Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,711 members • 28,080 posts

All posts for May 2022

Video Game-Like Activities Help Improve Mental Functioning in Adults with Lupus

Interactive video games designed to sharpen cognitive processes (thinking, reasoning and remembering) can be beneficial for people with lupus, according to new...

Interactive video games designed to sharpen cognitive processes (thinking, reaso...

Alida_Bennett

Partner•2 years ago

3 Replies

Anyone with a lupus specialist they love Surrey/Berkshire/West London?

I'm struggling at the moment so you may see a few posts from me here. I'm sorry in advance and appreciate the help. My lupus isn't very well managed and I...

I'm struggling at the moment so you may see a few posts from me here. I'm sorry ...

ShannonB

•2 years ago

7 Replies

Help Disabled people survive the cost of living crisis

LUPUS UK is proud to be a supporter of Chronic Illness Inclusion (CII), a disabled people's organisation on a mission to change policies and perceptions around...

LUPUS UK is proud to be a supporter of Chronic Illness Inclusion (CII), a disabl...

Chanpreet_Walia

LUPUS UK•2 years ago

6 Replies

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Study looking into the effects of the COVID-19 vaccine in patients with autoimmune diseases

Please take part in this survey for a study looking into the effects of the COVID-19 vaccine in patients with autoimmune diseases. The survey is also open to...

Please take part in this survey for a study looking into the effects of the COVI...

Chanpreet_Walia

LUPUS UK•2 years ago

19 Replies

Methotrexate and Mycophenolate together?

I’ve been on Mycophenolate for over a decade but in recent years it’s less effective and I am trying to find a way to better manage my lupus. One of my...

I’ve been on Mycophenolate for over a decade but in recent years it’s less effec...

ShannonB

•2 years ago

4 Replies

Is this permanent?

Hi friends, I’ve now been off work for 8 weeks with chronic extertional breathlessness, still no diagnosis. It started with the flu (not COVID) and never went...

Hi friends, I’ve now been off work for 8 weeks with chronic extertional breathle...

MusicalFurbaby

•2 years ago

29 Replies

Offered spring booster - bit of a dilemma

I had Moderna as 1st booster (AZ for first 2 doses, no reaction whatsoever!) in mid December, had a bad reaction in the lymph nodes around breast and arm - not...

I had Moderna as 1st booster (AZ for first 2 doses, no reaction whatsoever!) in ...

flo_IarFachYrHaf

•2 years ago

32 Replies

LUPUS

Hi, I am new to this group. I have had low Thyroid, B12, Microvascular Angina (Arteries and heart clear) Chronic Urticaria, Angiodema and Fibromyalgia...

Hi, I am new to this group. I have had low Thyroid, B12, Microvascular Angina (A...

1STEP

•2 years ago

3 Replies

More successful time

Hey everyone, I just wanted to share how well things have been going with you all! You might remember I was struggling to find meds that worked for me. I've...

Hey everyone, I just wanted to share how well things have been going with you a...

LouLamb

•2 years ago

19 Replies

Lupus SLE and APS breathing issue

Hi I’m starting to piece together my lupus symptoms. I say piece together as with the fluctuations in levels and occurrences of symptoms I sometimes forget how...

Hi I’m starting to piece together my lupus symptoms. I say piece together as wit...

Bobbydoodle

•2 years ago

13 Replies

Sunscreen availability

LUPUS UK has recently received several reports from lupus patients who are unable to obtain sunscreen through their NHS prescription. The lack of sunscreen...

LUPUS UK has recently received several reports from lupus patients who are unabl...

Chanpreet_Walia

LUPUS UK•2 years ago

12 Replies

A fun pic

Hello Everyone I thought it time for a fun 'cutie pic' and ive needed cheering up this week. This great guy is from Bali and he takes six of his twenty rescue...

Hello Everyone I thought it time for a fun 'cutie pic' and ive needed cheering u...

misty14

•2 years ago

37 Replies

Medication and Rhutuximab

I was suppose to go on rhutuximab this week Friday, but I was given anti biotics so I had to change my appointment. I stopped my Mychophenolate for the...

I was suppose to go on rhutuximab this week Friday, but I was given anti biotics...

Turquoise1999

•2 years ago

2 Replies

Pain returned...

Hello, it's been awhile since I posted as my lupus / RA has been calm for years. Fairly recently my little finger swelled, followed by aching shoulders, elbows...

Hello, it's been awhile since I posted as my lupus / RA has been calm for years....

heatherose

•2 years ago

2 Replies

Is Lupus considered a disability

Hi I’ve been diagnosed with lupus SLE now for 12 years. I’m taking hydroxychloroquine now for past 5 years but started off with mexotrexate. So far it helps...

Hi I’ve been diagnosed with lupus SLE now for 12 years. I’m taking hydroxychloro...

myami

•2 years ago

3 Replies

Low potassium

Hi, my first positive appointment with new rheumatologist at new hospital! ANA is now 1:320 homogeneous Dsdna 13 which I’m guessing is normal awaiting some...

Hi, my first positive appointment with new rheumatologist at new hospital! ANA i...

Frenchfancy

•2 years ago

5 Replies

Lupus and Antibiotics

Hi, I have lupus SLE, I take daily Mychophenolate,steroids and hydroxychloroquine. When the GP gives you antibiotics should you stop your Mychophenolate as...

Hi, I have lupus SLE, I take daily Mychophenolate,steroids and hydroxychloroqu...

Turquoise1999

•2 years ago

10 Replies

Sad Times 😞

We lost our beautiful Brodie Bear two weeks ago. I haven’t posted about it because we have been trying to keep busy but we are truly heartbroken. He was only...

We lost our beautiful Brodie Bear two weeks ago. I haven’t posted about it becau...

CecilyParsley

•2 years ago

115 Replies

First sun holiday with lupus tumidus/Sjorgens

I have just returned from a ‘rolled over’ holiday ie booked before my diagnosis , so was apprehensive ! Trying to be positive I researched the best sun...

I have just returned from a ‘rolled over’ holiday ie booked before my diagnosis...

Dressgirl52

•2 years ago

4 Replies

What drugs help your sun sensitivity?

I was told after diagnosis that nothing could be done to help with this. I'm on hydroxychloroquine and I'm still extremely sensitive to the sun. What drugs...

I was told after diagnosis that nothing could be done to help with this. I'm on ...

Comeonpeeps

•2 years ago

30 Replies

N-acetylcysteine (NAC) and lupus related fatigue

Has anyone tried the above for fatigue? I am plagued with exhaustion, which is limiting my quality of life. I have read that NAC can help the fatigue which...

Has anyone tried the above for fatigue? I am plagued with exhaustion, which is ...

Ophelia1

•2 years ago

16 Replies

Do you live in the Harrogate area? Would you like to join the next meeting of our new support group - Tuesday 24th May at 1 p.m.?

If you would like to join us, please contact the group on harrogate.lupus@gmail.com or organpipe@icloud.com - everyone welcome.

If you would like to join us, please contact the group on harrogate.lupus@gmail....

Alida_Bennett

Partner•2 years ago

1 Reply

Transcutaneous Vagus Nerve Stimulation - TENS type machine

Hello all - I have read good things about the above for lupus related fatigue. Does anyone have any recommendations for a machine ? I know about the...

Hello all - I have read good things about the above for lupus related fatigue. ...

Ophelia1

•2 years ago

2 Replies

Have any Lupies in Wales got a good consultant? Frustrated that I can't go to my old Lupus clinic in England

I've been sitting on this for six months. I went to see a rheumatology consultant after moving to Wales. He said he couldn't believe I hadn't tried to come...

I've been sitting on this for six months. I went to see a rheumatology consulta...

kt11

•2 years ago

12 Replies

Toenail surgery with Raynaud's and Erythromelalgia

Hi, community. The sun is shining and the birds are singing, or in the case of the starlings, squabbling over the bird feeders. They are just like a bunch of...

Hi, community. The sun is shining and the birds are singing, or in the case of ...

skylark15

•2 years ago

10 Replies

Lupus symptoms

Hi does anyone on here with lupus suffer with their hearing momentarily shutting off and it like “ zoning out” first time it happened I was working out and I...

Hi does anyone on here with lupus suffer with their hearing momentarily shutting...

Sophiagracerosc

•2 years ago

2 Replies

Resonable adjustments, problems at work.

Could I please ask for an advice regarding resonable adjustments at work place. I am struggling with early mornings and at my job that I've been for 6 months...

Could I please ask for an advice regarding resonable adjustments at work place. ...

GeorgiaAny

•2 years ago

38 Replies

Sjogrens disease

Sjogens disease Has anybody suffered with wind and constipation.

Penbles64

•2 years ago

16 Replies

DO i have some sort of skin thing

I get these wierd spots on my hand every summer and they are very annoying, i used to itch them and when itched more would come but now im just trying to not...

I get these wierd spots on my hand every summer and they are very annoying, i us...

bigK250

•2 years ago

4 Replies

Eyes and ears

Hello fellow lupies I have pain around my right eye socket and base of right ear, where the canal goes into skull. Do any of you get this, if so do you know...

Hello fellow lupies I have pain around my right eye socket and base of right ea...

Ianflashdavies

•2 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2022

Video Game-Like Activities Help Improve Mental Functioning in Adults with Lupus

Anyone with a lupus specialist they love Surrey/Berkshire/West London?

Help Disabled people survive the cost of living crisis

Study looking into the effects of the COVID-19 vaccine in patients with autoimmune diseases

Methotrexate and Mycophenolate together?

Is this permanent?

Offered spring booster - bit of a dilemma

LUPUS

More successful time

Lupus SLE and APS breathing issue

Sunscreen availability

A fun pic

Medication and Rhutuximab

Pain returned...

Is Lupus considered a disability

Low potassium

Lupus and Antibiotics

Sad Times 😞

First sun holiday with lupus tumidus/Sjorgens

What drugs help your sun sensitivity?

N-acetylcysteine (NAC) and lupus related fatigue

Do you live in the Harrogate area? Would you like to join the next meeting of our new support group - Tuesday 24th May at 1 p.m.?

Transcutaneous Vagus Nerve Stimulation - TENS type machine

Have any Lupies in Wales got a good consultant? Frustrated that I can't go to my old Lupus clinic in England

Toenail surgery with Raynaud's and Erythromelalgia

Lupus symptoms

Resonable adjustments, problems at work.

Sjogrens disease

DO i have some sort of skin thing

Eyes and ears

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