years ago

2 Replies

Lucky

I have just visited my professor today. My appointment was at my private hospital where i work. I didn't realise how lucky i am. I have a lovely job and every...

I have just visited my professor today. My appointment was at my private hospita...

Jello

•13 years ago

4 Replies

Glad I`m not alone..

My name is Sue am in my 50`s I`m new to this site and its good to know there are others out there in the same situation.I was diagnosed in may 2010 with SLE...

My name is Sue am in my 50`s I`m new to this site and its good to know there are...

Skid

•13 years ago

18 Replies

When will I ever learn?

To pace! However, that said yesterday was a day when there was little choice as it is that time of year when crops are glutting and all ready at the same...

To pace! However, that said yesterday was a day when there was little choice as ...

Gloshette

•13 years ago

2 Replies

What exercise do you do to fight Flares

My lupus is in my spine and every flare brings paralysis one step closer. Need to strengthen upper body to keep independence and keep weight under control....

My lupus is in my spine and every flare brings paralysis one step closer. Need ...

Davros

•13 years ago

2 Replies

Family

I rarely go sick, I always try my hardest not to let my Lupus take control of my life so would hope that when I do need to just hit the couch there would be...

I rarely go sick, I always try my hardest not to let my Lupus take control of my...

Davros

•13 years ago

3 Replies

Doctors!!!!!!

Had a bad experience with the GP today - he spent the whole time looking at the computer,not once did he look me in the eyes. I have had 2 awful weeks -...

Had a bad experience with the GP today - he spent the whole time looking at the ...

senorascully

•13 years ago

1 Reply

Doctors!!!!!!

Had a bad experience with the GP today - he spent the whole time looking at the computer,not once did he look me in the eyes. I have had 2 awful weeks -...

Had a bad experience with the GP today - he spent the whole time looking at the ...

senorascully

•13 years ago

2 Replies

Weeks 5 of the School hols + rainy day + 3 kids = stressed out Lupie Mum....

From my previous blogs, week 1 went OK, week 2 was spent packing and getting ready for holiday, weeks 3 and 4 was spent on a lovely family holiday in Gt...

From my previous blogs, week 1 went OK, week 2 was spent packing and getting rea...

Lupie_Sal

•13 years ago

2 Replies

my tiredness is coming more and more in waves as I am getting older is anyone else?

denisep

•13 years ago

3 Replies

Something nice!!!

Hi Everyone Just wanted to share something nice with all of you. I have just had a wonderful day spent at Southwold beach watching my daughter and husband...

Hi Everyone Just wanted to share something nice with all of you. I have just...

ChrissyB

•13 years ago

3 Replies

Visitors

I am really really looking forward to our visitors this evening, they're coming from abroad and staying with us for 5 days... I've missed them since they moved...

I am really really looking forward to our visitors this evening, they're coming ...

momo_special

•13 years ago

2 Replies

New and confused!

Hello everyone, I was told i had Discoid Lupus about 7yrs+ ago! Cant remember exactly! I have the main symptom of Discoid rash, which is made worse in...

Hello everyone, I was told i had Discoid Lupus about 7yrs+ ago! Cant remembe...

Bowker70

•13 years ago

4 Replies

Breastfeeding and having flare any tips on coping with pain without taking drugs?

Hidden

•13 years ago

1 Reply

confused.com

Hi all I am new to health unlocked too. And i am very confused with my diagnosis. I have been diagnosed with Lupus 3 years ago but since then my consultant...

Hi all I am new to health unlocked too. And i am very confused with my diagno...

Jello

•13 years ago

8 Replies

Hi I have recently been diagnosed with lupus after years and years of pain and problems,

will I ever get a nights sleep, is it normal to have pain and swelling almost daily, recently if I go out in the sun parts of my face start bleeding, I havent...

will I ever get a nights sleep, is it normal to have pain and swelling almost da...

luupysue

•13 years ago

7 Replies

Is sickness/nausea something I have to get used to

I have been constantly feeling or being sick since discharge from hospital 16 days ago... Is this normal or should I go back to the Dr's it is really starting...

I have been constantly feeling or being sick since discharge from hospital 16 da...

tinkerbellquo

•13 years ago

1 Reply

New...

Hi all, I'm new to Health Unlocked but not so new to Lupus - whether that's a good or bad thing I don't know. I suppose, at least, I've had time to come to...

Hi all, I'm new to Health Unlocked but not so new to Lupus - whether that's a...

rachelbeasley

•13 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2011

Remembering 10 years on

Where have the years gone?

steroids

Finally found somewhere

BACK TO WORK

How good is Hydroxychloroquine, and any side effects?

light at the end of the tunnel!

I don't feel so isolated

Does anyone else feel giddy/off balance?

APART FROM FREEXING HANDS & FEET AM ALSO LOSING MUSCLE TONE.

Freezing hands and feet.

Frustration !!!

Victim? or Survivor?

Lucky

Glad I`m not alone..

When will I ever learn?

What exercise do you do to fight Flares

Family

Doctors!!!!!!

Doctors!!!!!!

Weeks 5 of the School hols + rainy day + 3 kids = stressed out Lupie Mum....

my tiredness is coming more and more in waves as I am getting older is anyone else?

Something nice!!!

Visitors

New and confused!

Breastfeeding and having flare any tips on coping with pain without taking drugs?

confused.com

Hi I have recently been diagnosed with lupus after years and years of pain and problems,

Is sickness/nausea something I have to get used to

New...

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive