LUPUS UK | HealthUnlocked

Hi all, I have had Lupus for a long time but it never affected my mouth before. After a very stressful few weeks/months, I now have a mouth full of ulcers....

Hi lovely Lupies. I thought you might like to see my latest pottery piece. While it is nowhere near as gorgeous as my beautiful boy Finlay, I think it captures...

(Hi MEGS) For those of you who know my journey ive had a real struggle, and still am but have had some help with a steroid trial but no healthcare. Finally I...

After 4 years I still don't really know what I have.Initially diagnosed with Undifferentiated Inflammatory Arthritis, then discovered by accident that it had...

diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry...

Hello EveryoneJust thought i'd post this lovely picture of a Mummy Duck and her cute babies. They took a wrong turning and ended up at a red carpet film...

I am a woman aged 53. Iwas diagnosed with lupus two weeks ago. However, I was not given any treatment. I got no advice on what to do next. I am supposed to...

MESSAGE FROM HU SUPPORT: This post contains information that could be upsetting. If you are feeling vulnerable, do take care if you choose to read this post....

Hi folks thought I would post this pic of the lupins In my garden, they have self seeded all over the path and look beautiful . An update on me, I’m due to...

Hi all, I am having to start putting 50+ sun cream on my face every day. However, I find it difficult to clean my face fully every evening. I am sure there is...

Hi just been researching gulten free diet for lupus to help with inflamation. Is anyone doing this or tried it and found any benefit. Id be really interested...

Hi, I’m worried about my husband who has had chrohns for 20+ years and has now been diagnosed with drug induced lupus from inflimab which they said would go...

I saw my rheumatologist yesterday. A couple of weeks earlier than scheduled because I've felt very depressed. I feel no joy, no focus, no energy/vibe. My...

Hi my lupus community I need your thoughts on my dilemma. I have had a lupus diagnosis for 20 years now and have been on lots of different meds over the...

Hi all, Hope you're all as well as can be 💕 I'm back again, if you've seen my previous posts you'll know this last month or so have been really difficult. In...

How is this for a view? My health is deteriorating but I can still sometimes get out to appreciate this beautiful island that is my home. Best wishes to...

Good morning everyone. I hope you are well today. Please will someone kindly post recommendations for travel insurance. I have a habit of collecting many...

Hi folks ,Thought I share you my picks of the garden the far left pot of strawberries was picked This morning the other 2 was pick the last 2 days morning and...

Hi all ,For those who uses La Roche Posay SPF50+ has anyone used the Family version SPF 50+ it is a 300ml trigger bottle or the Body lotion moisture 250mls SPF...

Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate...

Hello, do any of you have a severe reaction to insect bites? I’ve always had a little bit more of a reaction but nothing like this! I recently got bitten, by...

Hi all.Hope you are as well as you can be. I wasn't going to post this but if another person can relate it will help to know If this is common with others who...

Hi all my 13yr old daughter was diagnosed with SLE Lupus about 2yrs ago ( after being treated for almost a year for juvenile arthritis). It's all still very...

I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said...

https://lupusuk.org.uk/neuropsychiatric-prodromes-and-sle/ There is also the full article of the research if you can't find it let me know I can attach it for...

Hello all I've very recently been diagnosed with Lupus and am yet to begin treatment. I have a few questions if you could be so kind to help me out. ....

Hi. I have started Hydroxychloroquine a week and a half ago, 400mg, for Lupus Tumidus (cutaneous). I am very up and down side effect wise. This morning I...

I have only one thing to say about this dam Lupus tonight! "I Want My Mammy" 😒

Quick back story... my rheumatologist told me to stay out of the sun. I mean in no uncertain terms. So I did exactly that. I apply spf50 regularly throughout...

Hi all, Long post warning. Have Lupus SLE for nearly 2 years. Due to UTI symptoms being worse last night phoned 111 for advice and had out of hours appt at...