Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for August 2015

Seeking another opinion!!!!!

So I went for my appt today with rheumy.. Not good , to start she never opened or even read any of the messages I've been sending via the online app to the...

So I went for my appt today with rheumy.. Not good , to start she never opened o...

winterbaby07

•9 years ago

6 Replies

Dental implants??

Hey everyone, hope all doing ok. I have a quick question for you all. Has anyone ever got dental implants? How were you after the procedure. Did you get bad...

Hey everyone, hope all doing ok. I have a quick question for you all. Has anyo...

Carbar

•9 years ago

22 Replies

Oral thursh for over a year

Hi I wondered if anyone could help Me I've been suffering with oral thursh for around 15 months my gp has given me nystatin on numerous occasions also I have...

Hi I wondered if anyone could help Me I've been suffering with oral thursh for a...

Sarahs4464

•9 years ago

9 Replies

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Undiagnosed but in the process....

After suddenly becoming ill at 47 years and gathering several consultants of this and that around me, i remain baffled by a body that presents me with new...

After suddenly becoming ill at 47 years and gathering several consultants of thi...

Peggys1

•9 years ago

9 Replies

Bladder pain and potential biopsy... Very nervous about the after effects

Hello there I have suffered for over 15 years, on and off with what were thought to be uti's and was given the usual antibiotics, however to cut a long story...

Hello there I have suffered for over 15 years, on and off with what were thought...

Chablis

•9 years ago

3 Replies

In two minds...

Still having a horrible time at the moment but woke up today with a positive attitude that I haven't felt in months the grey has lifted for a few hours today...

Still having a horrible time at the moment but woke up today with a positive att...

Squeeshy

•9 years ago

2 Replies

Daughter facial rash - update

Good morning all. I've not posted for a while. Isla's face has been consistently better for the past couple of weeks, almost completely disappearing apart from...

Good morning all. I've not posted for a while. Isla's face has been consistently...

Daisy_flower83

•9 years ago

7 Replies

Sjogrens lip biopsy, is it beneficial???

Does anyone know the pros & cons of getting a lip biopsy for Sjogrens ?? I read about it but it would be useful to actually hear it from those who've actually...

Does anyone know the pros & cons of getting a lip biopsy for Sjogrens ?? I read ...

winterbaby07

•9 years ago

8 Replies

What is feeling good?

Do we ever feel good? I constantly feel that at least some part of my body aches or I have sores/mouth ulcer, or I am just dog tired. Is this our normal or...

Do we ever feel good? I constantly feel that at least some part of my body ache...

chandlermandy

•9 years ago

5 Replies

Confused by notes on Hep2 ANA test from Guys Hospital

Can anyone help me please? I have had some blood test results from Guys Hospital but one of them has left me stumped. The Hep2 ANA results States...

Can anyone help me please? I have had some blood test results from Guys Hospital...

Annalouk

•9 years ago

1 Reply

This is my face after a time on the beach last month!

This is my face after a time on the beach last month.. It happened again when I walked home on a nice day from my dr appt !!! Your Thoughts????? Yes pictures...

This is my face after a time on the beach last month.. It happened again when I ...

winterbaby07

•9 years ago

4 Replies

Pics and more pics... Thoughts please!!! SLE, SJOGRENS POSSIBLY...

I'm posting pics of my battle which is all of our battle.... Feel free to comment I'm sure someone on here will find them useful my right leg was bothering me...

I'm posting pics of my battle which is all of our battle.... Feel free to commen...

winterbaby07

•9 years ago

Be the first to reply

Sjogrens battle!!!

One test down , 1 lip biopsy & 1 Eye test to go!!!! And I'm wearing my shades inside my eyes cannot have almost any sunlight they burn, feel like rocks are in...

One test down , 1 lip biopsy & 1 Eye test to go!!!! And I'm wearing my shades in...

winterbaby07

•9 years ago

Be the first to reply

Prednisone took away mouth and nose sores!!!! Yaaayyy

Here is nose sore I had last week now they too are gone!!! But once steroids done I'm afraid they will return!!! And all my labs were negative still.... But in...

Here is nose sore I had last week now they too are gone!!! But once steroids don...

winterbaby07

•9 years ago

Be the first to reply

Lupus mouth sore or no??

This is the before pic... I've been on prednisone since Sunday I'll post my mouth after pic in a few but the sores in my nose and mouth are gone I do feel...

This is the before pic... I've been on prednisone since Sunday I'll post my mout...

winterbaby07

•9 years ago

3 Replies

F.L.A.R.E.

Having recently experienced another few hours in appointment delayed clinic and a nurse was mentioning in short as in sle (systemic Lupus erythymatosus ) and...

Having recently experienced another few hours in appointment delayed clinic and ...

littleeffie

•9 years ago

1 Reply

Steroid injection

I fell and broke my hip last October and had to have a hip replacement. I suffered a lot of pain from the hip and my other joints . When I saw the rheumy in...

I fell and broke my hip last October and had to have a hip replacement. I suffer...

clova

•9 years ago

6 Replies

Not a good day

Today is not a good day, nothing is going right, medically, not sure if I'm in a flair up but mainly have the overwhelming feeling that I can't cope any more....

Today is not a good day, nothing is going right, medically, not sure if I'm in a...

MelAlice

•9 years ago

5 Replies

Disability

Hi all i have some questions. I was told I have lupus sle april of this year an I'm now taking synthesis 75mg 1 × a day,seroquel 25mg 1× a day, prilosec 40 mg...

Hi all i have some questions. I was told I have lupus sle april of this year an ...

1TeiaMarie

•9 years ago

10 Replies

U

Hi. I am gogspr and I live in Edinburgh with my wife. I am 71 years old/young and was finally diagnosed with SLE in Nov. 2014. Have 2 daughters and one super...

Hi. I am gogspr and I live in Edinburgh with my wife. I am 71 years old/young an...

gogspr

•9 years ago

10 Replies

August's Blog - Maria's experience of changing diet

This month we have welcomed another person with lupus to share their experienced on changing diet and lifestyle. This month's story comes from Maria who...

This month we have welcomed another person with lupus to share their experienced...

Paul_Howard

Partner•9 years ago

1 Reply

Amazing meeting with GP who has Lupus

Sorry - this is a bit of a long post, but might be interesting for some...I was recently introduced to a local(ish) GP who has Lupus and spent a couple of...

Sorry - this is a bit of a long post, but might be interesting for some...I was ...

yakamalayo

•9 years ago

15 Replies

Azarthioprine

My bloods say my lupus is under control yet in the last 12 months my infection rate is dreadful, my body is racked in pain but on an emergency visit to my...

My bloods say my lupus is under control yet in the last 12 months my infection r...

Gillyg

•9 years ago

1 Reply

Shingles & Flare

I haven't posted for about 10 months. Last I was moving back to our home after working away for three years. The move went well, we had almost 5 months at...

I haven't posted for about 10 months. Last I was moving back to our home after ...

Chapter

•9 years ago

7 Replies

Apnoea update, panicking a bit

I just got a call today from my GP office, saying my Gp received the request to refer me to a sleep study, but the office said he wants to see me, and has...

I just got a call today from my GP office, saying my Gp received the request to ...

Silvergilt

•9 years ago

3 Replies

lupus and kidney pain!

I have not felt well for a few days and at the weekend I could hardly walk. But felt better on Monday and so resumed normal activity. Last night I went to go...

I have not felt well for a few days and at the weekend I could hardly walk. But ...

denisep

•9 years ago

5 Replies

How good are we meant to feel again?

Hi everyone. I am taking rituximab and reducing steroids monthly. I am feeling pretty good but just wondered if we ever feel completely well again on medicine...

Hi everyone. I am taking rituximab and reducing steroids monthly. I am feeling ...

joannebond360

•9 years ago

33 Replies

Hospital all night!!!!ALL FOR NOTHING!!!

Ok so I go to the ER yesterday was there for 7hr.. I told the staff my issues, battle and fight and that I am currently being worked up for Sjogrens, Lupus, &...

Ok so I go to the ER yesterday was there for 7hr.. I told the staff my issues, b...

winterbaby07

•9 years ago

10 Replies

Lupus Fog?? Any one with tips?

Hi All! I am Canadian...I live near Ottawa, Ontario, but have found this site to be so very helpful. I was officially diagnosed this year after being a bit...

Hi All! I am Canadian...I live near Ottawa, Ontario, but have found this site t...

Hockeymom12

•9 years ago

8 Replies

Oral Paroxysmal Haematomas

This post follows up on the discussions in winterbaby's 2 posts (inc her photos), I've replied to both of her posts, and described my version of both these OPH...

This post follows up on the discussions in winterbaby's 2 posts (inc her photos)...

Barnclown

•9 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2015

Seeking another opinion!!!!!

Dental implants??

Oral thursh for over a year

Undiagnosed but in the process....

Bladder pain and potential biopsy... Very nervous about the after effects

In two minds...

Daughter facial rash - update

Sjogrens lip biopsy, is it beneficial???

What is feeling good?

Confused by notes on Hep2 ANA test from Guys Hospital

This is my face after a time on the beach last month!

Pics and more pics... Thoughts please!!! SLE, SJOGRENS POSSIBLY...

Sjogrens battle!!!

Prednisone took away mouth and nose sores!!!! Yaaayyy

Lupus mouth sore or no??

F.L.A.R.E.

Steroid injection

Not a good day

Disability

U

August's Blog - Maria's experience of changing diet

Amazing meeting with GP who has Lupus

Azarthioprine

Shingles & Flare

Apnoea update, panicking a bit

lupus and kidney pain!

How good are we meant to feel again?

Hospital all night!!!!ALL FOR NOTHING!!!

Lupus Fog?? Any one with tips?

Oral Paroxysmal Haematomas

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