Following on my 'pushed pillar to post' post. Have seen my GP who confirms I have an auto-immune response throughout my nervous system - inflammation in my CNS apparently but they don't know what. They found O bands in my spinal fluid which may/may not be MS (my neurologist had ruled it out after clear MRIs) and may/may not be Lupus - although the GP now says that it can't be lupus as my ANA test was only 'borderline' and not 'speckled'.
I mentioned 'sero-negative' connective tissue disease and Lupus again. The GP said it's 'early days to say it's anything' and to wait and see if I have another relapse. Which is laughable as I feel shocking as it is. I almost apologised to him that I wasn't limping today or that I wasn't in a wheelchair.
He actually said "What do you want to do now?"
So I asked for anti-inflammatories that don't make me ill and immuno-suppressants. He said no to the latter as I wasn't ill enough!
I asked for a referral to a rheumatologist but he said that it was probably a virus that kicked it all off and I was still recovering and leave it a while.
I didn't have the heart to insist (but now wishing I did) and just left.
Not sure why I'm writing all this, but not sure where else I should post.