Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,717 members • 28,083 posts

All posts for July 2021

Cute Caption Competition

Hello everyone I thought i would try something different with this week's cutie pic. Its a funny one of an Irish Wolfhound on his first day at work at...

Hello everyone I thought i would try something different with this week's cutie ...

misty14

•3 years ago

44 Replies

Pericarditis from flare.

Hello, I was just wondering if anyone has had pericarditis as a result of a flare? And how common is it? I had a severe bout when my lupus flare progressed...

Hello, I was just wondering if anyone has had pericarditis as a result of a flar...

87654321H

•3 years ago

33 Replies

Mouth Ulcers Throat Irritation Adding to Furbie

I hope it is all right I started a new post.I also am struggling with mouth ulcers. I think they started when I had Covid in Nov. , and I have long covid...

I hope it is all right I started a new post.I also am struggling with mouth ulce...

Pumpkin2009

•3 years ago

6 Replies

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Moving lock, stock, and farmer Farrell

Hello dear fellow Lupies, On our way to the doctor we were amused to see the farmer taking his gate as well as his cattle to another field. 🤷🏼‍♀️ I would...

Hello dear fellow Lupies, On our way to the doctor we were amused to see the far...

Spotty-ewe

•3 years ago

23 Replies

Where the hell have you been !!

Just in case anyone is in need of a little smile today . This is what I get when I leave the house and go out in car for more than an hour 😂. Sending you all...

Just in case anyone is in need of a little smile today . This is what I get when...

Tiggywoos

•3 years ago

46 Replies

Lupus in the brain

Hi my mum was diagnosed with lupus at the end of may. She is now on her second hospital admission. She can’t walk, lift her arms, is incontinent, aggressive,...

Hi my mum was diagnosed with lupus at the end of may. She is now on her second h...

Debdoh

•3 years ago

70 Replies

Rainbows

Someone there is a GP who understands me….

Hidden

•3 years ago

12 Replies

Questions Questions??

Was recently diagnosed with probable SLE, with associated symptoms - Raynauds, positive RO, hair loss, fatigue, body pain etc. Prescribed...

Was recently diagnosed with probable SLE, with associated symptoms - Raynauds, p...

Bijouxb

•3 years ago

21 Replies

What to ask immunologist

Hello all - I'm new to the lupus section of health unlocked. I'm a 58 year old female. In 2016 I started to experience oral pain, numbness and tingling in...

Hello all - I'm new to the lupus section of health unlocked. I'm a 58 year old ...

Ophelia1

•3 years ago

8 Replies

Please take part in this online survey - Lupus and Quality of Life

***THIS SURVEY IS NOW CLOSED. Thank you so much to everyone who took part - we're pleased to have had over 200 responses.*** A new online survey has...

***THIS SURVEY IS NOW CLOSED. Thank you so much to everyone who took part - we'r...

Paul_Howard

Partner•3 years ago

16 Replies

Covid vax and infection question

Just wondering if people with a lupus diagnosis were classed as CV or CEV category when it came to getting their covid jabs ? I was considered CV (in remission...

Just wondering if people with a lupus diagnosis were classed as CV or CEV catego...

Fluffypip

•3 years ago

3 Replies

Imagine if this forum was just one big whatsapp group! Instant chat.. instant response... friendship group. 🥰

Imagine if this forum was just one big whatsapp group! Instant chat.. instant re...

BabyOleg

•3 years ago

3 Replies

Positive ANA speckled test - MCAS

I was diagnosed with Mast Cell Activation Syndrome earlier this year but the treatment hasn’t helped much. I have weekly bladder instillations and have been on...

I was diagnosed with Mast Cell Activation Syndrome earlier this year but the tre...

JKUK

•3 years ago

1 Reply

Positive Speckled ANA blood test

Hey there I’ve recently had a positive speckled ANA blood result have to go into GP with extreme fatigue aching heavy muscles in lower limbs and aching sore...

Hey there I’ve recently had a positive speckled ANA blood result have to go into...

Dawn31019

•3 years ago

15 Replies

Ct scan

Has anyone ever had a HDCT chest - just wondered how long I should expect to wait for the results it was put through as an urgent scan and only waited a week...

Has anyone ever had a HDCT chest - just wondered how long I should expect to wai...

BabyOleg

•3 years ago

28 Replies

Brain fog

Does anyone suffer brain fog, silly question I know, I ask this because I was hovering on Sunday, and I know how stupid this sounds, but for a few seconds I...

Does anyone suffer brain fog, silly question I know, I ask this because I was ho...

Doey1962

•3 years ago

14 Replies

Any solutions to get rid of mouth ulcers on gums and tongue

I suffer so bad, I need a quick fix

Furbie06

•3 years ago

26 Replies

Can radiotherapy for cancer treatment cause lupus flare up?

My sister has lupus and has been diagnosed with breast cancer. Can the radiotherapy cause her lupus to flare up and us there anything she should be aware of...

My sister has lupus and has been diagnosed with breast cancer. Can the radiother...

Dondees01

•3 years ago

13 Replies

PIP phone assessment

Hello dear friends, I’ve at last had word from DWP about my PIP application and they are going to do a phone assessment on 4th August. Not only did they...

Hello dear friends, I’ve at last had word from DWP about my PIP application and ...

Spotty-ewe

•3 years ago

81 Replies

For all of you who are struggling ❤️❤️❤️

This is very apt I thought. I send you love and huge Cwtches xxx❤️

CecilyParsley

•3 years ago

69 Replies

More blood tests after lupus skin biopsy

What are your thoughts. Hi, I had a skin biopsy 3 weeks ago to check for lupus, I missed the phone call today, I contacted them and they said a letter has...

What are your thoughts. Hi, I had a skin biopsy 3 weeks ago to check for lupus, ...

Jig-saw

•3 years ago

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Nightmare nighttime legs 🦵!

Hi lovelies Just wondered if anyone can relate to nighttime leg pain ? It’s as though someone has tied a band around both calves .. different to RLS . It...

Hi lovelies Just wondered if anyone can relate to nighttime leg pain ? It’s as ...

Tiggywoos

•3 years ago

19 Replies

How often do you see your rheumatologist?

How often do you guys see your rheumatologist?

Sammymoat1986

•3 years ago

45 Replies

Experience with Tacrolimus with or without Azathioprine

Hi all! My drs are suggesting to put me on tacrolimus alongside AZA to help with my joint pain. Has anyone been on tacrolimus? With or without AZA or...

Hi all! My drs are suggesting to put me on tacrolimus alongside AZA to help wi...

Sandy1212

•3 years ago

6 Replies

De Quervains Tenosynovitis

De Quervain's Tenosynovitis Just after being diagnosed with this after suffering over a year with agonising pain from my wrist/hand area! Doctors first thought...

De Quervain's Tenosynovitis Just after being diagnosed with this after suffering...

ClodaghK

•3 years ago

5 Replies

Update on nest in ornamental bird feeder

The bird’s nest wasn’t a Robin after all but a spotted fly catcher’s. Here she is sitting on her eggs. However she leaves periodically presumably to find...

The bird’s nest wasn’t a Robin after all but a spotted fly catcher’s. Here she ...

Spotty-ewe

•3 years ago

23 Replies

Beautiful lavender in Cotswolds

Just wanted to share this of our beautiful English countryside. Was a warm day and had a picnic with 3 other ladies in the camper van with Prosecco! Feeling...

Just wanted to share this of our beautiful English countryside. Was a warm day a...

Smudge4465

•3 years ago

11 Replies

New flowers have bloomed! Time in the garden 🌸

Ages ago my daughter wanted to plant cornflowers from seed, they’re finally starting to bloom! It wasn’t too sunny yesterday and my husband bought a big...

Ages ago my daughter wanted to plant cornflowers from seed, they’re finally star...

TeaandToast94

•3 years ago

20 Replies

Super cute continued.

Hello everyone. I thought i would introduce you all to Lollipop , a miniature pony shot at Royal Windsor Horse Show. I think she's really cute and has a...

Hello everyone. I thought i would introduce you all to Lollipop , a miniature po...

misty14

•3 years ago

24 Replies

Does anyone else struggle with Lupus blackouts?

Last Saturday, I worked my entire shift in a lupus blackout. My last real memory of the day is clocking into work at 10.42 am, and when I 'woke up', it was...

Last Saturday, I worked my entire shift in a lupus blackout. My last real memory...

Raeia

•3 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2021

Cute Caption Competition

Pericarditis from flare.

Mouth Ulcers Throat Irritation Adding to Furbie

Moving lock, stock, and farmer Farrell

Where the hell have you been !!

Lupus in the brain

Rainbows

Questions Questions??

What to ask immunologist

Please take part in this online survey - Lupus and Quality of Life

Covid vax and infection question

Whatsapp

Positive ANA speckled test - MCAS

Positive Speckled ANA blood test

Ct scan

Brain fog

Any solutions to get rid of mouth ulcers on gums and tongue

Can radiotherapy for cancer treatment cause lupus flare up?

PIP phone assessment

For all of you who are struggling ❤️❤️❤️

More blood tests after lupus skin biopsy

Nightmare nighttime legs 🦵!

How often do you see your rheumatologist?

Experience with Tacrolimus with or without Azathioprine

De Quervains Tenosynovitis

Update on nest in ornamental bird feeder

Beautiful lavender in Cotswolds

New flowers have bloomed! Time in the garden 🌸

Super cute continued.

Does anyone else struggle with Lupus blackouts?

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