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LUPUS UK

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Getting a Diagnosis posts

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I am waiting to find out if I have Lupus but I haven’t got my ANA result back yet and I want to know if people think this could be lupus

Hi, I have been having concerns for over a year about me having Lupus. I had a blood test last year which everything came back normal and the ANA was negative...

Hi, I have been having concerns for over a year about me having Lupus. I had a b...

katiepops2004

•2 months ago

13 Replies

How long for ANA/ENA results?

I've had quite a few symptoms of what my GP suspects might be a CTD, spanning back about 10 years but lots more cropping up more recently. She's requested (I...

I've had quite a few symptoms of what my GP suspects might be a CTD, spanning ba...

Helzipop

•3 months ago

27 Replies

Even more confused?

Thank you for replies to an earlier post, very much appreciated 💗 So...been to see rheumatologist who has asked me to repeat ANA and anti DSDNA. Results first...

Thank you for replies to an earlier post, very much appreciated 💗 So...been to ...

Cushties

•5 months ago

17 Replies

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help can someone explain what this is

is this a blood blister or something serious please help i’m 19 and i’m scared i got cancer

is this a blood blister or something serious please help i’m 19 and i’m scared i...

jerryguss

•5 months ago

6 Replies

ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?

There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and...

There was a great response to the invite for interviewees for zoom or email inte...

RupertW-SUMS

•6 months ago

1 Reply

Anti DS DNA results

Hi all im a new member. I hope you can help!?I have tested positive for ANA 1/640 and just had a positive result for anti ds dna says 16iu(high) ...what does...

Hi all im a new member. I hope you can help!?I have tested positive for ANA 1/6...

Cushties

•6 months ago

10 Replies

Update on study of diagnostic journeys in lupus/SLE, Sjögren's and UCTD.

Hi Thanks to interviewees and organisations I'd like thank all of those who I interviewed for this study in the last few months and to thank Lupus UK,...

Hi Thanks to interviewees and organisations I'd like thank all of those who I ...

RupertW-SUMS

•6 months ago

Be the first to reply

anyone else UCTD?

hey all! So I’ve almost arrived at the final diagnosis after spending a week in the hospital surrounded by specialists and looks like it’ll be UCTD. The...

hey all! So I’ve almost arrived at the final diagnosis after spending a week in...

GottaAsk

•10 months ago

39 Replies

Inpatient stay - Overlap Syndrome?

Hello all! So I have posted on here over the past year a few times about my progress with autoimmune disease. So they so far have high suspicion of Lupus/SLE...

Hello all! So I have posted on here over the past year a few times about my pr...

GottaAsk

•10 months ago

27 Replies

Diagnosis ,please

I have been seeing a rheumatologist for 3 years now. The one I was seeing retired and I have a younger Dr. that seems to care . I was told by him that my ANA...

I have been seeing a rheumatologist for 3 years now. The one I was seeing retire...

420pain

•11 months ago

37 Replies

Flucloxacillin, Fexofenadine > ANA result.

What medications could possibly affect a lupus diagnosis blood test? I'm having the ANA and anti - ds/DNA blood test in 2 days to see if all my symptoms are...

What medications could possibly affect a lupus diagnosis blood test? I'm having ...

Doolallywoo

•11 months ago

Be the first to reply

no diagnosis, help

hi, first of all I apologize if it is not written grammatically, I'm from Croatia. I am 26 years old.I have a rash on my face, nose, cheekbones, I picture...

hi, first of all I apologize if it is not written grammatically, I'm from Croati...

tea211

•11 months ago

12 Replies

New to group, I'm currently awaiting my blood results but of all the things I've been tested for this seems to be the most relatable.

I've been having chronic fatigue for so long I can't even remember when it started or what it is to feel like normal or even close to feeling like myself. I've...

I've been having chronic fatigue for so long I can't even remember when it start...

Rensee123

•1 year ago

16 Replies

Confusing antibody test results

Hi everyone, I am just wondering in what way people got diagnosed with Lupus on here? I have nearly every symptom, and have done for nearly three years- with...

Hi everyone, I am just wondering in what way people got diagnosed with Lupus on ...

Marzipan3468

•1 year ago

26 Replies

Causes of lupus

I m trying to prove the chemical benzene causes lupus SLE. How many of you worked in plastic production, worked in coal mining, worked with fuel, smoked...

I m trying to prove the chemical benzene causes lupus SLE. How many of you wor...

markb677

•1 year ago

80 Replies

Advice about Symptoms

Hi This is my first post so im sorry if this has been asked before, I am in my 50s and all my adult life I have had various ailments which have always tested...

Hi This is my first post so im sorry if this has been asked before, I am in my...

Shir66

•2 years ago

5 Replies

Is it Lupus?

hello all good to meet you here. I am in the process after many years of battling inflammatory issues, of finally seeing a immunologist and rheumatologist in...

hello all good to meet you here. I am in the process after many years of battlin...

GottaAsk

•2 years ago

10 Replies

Has anyone had a similar journey?

Hello everyone, My name is Mac and I’ve been struggling with various health complaints for a couple of years. In December 2021 they got particularly bad, and...

Hello everyone, My name is Mac and I’ve been struggling with various health com...

Tinylittlemac

•2 years ago

11 Replies

Feel lost

Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but...

Hi all just looking for some advice if possible please. Has anyone had lupus dia...

Haylz2109

•2 years ago

44 Replies

How do you get diagnosed with lupus?

I have the majority of symptoms associated with lupus as well the genetic history even having several student drs suggest it as a possible cause. However even...

I have the majority of symptoms associated with lupus as well the genetic histor...

TJ2097

•2 years ago

9 Replies

Blisters

It has been a while since I made a post. I have had to have two major surgeries, so I have been out of commission. Starting to get over the surgeries, (had to...

It has been a while since I made a post. I have had to have two major surgeries,...

Tiras

•2 years ago

7 Replies

Should I get second opinion? Rheumy not convinced.

TLDR: Rheumy says I should not worry about ANA 320, positive histone antibodies, borderline DFS70 and low C4 because clinical symptoms are missing or mild....

TLDR: Rheumy says I should not worry about ANA 320, positive histone antibodies...

Nasty_Tony

•2 years ago

6 Replies

Mystery rash

What is this rash?? Sometimes itchy

Anonymous679

•2 years ago

8 Replies

“Non-Specific Systemic Symptoms”

I’ve finally had a write up from the NHS Rheum I saw back in October. In his letter he explains to me basically what he said to me in my appointment, that he...

I’ve finally had a write up from the NHS Rheum I saw back in October. In his le...

SadGirlRaceClub

•2 years ago

12 Replies

Struggling to get any doctors to listen to me.

I’m having an extremely difficult time getting any doctors to listen to me. I have been struggling with my joints now for around 6-7 years. I have been seeing...

I’m having an extremely difficult time getting any doctors to listen to me. I ha...

SadGirlRaceClub

•2 years ago

43 Replies

son' have a Rush allergies from hospital no idea what it's ..

Urine results ok the blood results no return from hospital i hope ok. He it's ok just the skin it's looking no good we are taking Piriton no changes at the...

Urine results ok the blood results no return from hospital i hope ok. He it's ok...

Szymon9

•2 years ago

1 Reply

can a Neurologist get blood tests for lupus?

When I was at the VMLM Expo I spoke to the staff and looking at the symptoms lupus I have a good few of them these are the ones from the NHS website joint...

When I was at the VMLM Expo I spoke to the staff and looking at the symptoms l...

Sarahmac8312

•3 years ago

8 Replies

Positive ANA, negative ENA?

Hi all!.Within the past year I've been experiencing fatigue, burning muscle and joint aches, skin rashes, hives, hair loss, weight loss, easy bruising, dry...

Hi all!.Within the past year I've been experiencing fatigue, burning muscle and ...

Hidden

•3 years ago

13 Replies

Fnd or lupus?

Hi just wondering if anyone can help me I started having symptoms after the birth of my second child last year. Then i was seen by a neurologist who diagnosed...

Hi just wondering if anyone can help me I started having symptoms after the birt...

Haylz2109

•3 years ago

Be the first to reply

Positive Speckled ANA blood test

Hey there I’ve recently had a positive speckled ANA blood result have to go into GP with extreme fatigue aching heavy muscles in lower limbs and aching sore...

Hey there I’ve recently had a positive speckled ANA blood result have to go into...

Dawn31019

•3 years ago

15 Replies

Write a post or ask a question

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Getting a Diagnosis posts

I am waiting to find out if I have Lupus but I haven’t got my ANA result back yet and I want to know if people think this could be lupus

How long for ANA/ENA results?

Even more confused?

help can someone explain what this is

ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?

Anti DS DNA results

Update on study of diagnostic journeys in lupus/SLE, Sjögren's and UCTD.

anyone else UCTD?

Inpatient stay - Overlap Syndrome?

Diagnosis ,please

Flucloxacillin, Fexofenadine > ANA result.

no diagnosis, help

New to group, I'm currently awaiting my blood results but of all the things I've been tested for this seems to be the most relatable.

Confusing antibody test results

Causes of lupus

Advice about Symptoms

Is it Lupus?

Has anyone had a similar journey?

Feel lost

How do you get diagnosed with lupus?

Blisters

Should I get second opinion? Rheumy not convinced.

Mystery rash

“Non-Specific Systemic Symptoms”

Struggling to get any doctors to listen to me.

son' have a Rush allergies from hospital no idea what it's ..

can a Neurologist get blood tests for lupus?

Positive ANA, negative ENA?

Fnd or lupus?

Positive Speckled ANA blood test

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Getting a Diagnosis posts

I am waiting to find out if I have Lupus but I haven’t got my ANA result back yet and I want to know if people think this could be lupus

How long for ANA/ENA results?

Even more confused?

help can someone explain what this is

ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?

Anti DS DNA results

Update on study of diagnostic journeys in lupus/SLE, Sjögren's and UCTD.

anyone else UCTD?

Inpatient stay - Overlap Syndrome?

Diagnosis ,please

Flucloxacillin, Fexofenadine > ANA result.

no diagnosis, help

New to group, I'm currently awaiting my blood results but of all the things I've been tested for this seems to be the most relatable.

Confusing antibody test results

﻿Causes of lupus

Advice about Symptoms

Is it Lupus?

Has anyone had a similar journey?

Feel lost

How do you get diagnosed with lupus?

Blisters

Should I get second opinion? Rheumy not convinced.

Mystery rash

“Non-Specific Systemic Symptoms”

Struggling to get any doctors to listen to me.

son' have a Rush allergies from hospital no idea what it's ..

can a Neurologist get blood tests for lupus?

Positive ANA, negative ENA?

Fnd or lupus?

Positive Speckled ANA blood test

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Causes of lupus