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LUPUS UK

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Phone for heart and Lupus.

Hello all you lovely Lupies, I know it isn’t an original idea but I thought you ...

Resonable adjustments, problems at work.

Could I please ask for an advice regarding resonable adjustments at work place. ...

Following new research and I have discovered something useful....

Firstly, I'm not saying anyone should be using anything other than there meds. ...

Lupus, life, and counselling

Well fellow lupies, 😜 I've had my first appt with a psych today, bar neuropsych...

What is going on??

Help. Don’t know who to contact if anyone. Could be I’m a Jessie! On Wednesday o...

Toenail surgery with Raynaud's and Erythromelalgia

Hi, community. The sun is shining and the birds are singing, or in the case of ...

Cuties are Back!.

Hello Everyone I hope you all had a happy and healthy as possible Easter. I'm in...

Resting the garden

Pervading stiffness, pain and immobility today so sat on the decking in the sun ...

Any Advice Please - Raynaud's, Vasculitis and Dr. Appt.

I have been having increasing problems with freezing fingers for no reason and t...

Cuteness overload 🐶😘

On Friday I went with my friend to see a litter of 11 Labrador puppies for him t...

Feel lost

Hi all just looking for some advice if possible please. Has anyone had lupus dia...

Happy World Lupus Day

Hello everyone I hope you all haven't got too much 'cuteness overload' with all ...

Osteoarthritis and lupus

I was wondering if anyone here has been diagnosed with both? I have lower back p...

Phantom wet ear

Hello lovely people hope you’re all as well as you can be . Just wondered if an...

Raynaud's Dr.'s Appt. Outcome Am I Expecting Too Much

I actually had an appointment with just the rheumatologist. First time with no r...

Plantafacia or policeman heel.

Does anyone else suffer with Plantafacia (sorry about the spelling) or soreness...

Lupus and eyesight

Has anyone with Lupus got problems with their sight?

Lupus “Fatigue”

Hey everyone, So I’ve been on hydroxychloroquine for about 6 months now, while ...

Shortness of breath and wheezing

UPDATE: lung function tests normal. Had an ABG (arterial blood gases), results a...

Is this lupus?

Hi everyone I was wondering if anyone could shed some light, I have this across...

Chronic pain

Interesting read here, sorry it’s not a link but a screen shot was the was the o...

Sjogrens disease

Sjogens disease Has anybody suffered with wind and constipation.

More daft signs to make you smile.

Hi fellow Lupies hoping you are all keeping as well as can be. Here are some mor...

It’s Mira,s Birthday 2 today 🎂🐶

As promised her is an extra pic of Mira on her Birthday - she’s a tiny girl with...

What medication do people find most helps their lupus ? Can no longer take HCQ

I've given it a good try with the HCQ, no doubt it works as well, but for me wit...

Hoppy Easter

Hoppy Easter you wonderful people. I hope your days are filled with sunshine, da...

Lower back pain

I was wondering if anyone can help. I have my follow up appointment with the rhe...

Researchers find a genetic cause of lupus

Hi everyone, I'm really pleased to share the news that researchers have identifi...

Urine testing

Hello all - I would like to be able to test my urine at home, rather than waitin...

Hydroxychloroquine Tapering

So I always been on hydroxychloroquine for 10 years now mostly was 200mg one in ...
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