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LUPUS UK

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WE NEED YOUR EXPERIENCES: Please check this list of neurological/mental health symptoms in lupus and let us know if anything is missing

Hi everyone, If you've been following the forum over the past few months, you'...

Do you lose your hair with Lupus?

Hi, I’m awaiting test results to see if I have Lupus. My Dr is very sure I do as...

Cutie Time Again!

Hello everyone Just thought i would show you this picture of a beautiful ducklin...

The rash that got me diagnosed with SLE

Hi lovely Lupies, After chatting to Diane (EDD) about rashes recently I thought ...

Helpful ways to relieve stress!

Good morning, so I’ve read a lot on here last night. It’s such an informative an...

Two Cuties

Hello everyone Meet Lucky and Merrylegs, two beautiful Shetland ponies looking t...

cutie alert

Meet my new oldies. Angel is a 14 1/2 year old collie and Tillie is an 11 1/2 ye...

Sunny weather and flares, help!

Am I the only one that flares up in this heat like there is no tomorrow!!! Cold ...

In case you need a smile ! 🌹🌷💐

I really couldn’t resist posting this ! Caption has got to be “ what’s the big d...

Am I going to lose my Wizard?🙀

Hello to all my fellow comrades fighting the good fight!🫶💪🏽🙏🏼🦓🦄🌟✨ I got ...

Sjögren’s syndrome

I am suffering with bad Sjogren’s syndrome because of lupus which means I have d...

It’s Monday Monthly Mira 🐶❤️

Hi folks hope everyone enjoyed the Jubilee celebrations I didn’t get to see any ...

(Very) swollen neck gland

Hi just looking for some advice please. Does anyone get swollen glands with lup...

Facial paralysis

I’d like to know if anyone else has had issues with repeated facial palsy/paraly...

Finally been retired on ill health aged 43!!!

Hi all, so I've been struggling with sle and APS mainly joints and ridiculous fa...

Hydroxychloroquine toxicity

After much pushing on my part to see a hospital ophthalmologist for an eye check...

A fun pic

Hello Everyone I thought it time for a fun 'cutie pic' and ive needed cheering u...

Your views needed for a LUPUS UK-funded research project - Investigating neurological & mental health symptoms in lupus and related diseases

LUPUS UK is funding Cambridge University to carry out a research study into neur...

Will Rheum send blood & xray results to me/my GP or do I have to wait until my next appointment with him

Hi all I’m really anxious to know if anything showed in the bloods I had taken i...

Sunflower Lanyard

Hi My lupus mainly affects my joint and muscles along with swelling and fatigue....

Getting a lupus diagnosis

Hi! I'm new here but would be grateful for any help! I have a lot of lupus sympt...

Offered spring booster - bit of a dilemma

I had Moderna as 1st booster (AZ for first 2 doses, no reaction whatsoever!) in ...

Cutaneous Lupus

Good morning, the Dr thinks I have cutaneous Lupus, my symptoms are butterfly ra...

Jubilee Bank Holiday

Hope everyone has a lovely Jubilee what ever you are doing 💞

Is this permanent?

Hi friends, I’ve now been off work for 8 weeks with chronic extertional breathle...

Methotrexate

Hello all - I received a lupus diagnosis two years ago. I've tried various meds...

New kitten Milo 😍

Thought I'd share a pick of lil' Milo who has decided she wants to live in my ja...

Can a needle be reused for multiple blood test tries?

Hi all I just wanted some advice! I went today for one of my regular blood tes...

Lupus and Digestive issues

Hello everyone, I've been having a lot of digestive issues and wondered if anyo...

A sight to behold

I’m sharing this calming soothing picture of peace that I took in the highlands ...
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