Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,081 posts

All posts for February 2022

Lupus and stress

So, we are all fully aware that stress can be a major trigger for Lupus. However, I was wondering if anyone who has a naturally permanent stressful life has...

So, we are all fully aware that stress can be a major trigger for Lupus. However...

eescvc

•2 years ago

10 Replies

Rash

Does anybody experience this type of rash ..chest and arms affected no irritation whatsoever and its not raised at all..started a year or 2 ago..one small...

Does anybody experience this type of rash ..chest and arms affected no irritatio...

Lauramonty

•2 years ago

10 Replies

Coagucheck Test strips / INR

Hi, I am the new one here 😁. I have a question about Coagucheck test Strips for INR testing. I am sire that you heard that a lot and I am sorry if this is...

Hi, I am the new one here 😁. I have a question about Coagucheck test Strips for...

Christos89

•2 years ago

7 Replies

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It’s Monthly Mira Monday 🐶

Hi folks these months come round so quick , hope we all get abit of better weather in March. This week is a super cute pic of Mira, I can’t resist this girl,...

Hi folks these months come round so quick , hope we all get abit of better weath...

svfarmer

•2 years ago

22 Replies

Any recommendations?

I've got Lupus and secondary Sjogrens. Both of them have decided to flare up at the same time but thankfully, kind of mild? thus far such as swollen knee,...

I've got Lupus and secondary Sjogrens. Both of them have decided to flare up at ...

Amakura

•2 years ago

30 Replies

Imuran

How are users fairing on Imuran. I have just started it.

Goinglong10

•2 years ago

4 Replies

LUPUS UK responds to the Government plans for "Living with COVID-19"

Hi everyone, We've published a response to the Government plans for "Living with COVID-19" announced earlier this week. You can read more about the changes to...

Hi everyone, We've published a response to the Government plans for "Living with...

Paul_Howard

Partner•2 years ago

4 Replies

Breast cancer and Radiotherapy

I have Lupus/Sjogrens and unfortunately have been diagnosed with breast cancer. I’m currently undergoing chemotherapy first in order to try and reduce the...

I have Lupus/Sjogrens and unfortunately have been diagnosed with breast cancer. ...

Pms1888

•2 years ago

21 Replies

Pray for Ukraine

As I'm sure you're all aware the crisis/war in Ukraine has officially begun and they are being attacked from all sides, particularly from Belarus and taking...

As I'm sure you're all aware the crisis/war in Ukraine has officially begun and ...

LottieLou96

•2 years ago

18 Replies

Neutrophils

Hello,I have been on methotrexate for over ten years now and have intramuscular steroid injection when bad.My immune system has decided too attack my...

Hello,I have been on methotrexate for over ten years now and have intramuscular ...

4youreyesonly

•2 years ago

3 Replies

Has anyone found that IM steroid injection improved their brain fog, dizziness and fatigue as well as their joint pain?

I have been struggling with my lupus symptoms for several years now, and was formally diagnosed with lupus two years ago. I suffer with joint pain, mainly in...

I have been struggling with my lupus symptoms for several years now, and was for...

Ophelia1

•2 years ago

9 Replies

Pandemic television viewing

Frances Ryan of the Guardian is looking for people who have been shielding to tell her what they watched on TV during the last 2 years...

Frances Ryan of the Guardian is looking for people who have been shielding to te...

Cathyan

•2 years ago

15 Replies

Describing lupus to the unaware commoner

A young child.... What is lupus mommy? Well, lupus is latin for wolf. You see we are werewolves and your half werewolf. That's why I am tired sometimes after...

A young child.... What is lupus mommy? Well, lupus is latin for wolf. You see we...

LottieLou96

•2 years ago

17 Replies

Purple/blue hands with Raynaud's?

Hi all! Does anyone get acracyanosis, a blueish purple discoloration of whole hand/foot (like my pic) with their Raynaud's and Lupus? I think I get both! It's...

Hi all! Does anyone get acracyanosis, a blueish purple discoloration of whole ha...

Hidden

•2 years ago

17 Replies

Exciting news – we are starting a new Lupus Support Group in Harrogate!

The group is to be hosted by Cherry Bratkowski who is a long-time member of LUPUS UK and who was diagnosed with lupus in 1984 when she had just moved to...

The group is to be hosted by Cherry Bratkowski who is a long-time member of LUPU...

Alida_Bennett

Partner•2 years ago

4 Replies

4th booster

Had my 4th booster about a week ago (moderna) it has floored me. I have never felt so ill. Major flare, sleeping constantly and now tonsillitis just to add a...

Had my 4th booster about a week ago (moderna) it has floored me. I have never fe...

Kaziecat

•2 years ago

29 Replies

Doctor with long covid says government is in denial with new no restrictions plan!

https://news.sky.com/story/doctor-with-long-covid-who-suffered-violent-shakes-and-hallucinations-attacks-boris-johnsons-plan-to-end-all-coronavirus-rules-125433

https://news.sky.com/story/doctor-with-long-covid-who-suffered-violent-shakes-an...

Suvi8901

•2 years ago

3 Replies

Lupus and breast cancer

I've had Lupus for over 30years and very recently been diagnosed with Lobular breast cancer. There is a family history. I've had a mobile lump for many years...

I've had Lupus for over 30years and very recently been diagnosed with Lobular br...

Doreen2014

•2 years ago

36 Replies

Third shot side-effects.

I wasn't very fond of the getting the third COVID shot but my nephrologist slid a concern in me while I doubted if I should get it or not because I thought...

I wasn't very fond of the getting the third COVID shot but my nephrologist slid ...

Bunnzillah

•2 years ago

7 Replies

A bit of a nightmare going on still.. what to do?

Heya there fellow Lupies, I'm facing a wee bit of a loss at the moment with my neurologist. Anyone that read my first post knows my story of lupus and my...

Heya there fellow Lupies, I'm facing a wee bit of a loss at the moment with my n...

LottieLou96

•2 years ago

17 Replies

Access to work and ucd

Hi all, I wanted to know If anyone here has successfully claimed taxis to and from work through access to work there is the odd occasion that my flare ups get...

Hi all, I wanted to know If anyone here has successfully claimed taxis to and f...

BDG_2018

•2 years ago

4 Replies

Op-Ed on being immunocompromised in the UK

Thought you all might like to see this, which I wrote this week to try to help share our story on living with Covid while immunocompromised...

Thought you all might like to see this, which I wrote this week to try to help s...

ShannonB

•2 years ago

26 Replies

Charity Coalition recommends 5 Tests for Government's "Living with COVID-19" Plan

Hi everyone, Next week, the UK government will announce its "Plan for Living with COVID-19". Together with 17 other charities, LUPUS UK has developed a set of...

Hi everyone, Next week, the UK government will announce its "Plan for Living wit...

Paul_Howard

Partner•2 years ago

4 Replies

An Unusual Wedding Guest

Hello everyone Its 'cutie pic ' time again, the fortnight went fast didnt it?. Ive chosen this fun one as this couple are vets and they met on a tortoise...

Hello everyone Its 'cutie pic ' time again, the fortnight went fast didnt it?. ...

misty14

•2 years ago

90 Replies

Meltdown

Hi lovely people. I hope that you are all as well as you can be and staying safe and warm in this awful weather. I have been quiet because life has been...

Hi lovely people. I hope that you are all as well as you can be and staying safe...

CecilyParsley

•2 years ago

104 Replies

Rituximab or Leflunomide

Having stopped rituximab in October after being informed there was no immunity for patients on it, I started leflunomide in the meantime until I got all my...

Having stopped rituximab in October after being informed there was no immunity f...

Maverick77

•2 years ago

19 Replies

Potential Biomarkers Identified for Neuropsychiatric Symptoms of Lupus

Another great research 😉: Date: February 9, 2022 Source: University of Houston Summary: An expert in autoimmune diseases and systemic lupus erythematosus...

Another great research 😉: Date: February 9, 2022 Source: University of Housto...

Naladog

•2 years ago

2 Replies

Lupus Nephritis and Cyclophosphamide

Hi all, This is my first post here although I've been on this forum for a while. I'm 23 and got diagnosed with SLE and lupus nephritis a year ago in March....

Hi all, This is my first post here although I've been on this forum for a whil...

CPower

•2 years ago

12 Replies

Share your story for Rare Disease Day (deadline 23rd Feb)

Rare Disease Day takes place on 28th February, raising awareness and generating change for the 300 million people worldwide living with a rare disease. If you...

Rare Disease Day takes place on 28th February, raising awareness and generating ...

Chanpreet_Walia

LUPUS UK•2 years ago

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Friendship groups

I’m feeling really lonely , any lupus groups in Lancashire , around Lancaster or nearby . Thank you 😊

I’m feeling really lonely , any lupus groups in Lancashire , around Lancaster or...

Melaxx

•2 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2022

Lupus and stress

Rash

Coagucheck Test strips / INR

It’s Monthly Mira Monday 🐶

Any recommendations?

Imuran

LUPUS UK responds to the Government plans for "Living with COVID-19"

Breast cancer and Radiotherapy

Pray for Ukraine

Neutrophils

Has anyone found that IM steroid injection improved their brain fog, dizziness and fatigue as well as their joint pain?

Pandemic television viewing

Describing lupus to the unaware commoner

Purple/blue hands with Raynaud's?

Exciting news – we are starting a new Lupus Support Group in Harrogate!

4th booster

Doctor with long covid says government is in denial with new no restrictions plan!

Lupus and breast cancer

Third shot side-effects.

A bit of a nightmare going on still.. what to do?

Access to work and ucd

Op-Ed on being immunocompromised in the UK

Charity Coalition recommends 5 Tests for Government's "Living with COVID-19" Plan

An Unusual Wedding Guest

Meltdown

Rituximab or Leflunomide

Potential Biomarkers Identified for Neuropsychiatric Symptoms of Lupus

Lupus Nephritis and Cyclophosphamide

Share your story for Rare Disease Day (deadline 23rd Feb)

Friendship groups

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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