Hi gco34, I have the same problem! Only sat in garden for 5 maybe 10 minutes having natter with my daughter looked like i'd got 3rd degree burns by the time went in! I agree it is so horrible I love the sun and usually holiday in Florida, but ...

Hi 2dogs, Thank you for that , not only has it been helpful for me but my sister in law's struggling with arthritis and allergic to tramadol so I shall inform her of this drug too. I don't think us lupies will ever hear the words "I promise you ...

anyone tried it? is it safe for lupies

Thanks so much for your responses everyone. Due to see G P soon and rheumatologist at end of May so will certainly mention it again. It does feel like inflammation so thanks for ginger tea suggestion. A asthma ruled out, ironically it eases after ...

I use 50 and thirty factor sun cream, but why do I still go so red and I am annoyed that people say I am burnt, I tell them I have a skin condition to keep them quiet, but i am getting to hate being asked this, I do love to get out in the summer, ...

You may think that what I'm suggesting is odd.....but: I've conscientiously been doing all the hydration & diet & supplements recommended for these sort of cramps....and am on the usual SLE oral meds...even so, nothing seemed to help stop these ...

Oh, and I take vit d every day, cranberry for UTIs, and flaxseed supplement for lowering cholesterol, blood pressure. Don't know if they all work, but I feel ok

Awesome Nazia....make sure someone is with you. Don't swim alone... Good luck

Asthma? I was diagnosed with it a few years ago after believing I was having panic attacks in the night. Still getting tightness in my chest, that feeling of sometbing heavy on your chest, which I find more distressing than the shortness of breath...

Thank you so much for the Info.. I typed late and wondered why no one was understanding my message ? I guess I did not explain it well enough

I was diagnosed with lupus about 2 months ago...decided to not see rheumatologist because I do not plan on going on meds. They work for some people, but i am not interested. I take a digestive enzyme and probiotic before meals to help with ...

I feel an advantage here, I have a great dentist. He is very aware of all my auto-immune conditions and is totally in my corner. I can't have any topical in my mouth ( it blisters my skin, and gift from Sjogrens). Although I didn't start out this ...

Any tips for anti-histamines that will not dry my mouth, throat nose etc up even more? I'm not really suffering terribly yet, I'm just a little sniffly and sound blocked up. My throat is a bit itchy. Or, are there any cures from the world of '...

Sulfasalazine (Azulfidine), used to treat pain and swelling in arthritis, belongs to a class of drugs called sulfa drugs. It is a combination of salicylate (the main ingredient in aspirin) and a sulfa antibiotic. Sulfasalazine is also known as a ...

Hi 2dogs, I'm taking 400mcg of plaquenil a day and 5ml of pred, come down gradually from 30 .What's sulfasalazine? That's a new 1 to me. That's a shame plaquenil doesn't work for you as it's helped me tremendously. X

Hi libainfo 1, I know the feeling it's awful. Mines been swollen for about 3 months now and is so sore. I'll have to try the teaspoon tip. Thanks. X

I have now done a course of Cocodimal with hardly any effect, back to GP today and she has now put me on a course of anti inflammatory Naproxen for a month but have to be careful as have hiatus hernia and am taking Lanzaprosal which she thinks ...

Hi lol-lou, I'm sorry to read that you are finding things difficult at the moment. Can i ask what tests you have had done? If you think it would be of benefit to you i can send you one of our information packs which explains more in depth about...