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LUPUS UK
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Anyone got any experiences of neurologists not understanding lupus please to share with CQC and hospital management (anonymously)
Hello all, after a few of us had a bad experience at my local hospital with neurologists dismissing our lupus symptoms due to not understanding the basics of...
Hello all, after a few of us had a bad experience at my local hospital with neur...
WOWZERS - docs missed a big one! Blood counts
Hi all, So after my ER visit I realized that had actually been considerate enough to print my labs. The doctor who saw me said my labs looked \"good\" and...
Hi all, So after my ER visit I realized that had actually been considerate enoug...
Research Survey – Share about your disease, journey to diagnosis and the level of support you feel you receive/received from doctors
LUPUS UK are working with researchers at Cambridge University, a group of people living with lupus, and some of the top lupus specialist doctors in the...
LUPUS UK are working with researchers at Cambridge University, a group of people...
Getting a consultant referral for a CT-PET scan for relapsing polychondritis?
About 2 months ago, I started noticing chunks of my face rapidly atrophying - nose cartilage and around eyes especially, but also my jaw bone decreased by...
About 2 months ago, I started noticing chunks of my face rapidly atrophying - no...
What the picture doesn't show - a year later
A year ago, I posted a pic of me celebrating my daughter's graduation from uni, and used that excuse to highlight some of the \"invisible\" things that go on...
A year ago, I posted a pic of me celebrating my daughter's graduation from uni, ...
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Events
09
Dec
Young People (16-26) Lupus Support Group Meeting - London
December 09, 2018 1:30
19
Jan
South London Lupus Group Medical Lecture
January 19, 2019 10:30
23
Mar
South London Lupus Group Medical Lecture
March 23, 2019 10:30
18
May
South London Lupus Group Medical Lecture
May 18, 2019 10:30
27
Jul
South London Lupus Group Medical Lecture
July 27, 2019 10:30
07
Sep
South London Lupus Group Medical Lecture
September 07, 2019 10:30
30
Nov
South London Lupus Group Medical Lecture
November 30, 2019 10:30
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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)
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