Hi all just looking a bit of advice.. I'd love to go away on hols this year but obvs with my lupus the really sunny places r a no go.. Any decent places out there use have been? And ur lupus has been fine with it? My rhemo doc doesn't advice me to go 2 sun anywhere.. But guys I've been going through hell I just want a break !!
Ruth x
I have a very severe light allergy, really severe.
Still do sunny holidays but very careful.
You can still cover up in fine cotton, keep shaded as much as pos & be very careful of what creams used. Have to say I still suffer and have had to stay completely out of the sun most of the time but you can still enjoy the different environment.
X
I go on beach holidays too, I just stay covered head to toe when in sun. I bought swimming costume from sunsibility that covers almost my entire body, so I can go splash in the water for short periods where there is shade over the water. I tend to go to places where we can get a room with a deck/veranda at ground floor - this way my husband can sun himself on the beach few feet away from me and I can sit at the table under the cover doing crosswords or reading. Then in the evening I I can enjoy the atmosphere like everyone else without the burden of all those layers.
I tend to go on a short course of steroids while I'm away, just to be sure in case I get into rash etc. And before I go I get all the information about the local hospitals, how far they are from the hotel, whether they have A&E, etc. It makes me feel more in control if something happens.
I do city breaks in spring/autumn to avoid the hottest weather. I've been to places like Rome, New York, Paris etc with no problems. I ensure I take out travel insurance.
I wouldn't go on a hot / beach holiday as for me it's not worth taking the risk. I'm fit and well and want to keep things that way.
Holidays are great to get a change of scenery and forget about your troubles for a while. I hope you get away somewhere and have a wonderful time x
I was thinking of the following options; city break with lots of museums and galleries to swan around, a beach type holiday at a good resort in a good hotel with other facilities to allow you to have other indoor options, a local spa break in a really nice hotel.
Hi there ,I can relate to you..I'm expecting my 5th baby in July and really need a family break before I have the baby so can't wait..
I'm planning to go suadia Arabia in April.my rhumo doctor didn't advice me but iv asked around travel clinics and they were very helpful with giving advice on what vaccine I need to take? and how to keep myself clean?...etc..
I wear Islamic clothing anyway which covers me totally but iv decided not to go out when its too hot and lol may use a umbrella..
Hope iv been helpful..
Takecre xx
Dear Ruth,
I have SLE, ITP, MDS, Hypothyroid and Raynaud's. My hematologist encourages me to take vacations and live my life. There are no cures for what I have or what you have but you should not put your life on hold. I play tennis 4 days a week - I push! I live in Florida and that makes a world of difference. I no longer travel to cold climates. I bought Grabbers Hand Warmers as AC affects my hands and toes (Raynaud's). They do work! First thing I ask is that the AC be turned off in my cabin or room and just fresh air come in. I try and eat well even on vacation. My diet is limited because I take Coumadin and I cannot drink alcohol, but I've had all these diseases for 3 years and my husband and I take cruises often because they have a wondereful medical department. Make sure you take the best insurance policies and enjoy your life!!!!! You CAN do it!
Hi. I go on holidays 3 or 4 times a year short city breaks and we have been all over Europe and I usually feel great afterwards so go for it. Long cotton clothes, stay out of the mid day Sun 
and enjoy the lovely warm evenings. Go for it I believe that as we only live once and Lupus doesn't go away we need lots of nice things to enjoy including holidays. Don't forget insurance lol
I'm very sun sensitive but still like to holiday in sunny climes - I don't like it too hot thought, just warmer than here (I live in the North of England). I tend to cover up in loose long sleeve shirts and wear a hat. I went to Majorca last year and it was very hot (it wasn't my choice - it was work) and covered up the whole time. While everyone else was getting a suntan I was in the shade. I was fine though. I agree with juneybells above, we only live once, if you want a holiday go on one and try to relax.
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