LUPUS UK | HealthUnlocked

Hi everyone, If you've been following the forum over the past few months, you'll know that Melanie Sloan is leading a LUPUS UK-funded research project...

Hi, I’m awaiting test results to see if I have Lupus. My Dr is very sure I do as have 95% symptoms and has started me on prednisone. 6 tablets for the first...

Hello everyone Just thought i would show you this picture of a beautiful duckling about to catch his dinner!. It was such a good photo that its won a Birds...

Hi lovely Lupies, After chatting to Diane (EDD) about rashes recently I thought she and some of you might be interested to see the progression of a head to toe...

Good morning, so I’ve read a lot on here last night. It’s such an informative and supported group. I can’t thank you all enough for helping answer my...

Hello everyone Meet Lucky and Merrylegs, two beautiful Shetland ponies looking their best for the Royal Windsor Horse Show. I love them and i hope you all do...

Meet my new oldies. Angel is a 14 1/2 year old collie and Tillie is an 11 1/2 year old shih tzu. They came as a pair, lucky me.

Am I the only one that flares up in this heat like there is no tomorrow!!! Cold weather not many flares for me, but heat and sun.. well that looks like a big...

I really couldn’t resist posting this ! Caption has got to be “ what’s the big deal it’s my garden I’ll flash what I like “ 😂😂😂

Hello to all my fellow comrades fighting the good fight!🫶💪🏽🙏🏼🦓🦄🌟✨ I got a call from my neuro Wizard’s office last week saying they needed to reschedule...

I am suffering with bad Sjogren’s syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my...

Hi folks hope everyone enjoyed the Jubilee celebrations I didn’t get to see any of it as was on a family holiday at Centre parcs and guess what we got all the...

Hi just looking for some advice please. Does anyone get swollen glands with lupus? My right gland just under my ear is up like a golf ball and is extremely...

I’d like to know if anyone else has had issues with repeated facial palsy/paralysis? My lower face is affected, sometimes so bad that I cannot smile. It’s...

Hi all, so I've been struggling with sle and APS mainly joints and ridiculous fatigue for a long time now and really struggling with just my 12 hrs a wk...

After much pushing on my part to see a hospital ophthalmologist for an eye check up because I take Hydroxychloroquine, at a recent visit to Specsavers it was...

Hello Everyone I thought it time for a fun 'cutie pic' and ive needed cheering up this week. This great guy is from Bali and he takes six of his twenty rescue...

LUPUS UK is funding Cambridge University to carry out a research study into neurological and mental health symptoms experienced by people with lupus and...

Hi all I’m really anxious to know if anything showed in the bloods I had taken immediately after seeing the rheumatologist. I’m also keen to know the hand,...

Hi My lupus mainly affects my joint and muscles along with swelling and fatigue. If I purchased the sunflower lanyard would it be recognised to help me at...

Hi! I'm new here but would be grateful for any help! I have a lot of lupus symptoms including : Fatigue, pain in multiple joints, headaches, malar rash, other...

I had Moderna as 1st booster (AZ for first 2 doses, no reaction whatsoever!) in mid December, had a bad reaction in the lymph nodes around breast and arm - not...

Good morning, the Dr thinks I have cutaneous Lupus, my symptoms are butterfly rash on the face, Both the back on my hands are very red and my bottom lip is so...

Hope everyone has a lovely Jubilee what ever you are doing 💞

Hi friends, I’ve now been off work for 8 weeks with chronic extertional breathlessness, still no diagnosis. It started with the flu (not COVID) and never went...

Hello all - I received a lupus diagnosis two years ago. I've tried various meds, including hydroxychloroquine, but experienced side effects which caused me to...

Thought I'd share a pick of lil' Milo who has decided she wants to live in my jacket permanently. 😂 Rough time at the moment still, and many others have it...

Hi all I just wanted some advice! I went today for one of my regular blood tests. The nurse tried once and couldn’t get a blood so after a few minutes of...

Hello everyone, I've been having a lot of digestive issues and wondered if anyone else had a similar experience or any advice? So this has been going on for...

I’m sharing this calming soothing picture of peace that I took in the highlands last month. The air was so clean and fresh it was almost fizzy. Hope it calms...