LUPUS UK | HealthUnlocked

Has anyone who suffered hair loss whilst in first stage following diagnosis and trial and error to find meds that work found any grew back? Daughter (aged...

I know I haven’t posted for a long time. I have been struggling badly this year with my leg and my gut and thus far no end in sight.I hope to start...

Hello Have any of you experienced a reaction to the Moderna vaccine? I had mine on Saturday and by the evening my arm was so painful, I couldn't sleep. Sunday...

I have had previous injections but worry now due to recent reports about safety and side effects. I have had Covid once before so really anxious about what to...

Three patients in the UK receive ‘groundbreaking’ treatment for lupus Team upday 8 November 2024 · 09:00 Three patients in the UK have received...

Hi, I started HRT in February and have really felt the benefit of being on this. However I was then diagnosed with lupus in August. A few people have...

Hi all has anyone had experience with methotrexate for lupus as current medication not great at the moment. Did it help? Any side affects any info would be...

Hi, This is my first time posting, so hi everyone. I've been reading some of your posts and replies but it's taken me a while to post something myself. I...

After being referred to Rheumatology in August 2023 by Orthopaedic department because of my hand symptoms. Was seen by Rheumatology in January 2024 where I...

Morning everyone, I'm a 70 year old lady with sle, Sjogrens, blepharitis. Recently diagnosed with Episcleritis in both eyes. My Ophthalmology consultant...

UPDATE: Dear Friends, A heartfelt thank you to all of you who replied to my message, it was just what I needed and I’m so grateful to all of you. Cinderella...

Has anyone else been fobbed off by an NHS rheumatologist to then go private and get a full diagnosis? I tick every box for lupus with symptoms and bloods...

just a quickie as GP didn’t have any idea 😳. I know we’re not Drs and can’t diagnose but has anyone had this rash before ? both legs lasted 2 weeks . Didn’t...

Good morning Hope you are all keeping as well as you can be. I'm having a difficult time at the moment. I saw the rheumatologist last week and after 4 years...

Hello I have lupus sle, sjogrens and fibro. I have recently been experiencing what only feels like elastic bands snapping under my skin. Which cause huge pain...

hello all. I posted 4 months ago when my illness started. Joint pain and a full body rash (that went away in a few days) were my main symptoms at the time,...

Hi Everyone,We were told in clinic that on Thursday that my lupus could possibly be in remission??🤷 But I still have this spots on my leg and I am extremely...

I've been prescribed Clinitas Carbomer eye gel, Ikervis eye drops and Hylo-tear drops for around 4 years now. Everytime I am seen by opthalmology, they ask me...

Hi all. I had a consult with my rheumatologist, which was really the first serious exploration of my physical state and medication routine since the pandemic...

Hi everyone,I was just looking through my test results on my NHS App in prep for my next appointment with consultant and found that my CRP was 49 in Dec 23...

Hi everyone I was diagnosed in Sept with Lupus sle and have still not had my hydrixychloriquine. I believe it is now with the dr and I’m waiting for him to...

Hello EveryoneJust popping up to tell you that this baby prickly cutie was rescued in Turkey by firemen as it had become trapped down a well!!. One of the...

Hi everyone. I hope you're all having a good day today. I would like to know if anyone has taken or are at present taking Azathioprine to treat lupus ? I have...

My wife has had cutaneous lupus for a number of years and throughout she has been taking Hydroxy and Prednisone. She has gradually reduced the prednisone...

Hi everyone, just a little bit of advice needed. I’m suspected lupus sle already having Serositis affecting my lungs and heart. I’m on 5 mg prednisone and...

I have been on Plaquenil for several years with no issues, but for the last month when I take it, I start to feel sick after about 30mins, it subside during...

Recently started on methotrexate again and was surprised to read all the warnings in tge literature pack about light sensitivity and resulting cancers. I...

Not really sure how to put this as I amnew to the posting side of this site. I have been diagnosed with cluster headaches but meds seem to have got rid of the...

I haven’t posted for a while but this pic came up on my feed so thought I would share with you all . Xx

My wife has just been advised that her collapsed airway is due to lupus and probably RPC. Does anyone have this please and can offer any experiences about...