LUPUS UK | HealthUnlocked

Hello all you lovely Lupies, I know it isn’t an original idea but I thought you might like to see our village phonebox which has been converted to house our...

Could I please ask for an advice regarding resonable adjustments at work place. I am struggling with early mornings and at my job that I've been for 6 months...

Firstly, I'm not saying anyone should be using anything other than there meds. I just wanted to share this because (as a researcher) I can't help myself. I...

Well fellow lupies, 😜 I've had my first appt with a psych today, bar neuropsych 😆, and have got it done privately. Costly, but if it's something I need then...

Help. Don’t know who to contact if anyone. Could be I’m a Jessie! On Wednesday of last week my left foot started swelling (I have Lupus, Sjogrens and...

Hi, community. The sun is shining and the birds are singing, or in the case of the starlings, squabbling over the bird feeders. They are just like a bunch of...

Hello Everyone I hope you all had a happy and healthy as possible Easter. I'm in a lot of pain so had to take a break but 'cuties ' are hopefully back with a...

Pervading stiffness, pain and immobility today so sat on the decking in the sun watching the nesting birds and budding plants and tried to zone out and not...

I have been having increasing problems with freezing fingers for no reason and then being cold all over and debilitating exhaustion. Then the other day, I was...

On Friday I went with my friend to see a litter of 11 Labrador puppies for him to have the very hard task of picking one out- well he chose this little beauty...

Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but...

Hello everyone I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!. I couldn't resist these dancing lambs at Bleinham...

I was wondering if anyone here has been diagnosed with both? I have lower back pain, but never had any X-ray that shows any degenerative changes. My...

Hello lovely people hope you’re all as well as you can be . Just wondered if anyone on here can relate or explain why an ear would feel wet when it isn’t and...

I actually had an appointment with just the rheumatologist. First time with no residents. Now I see like Kay said, the residents are important. The doctor did...

Does anyone else suffer with Plantafacia (sorry about the spelling) or soreness and acute pain under the foot on on the shins. have started to suffer with...

Has anyone with Lupus got problems with their sight?

Hey everyone, So I’ve been on hydroxychloroquine for about 6 months now, while I feel it may have helped with my reducing my rash, joint pain, I have been...

UPDATE: lung function tests normal. Had an ABG (arterial blood gases), results are all over the place, specialist has no idea what’s going on! I have extremely...

Hi everyone I was wondering if anyone could shed some light, I have this across my face and nose which I thought was pigmentation. It started last year, went...

Interesting read here, sorry it’s not a link but a screen shot was the was the only way I could get this here.

Sjogens disease Has anybody suffered with wind and constipation.

Hi fellow Lupies hoping you are all keeping as well as can be. Here are some more signs to hopefully bring a smile to your lovely faces. Wonderful signs in...

As promised her is an extra pic of Mira on her Birthday - she’s a tiny girl with a huge personality 😂 we love her dearly. Thankyou everyone for your continued...

I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage...

Hoppy Easter you wonderful people. I hope your days are filled with sunshine, daffodils and copious amounts of chocolate 🥚🐣🐥🍫💐❤️ Xxx

I was wondering if anyone can help. I have my follow up appointment with the rheumatologist on Thursday. My problem is: I have had lower back pain since I was...

Hi everyone, I'm really pleased to share the news that researchers have identified a genetic cause of lupus. This is the first time a TLR7 mutation has been...

Hello all - I would like to be able to test my urine at home, rather than waiting for appointments with my rheumatologist or GP. I previously bought urine...

So I always been on hydroxychloroquine for 10 years now mostly was 200mg one in morning. However been on 2 a day for quite some time, should I taper it or...