LUPUS UK | HealthUnlocked

Hey lovelies Just wondered does anyone else get these blobs ?? They don’t itch , they aren’t sore and disappear after couple weeks . Can appear anywhere...

Has anyone got any particular food allergies. I've been diagnosed with lupus for over 20 years. I've always gone pink after a glass of wine but recently 1 sip...

Spoke to gp today, she refuses to send me to rheumatology as I don't have a rash!! Says it's requirement. I told her not everyone gets a rash she said 80% do I...

hi don’t no if I have lupus? getting bloods done Tuesday ,, had a rash on my face few times last year painful joints neck stiffness shoulders and arm knees...

Hello EveryoneJust thought we all needed a fun 'cutie pic' this time as weather has been so grey and cold for a long time now!!. Meet Annie the Alpaca and her...

Having got through 5 weeks in plaster with no infection and my sanity intact 🙌 ( back on the mmf & tac now ) I came out of my cast on Friday. Now I start to...

Now I start on the long road to recovery. Xx

I noticed my GP surgery have taken my prednisolone off my repeat medication list “because I’m supposed to be reducing it and it’s an acute drug “. I feel...

I have had Lupus SLE since 2002 and have now been diagnosed with Haemachromatosis in November 2024.I am to have venesection to reduce my iron overload. I would...

Good morning. I am a 40 yr old female. I have severe health anxiety which was triggered by low iron that I suffered with last year. I have sought advice from...

Hello EveryoneJust thought i'd pop up with these two lovely 'cuties'. The lamb is a week old, Reminding us that Spring is on its way, despite this miserable...

Hi First of all, sorry about the length of my post. Where do I start? I am looking for some kind of good news or positives - it all feels really doom and...

Does anyone have lupus and is also taking estrogen? How are you doing with it? I’d like to try vaginal estrogen but just read this article....

Good Afternoon, I have previously posted re the extreme symptoms that I am experiencing, which I have been told is due to Raynard's: red/white/blue/extremely...

Here is Hugo sussing out the rare occurrence of more than 6 flakes of snow in coastal Cumbria. Thank you to everyone for your messages of support , recovery...

A newbie here. I was diagnosed in November '24 and started Hydroxychloroquine. This has been ineffective, so my consultant has now recommended me starting...

Hi everyone. This may be a long post so please bear with me. I've had lupus for 35 years and have been on prednisolone on/off for all that time. Main symptoms...

Has anyone with raynards had this test? And so did it lead to a diagnoses? I saw a consultant rheumatologist at bath yesterday and I have to go back in about 3...

I saw my GP a few weeks back and had bloods done. They came back as: ANA 1:80 ENA positive Anti-dsDNA 36.5 (>35) My GP mentioned Lupus and referred me to...

I've been on prednisolone daily since July 2023, I'm now down to 4mg a day!! Tapering is going well - thank you methotrexate! Between July -Dec 2023 I gained...

Just had letter from bath appointment, she said longstanding symptoms potentially consistent with uctd but low index of clinical suspicion. The longstanding...

anybody got experience of Belimumab (Benlysta) I’m just starting on this

Dear Cath, (Belated!) Happy New Year! Thank you so much for completing our recent survey on medical care, symptoms and hormones. We would greatly appreciate...

Hello all! I've just had a morning cortisol test on 4.5mg prednisolone (down from 5mg recently which I've been on for about six years now). The result is...

does anyone know why my Malar rash starts to burn and become painful after approx 7pm at night. I get little or no pain from it during the day

Hi guysI don't post often but I do check in for advice all the time. Here is my latest, hope I don't waffle too much. I have had lupus, fibromyalgia,...

I was diagnosed with SLE and APS around 25 years ago ; I take Warfarin to control my blood INR and have little or no trouble with this. The inflammation and...

The rheumatologist I saw was most concerned that I'm loosing weight. Only weigh 6.5 stone now, she didn't think it was anything to to with any ctd though, has...

Hi I'm never sure which group to post these in because I have overlap autoimmune so if there is a group more suitable to this lost please let me know. I've...

good morning, I wanted to ask if anyone has any tips on how to navigate the NHS rheumatology appointments. I was tested by GP for antibodies, inflammation etc...