LUPUS UK | HealthUnlocked

Now I start on the long road to recovery. Xx

Here is Hugo sussing out the rare occurrence of more than 6 flakes of snow in coastal Cumbria. Thank you to everyone for your messages of support , recovery...

Hello EveryoneJust thought i'd pop up with these two lovely 'cuties'. The lamb is a week old, Reminding us that Spring is on its way, despite this miserable...

Hello everyoneI hope your all as well as possible for the festive season and you like all these woodland characters!. I just wanted to say a big THANK YOU for...

hi husband very recently diagnosed with mixed connective tissue disease and informed by Rheumatologist has some antibodies which show a hidden cancer-but no...

I was diagnosed with SLE and APS around 25 years ago ; I take Warfarin to control my blood INR and have little or no trouble with this. The inflammation and...

Hi, I am reaching out to see if anyone can give suggestions on some odd symptoms I have had over the last two years. I have been doing the rounds with...

thought I would start the day with something funny hence the pic above, it so made me laugh and we could all do with that. Sorry I haven’t been on the forum...

so this may be a weird one . Everything I wear almost.. sports bras, pants , stretchy yoga pants, socks, bracelets… they all leave impressions on my skin....

As patients in some areas of UK are not been seen regularly in NHS clinics any more, and routine blood and urine tests being left to the patient and the GP to...

Hi I'm never sure which group to post these in because I have overlap autoimmune so if there is a group more suitable to this lost please let me know. I've...

dear all lovely members I’ve posted previously about my ongoing headache (which i only get between 3am and waking ). You may remember I had a sleep study done...

Happy new year! I went to a car insurance comparison site and got to a part asking about illness/disability. I looked on the DVLA site and didn't see lupus...

Wishing everyone a restful Christmas.....Feet up folks let someone else do the dishes 😊 from SML & Hugo xx

I have tested positive for ANA and ds-DNA several times but always negative for ENA through NHS. I paid for a private blood test that gave me a titre 1:320 and...

Hi all, hope you've had a lovely christmas and new year 😊💕 Mine unfortunately was cut short by a drunk driver crashing into my new car that has now put me...

Good morning and Happy New Year from across the pond, I have a question in regards to Hydroxychloroquine. Lately, my bones have been aching. It hurts to...

My boys wanted to say hello and spread abit of Christmas cheer. Anyhooo...... my main news is I've finally got a date for the reconstruction surgery on my...

Hello, has anyone experienced eye twitching whilst taking Hydroxycloroquine? Just wondering whether this is a known side effect and whether I need to seek...

Hello , hope I can post here. I have had a undifferentiated connective tissue disorder for around 12 years . On methotrexate and hydroxachloroquine. No longer...

looking for a community that represents me. Mixed connective tissue disease?

Hi everyone I’ve just received my dreaded pip review form. My question is does everyone here send supporting evidence with their form. I currently receive...

Is anyone on here on Mycophenolate , this is the new meds they want to start me on to try and get things under control, awaiting my test results from bloods...

I am just wondering if there are flares with Lupus? I have had RA since I was 13, but lupus was just discovered recently in 2020. I had this strange experience...

I have Lupus with increasing connective tissue pain as it wears down and osteoarthritis in hands feet hips. Pain is like many of us, never really gone;...

A slightly late Happy New Year everyone. I hope you are well and keeping out of trouble 😄 I've seen and read a fair few posts here related to hair loss, and...

Hi All So I’m sure alot of you have suffered hair loss through your journey like me. Mine has been on and off for about 20 years now, to differing degrees but...

Good afternoon was diagnosed with pericarditis back in April was having chest pain that I get every 2 months really bad for about 2weeks they say I have...

Hi! I'm new to this forum. I've been unwell now for nearly 2 years. Mainly fatigue, but also dizziness, brain fog, malaise, joint pains etc. I was diagnosed...

I haven't yet disclosed this , but as well as my SLE , I also have significant hair loss the hair loss has now been diagnosed as alopecia. My partner noticed...