LUPUS UK | HealthUnlocked

LUPUS UK

29,880 members26,445 posts
Pinned posts

Reaction to 4th covid vaccine (Moderna)

Just to say I had a 4th covid vaccination on Saturday (17 Sept) along with the f...

Hrt and lupus

has anyone here had hrt? What were you advised about it?

Iron Deficiency

Hi everyone, I’d like to start off by saying that I haven’t been tested for Lup...

Double cutie

Hello everyone Just thought i'd pop in to show you a fun pic this time. Thoug...

best products

Hello,can I pick your brains please. recently diagnosed with sjorgrens.after...

On cancer urgent pathway

Hi i have sle lupus,fibromyalgia;raynaunds,rheumatoid arthritis,brain injury etc...

Persistent Low Grade Fevers and Fevers During Physical Activity

Hi! I have started keeping track of my body temperature, and for the past 3 week...

A Pair of Cuties

Hello everyone Just wanted to tell you all this love story between two otters. ...

lymph node swelling

I was wondering if anyone gets swollen lymph nodes at all? My ones under the ar...

can you have a lupus flare with normal bloods

hi guys I feel horrific I have been told my Iron is low alongside that I’ve got...

diagnosed at last

After 20 years of fighting I have finally got an official diagnosis of non posit...

Shingles again , so over this! Thinking of getting the vaccine- do the shingles vaccines work ?

I’m 59 with Sjögrens and a number of chronic conditions. I’m going through a bo...

It’s Monthly Mira Monday 🐶💞

Hi Folks, as we say goodbye to the summer thought this pic was apt that a took o...

diagnosed with fibromyalgia but not convinced

hello, I’m writing on behalf of my daughter 19. She has had aching joints for ma...

The Guardian article Lupus cure

Anyone else seen this? https://www.theguardian.com/science/2022/sep/15/scientis...

ZENTIVE Hydroxychloroquine

Hi everyone, I've hust been told by my pharmacist at Boots that Zentiva brand of...

Heading to A and E !? - unsure how to convince them to help me ...

My main problems at the moment is the progressive SOB,palpitations, nausea , itc...

Scalp SLE diagnosed April 2021, conflicting/contradictory medications - any advice?

Hi I've had a biopsy which confirmed SLE for scalp last year in France (where I ...

dry eyes

Hi everyone, I have lupus sle and have such dry eyes which I have different ey...

Experiences with Hydroxychloroquine?

Hello, I’m Mac and I’ve just been diagnosed with Lupus (mild disease progressio...

Azathioprine hydroxychloroquine steroids and dental extraction

Hello lovely people. I am due to have a dental root extraction and are on the ab...

Have you experienced problems having a prescription for Zentiva hydroxychloroquine filled?

Over the past week or so we have had quite a few enquiries from people reporting...
Administrator

can you have a flare and have normal bloods??

I am so poorly at the moment and had my bloods done and there fine I feel like ...

Night thirst and dry mouth

Hello everyone. I have a diagnosis of lupus, am under the care of a rheumatolog...

Sjorgens help...

Sjorgens help...I have a very dry mouth and struggling to eat as it hurts the r...

Help - my teeth are moving!

Hi lovely people A strange one to help your week-end along! The row of teeth i...

Can stag 2 kidney disease be unrelated to Lupus.

hi saw my specialist this week and have received my blood and urine results whic...

New lupus medication in Phase 2 trials

https://www.medicalnewstoday.com/articles/lupus-pill-in-phase-2-trials-may-preve...

Hydroxy eye screening, should I still go now I'm not taking it?

Hi everyone. Looking for some advice here, sorry for the long read. I took hyd...

question regarding medication refill

Hi, who’s responsibility is it for refills? situation: We moved and I updated...
Write a post or ask a question

About us

**This HealthUnlocked Community is a peer support forum facilitated by LUPUS UK - The national registered char...

Read more about LUPUS UK
01708 731251

Support us!

Become a member of LUPUS UK today to receive our magazine and show your support for others with lupus