Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,687 members • 28,070 posts

All posts for April 2020

Falling and dropping things with lupus?

I am seronegative SLE, aged 49 and diagnosed at age 12. I take hydroxcloriquine, prednisolone and mycophenolste as well as ikervis/ciclosprine eye drops. I...

I am seronegative SLE, aged 49 and diagnosed at age 12. I take hydroxcloriquine,...

ShannonB

•4 years ago

4 Replies

Mushrooms!

I've read that mushrooms might trigger flares for lupus patients. How accurate is this theory? This wasn't a concern for me previously as I've never really...

I've read that mushrooms might trigger flares for lupus patients. How accurate i...

SurferGuy

•4 years ago

27 Replies

Cute Puppy 🐶 alert 🚨

Bea,s puppies 🐶 are now 3 weeks old and started on solids today - that was a very messy affair 😂

Bea,s puppies 🐶 are now 3 weeks old and started on solids today - that was a ve...

svfarmer

•4 years ago

18 Replies

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Rash worse in heat?

Hi all. I posted on here a few days ago but just want some further advice if people don't mind., I'm from Scotland, and am a female of 26. I have all the...

Hi all. I posted on here a few days ago but just want some further advice if p...

RhiannonT

•4 years ago

1 Reply

Our COVID Voices - Share your experiences for this new project by National Voices

Hi everyone, National Voices (an umbrella organisation for 150 health charities) has created a new project, 'Our COVID Voices', a website that makes it easy...

Hi everyone, National Voices (an umbrella organisation for 150 health charities)...

Paul_Howard

Partner•4 years ago

1 Reply

Is lupus an “underlying condition “ for increased risk of covid-19?

A few lupus patients have had either a letter or text to say they are at special risk as they they have an underlying condition. Some lupus patients haven’t....

A few lupus patients have had either a letter or text to say they are at special...

ferhana

•4 years ago

3 Replies

Tests

If I have a negative test for sle but alot of symptoms and already have discoid what can I do as I've seen this with alot of people it's taken years to be...

If I have a negative test for sle but alot of symptoms and already have discoid ...

Pmeh

•4 years ago

8 Replies

B12 injections

Hi everyone has anyone had problems recieving their b12 injections i currently have them every three months due to pernicious anemia and have waited 2 weeks...

Hi everyone has anyone had problems recieving their b12 injections i currently h...

Emylou

•4 years ago

33 Replies

Think I've been told off by GP. lol.

Had to phone GP this morning as I'm having a bit of a problem with the chest, wasn't sure if it's the Asthma or other lung problems or the Arrythmias as both...

Had to phone GP this morning as I'm having a bit of a problem with the chest, wa...

Boudica1

•4 years ago

30 Replies

Hello to all! Potential lupus diagnosis coming my way.

Hi there 👋 So pleased to be joining this lovely online community. I was diagnosed with M.E. originally in 2012 but had bloods taken in February this year...

Hi there 👋 So pleased to be joining this lovely online community. I was diagno...

Haubrey1

•4 years ago

10 Replies

I got free resources now for my corona visualisation website!

Digital Ocean is granting me free resources to provide these visualisations to the public! (https://www.digitalocean.com/community/pages/covid-19.) And they...

Digital Ocean is granting me free resources to provide these visualisations to t...

tree_shadow

•4 years ago

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Coronavirus: New antibody test 'with 99 per cent accuracy' approved for use across Europe* - an IgG test

'Positivity for anti-double stranded DNA (anti-dsDNA) IgG antibody is a diagnostic criterion of systemic lupus erythematosus (SLE).' ...from a random Google...

'Positivity for anti-double stranded DNA (anti-dsDNA) IgG antibody is a diagnost...

eekt

•4 years ago

35 Replies

Bad taste

I think it’s just look of the draw with me with what brand the chemist gives me .

I think it’s just look of the draw with me with what brand the chemist gives me ...

Willow1414

•4 years ago

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Support for people affected by COVID-19 - UPDATED (29/04/2020)

Hi everyone, I've just published a major update to our article about available support during the coronavirus pandemic -...

Hi everyone, I've just published a major update to our article about available s...

Paul_Howard

Partner•4 years ago

4 Replies

Apparently our Cat has Coronavirus, According to my 6 yr old son. This is boo in hospital (at home) 😂

Thought this could cheer some of you up as it did me. Coronavirus is something we do not fear in our home so my son isn’t overwhelmed with fear or worry. He...

Thought this could cheer some of you up as it did me. Coronavirus is something...

Lisalou19

•4 years ago

25 Replies

Despite the dark clouds, there is beauty

Morning all, I don’t know about you but I feel that there has been a change in the tempo of life in the past 3 days, almost as if we are beginning to...

Morning all, I don’t know about you but I feel that there has been a change in ...

Ieuann133

•4 years ago

6 Replies

REGISTERED ONLINE AS VULNERABLE? Royal Voluntary Service service for those of us who did is now running for help with shopping and meds....

If you registered online as vulnerable, this is one of the key services you effectively signed up for. The RVS has vetted the hundreds of thousands of...

If you registered online as vulnerable, this is one of the key services you effe...

PMRpro

•4 years ago

1 Reply

Blackbird chicks

3 so far but mum has been sitting on them a lot so might be more as blackbirds usually have 5

3 so far but mum has been sitting on them a lot so might be more as blackbirds u...

suzannah16

•4 years ago

20 Replies

COVID-19 and UK Hydroxychloroquine Supply (UPDATED 28/04/2020)

Hi everyone, We've just published updates to our article at https://www.lupusuk.org.uk/covid19-hydroxychloroquine/ The highlight of this update is that...

Hi everyone, We've just published updates to our article at https://www.lupusuk...

Paul_Howard

Partner•4 years ago

Be the first to reply

Show us your butterflies for World Lupus Day!

Hi everyone, World Lupus Day is on Sunday 10th May 2020. Unfortunately, due to the COVID-19 pandemic, many of our plans to use this day to raise awareness and...

Hi everyone, World Lupus Day is on Sunday 10th May 2020. Unfortunately, due to t...

Paul_Howard

Partner•4 years ago

13 Replies

Who Stole all the Nuts?

This is one of the squirrel visitors and is bolder than the rest which is how I got so close. I left a small apple for him and he carried it off whole and ran...

This is one of the squirrel visitors and is bolder than the rest which is how I ...

Tykle

•4 years ago

16 Replies

Could there be four chicks?

As it is forecast to rain tomorrow hubby and I went to assess how visible the nest is from the lane so he could put up a second screen before the chick’s eyes...

As it is forecast to rain tomorrow hubby and I went to assess how visible the ne...

Spotty-ewe

•4 years ago

49 Replies

Daily Visitors

I've just found out how to post photos so here are Mr & Mrs Duck posing by the pond. I like to think they're being friendly and liking my garden but as they...

I've just found out how to post photos so here are Mr & Mrs Duck posing by the p...

Tykle

•4 years ago

14 Replies

Update on our dear Lupiknits

Lupiknits hasn’t been feeling too well ( not covid) but will return when she feels up to it. She is getting through it with the support of her wonderful gp and...

Lupiknits hasn’t been feeling too well ( not covid) but will return when she fee...

GlasgowHen

•4 years ago

16 Replies

Triplets arrived!

I thought I’d check on how the Dunnocks were doing in the hawthorn hedge this evening and look what I found!! Three hungry little mites! I ran for my iPad...

I thought I’d check on how the Dunnocks were doing in the hawthorn hedge this ev...

Spotty-ewe

•4 years ago

38 Replies

Financial help during covid19 when shielding

Does anyone know of any financial help that is around for people who aren’t working with this covid19? My partner can’t work as I’m shielding but he is self...

Does anyone know of any financial help that is around for people who aren’t work...

Stacy2310

•4 years ago

4 Replies

Shielding letter and gov most vulnerable registration

Hi. II have had two shielding letters, (one from my consultant and one from my GP.) I have tried to register online and then rang the number to register....

Hi. II have had two shielding letters, (one from my consultant and one from my ...

lss253

•4 years ago

2 Replies

RAIRDA Survey - Please spare a few minutes to complete it

Hi everyone, The Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA) has just launched a new online survey to make sure that the views and experiences of...

Hi everyone, The Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA) has just l...

Paul_Howard

Partner•4 years ago

20 Replies

Hydroxycloroquine again.......

In your experience how long do you need to take hydroxycloroquine to know if it works , or know for sure that it is not working? I have seen some posts...

In your experience how long do you need to take hydroxycloroquine to know if it ...

SashaT64

•4 years ago

11 Replies

Still pain free but ......

Hi all, I know we are all feeling low looking at 4 walls 24 hrs a day. I’m enjoying my hobbies but not the Weather.... I’m using all the creams, sun factor,...

Hi all, I know we are all feeling low looking at 4 walls 24 hrs a day. I’m enjo...

Teanna

•4 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2020

Falling and dropping things with lupus?

Mushrooms!

Cute Puppy 🐶 alert 🚨

Rash worse in heat?

Our COVID Voices - Share your experiences for this new project by National Voices

Is lupus an “underlying condition “ for increased risk of covid-19?

Tests

B12 injections

Think I've been told off by GP. lol.

Hello to all! Potential lupus diagnosis coming my way.

I got free resources now for my corona visualisation website!

Coronavirus: New antibody test 'with 99 per cent accuracy' approved for use across Europe* - an IgG test

Bad taste

Support for people affected by COVID-19 - UPDATED (29/04/2020)

Apparently our Cat has Coronavirus, According to my 6 yr old son. This is boo in hospital (at home) 😂

Despite the dark clouds, there is beauty

REGISTERED ONLINE AS VULNERABLE? Royal Voluntary Service service for those of us who did is now running for help with shopping and meds....

Blackbird chicks

COVID-19 and UK Hydroxychloroquine Supply (UPDATED 28/04/2020)

Show us your butterflies for World Lupus Day!

Who Stole all the Nuts?

Could there be four chicks?

Daily Visitors

Update on our dear Lupiknits

Triplets arrived!

Financial help during covid19 when shielding

Shielding letter and gov most vulnerable registration

RAIRDA Survey - Please spare a few minutes to complete it

Hydroxycloroquine again.......

Still pain free but ......

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