Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,690 members • 28,072 posts

All posts for September 2015

Could I have Lupus

I'm 53 w/f, I have chronic kidney disease, pericardial effusion, blocked arteries, my hair is falling out and now I have a severe rash around my eyes and on my...

I'm 53 w/f, I have chronic kidney disease, pericardial effusion, blocked arterie...

SisterSusie96

•9 years ago

5 Replies

Influenza (flu) vaccinations in lupus

Updated 22/08/2018 Flu season is upon us once again. To answer any questions you may have about the influenza vaccine Sue Brown (formerly lead...

Updated 22/08/2018 Flu season is upon us once again. To answer any questions you...

Paul_Howard

Partner•9 years ago

22 Replies

Emotional Wreck!

Does anyone else lose all control of their emotion's when your starting a flare or in a flare? I cry unable to control myself, to the point where I'm sobbing....

Does anyone else lose all control of their emotion's when your starting a flare...

smudge1980

•9 years ago

16 Replies

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B12 vits😉

Hi I'm new to this site! and would like help going bk in June I had blood test done it come bk my levels of b12 was 182 #low they put me on 50mg of tablets and...

Hi I'm new to this site! and would like help going bk in June I had blood test d...

emziee

•9 years ago

18 Replies

Meeting with HR and my team leader

Hi all Hope everyone is well. Im just after a bit of advice about my working hours and how I approach a meeting I have. So I started my new job in January,...

Hi all Hope everyone is well. Im just after a bit of advice about my working ho...

natal1a

•9 years ago

2 Replies

Help! ...

Hi, I jumped over her from the PA society page.I was diagnosed with b12 deficiency in March this year,and am being treated. My doctor never said anything,but...

Hi, I jumped over her from the PA society page.I was diagnosed with b12 deficien...

patmackfin

•9 years ago

1 Reply

Tapering prednisilone

Hi everyone. Currently trying to taper off prednisilone completely after being given rituximab. Doing 1/2 mg a month as I suffer badly with side effects. Just...

Hi everyone. Currently trying to taper off prednisilone completely after being g...

joannebond360

•9 years ago

15 Replies

Inform PIP of changes to Illness

I have been recently diagnosed with Vertigo, do I inform DWP of this illness as I am scared in case I have to start from scratch with them as this has happened...

I have been recently diagnosed with Vertigo, do I inform DWP of this illness as ...

Loraine14

•9 years ago

7 Replies

Can anyone help please, I've included a picture, I call it my collapsed hip.

Hi there sorry the picture isn't great, I call this my collapsed hip ?. As you can see it's collapsed in ? I suffer from M.E, Fibromyalgia and CFS but I think...

Hi there sorry the picture isn't great, I call this my collapsed hip ?. As you c...

Jacqueline_J

•9 years ago

2 Replies

Why am I hungry all the time?

For some reason I am hungry all the time. I am not overweight or anything and I get plenty of exercise and I sleep 8 hours a day. I get lots of vegetables and...

For some reason I am hungry all the time. I am not overweight or anything and I ...

The_VIP_Gentleman

•9 years ago

11 Replies

2 great dryness/sjogrens treatments now available by NHS prescription

Hello all. Just found out that 2 OTCs my NHS consultants have specified in my eye clinic & gyn treatment plans are now going to be available on the NHS: MGD...

Hello all. Just found out that 2 OTCs my NHS consultants have specified in my e...

Barnclown

•9 years ago

19 Replies

It's won again!

Well I've just had to ring in sick. I've been trying to keep going but the extra days for courses and the fact that it's so busy at work and I never finish on...

Well I've just had to ring in sick. I've been trying to keep going but the extr...

Whathappned

•9 years ago

7 Replies

Sick of hearing "grateful for sun"

Went the races yesterday ....weather was beautiful ...got a couple of wins ....but was so frustrated at lack of seating...my friends were understanding, I...

Went the races yesterday ....weather was beautiful ...got a couple of wins ....b...

Gill_35

•9 years ago

9 Replies

The dog ate my Azathioprine

Whilst I was sorting my medication out this morning I accidentally dropped one Azathioprine tablet and the dog got to it first. Anyone want to know what it...

Whilst I was sorting my medication out this morning I accidentally dropped one A...

MargaretGail

•9 years ago

6 Replies

Moral dilemma

Ok so I have a bit of a dilemma at the moment. I still have no firm diagnosis of anything really and am still reeling from the latest hospital stay and the...

Ok so I have a bit of a dilemma at the moment. I still have no firm diagnosis of...

Hidden

•9 years ago

34 Replies

I want to retire due to ill health

Hi everyone, I have come to the conclusion that working full time is very stressful and exasperated my condition, continually causing lupus to flare. my...

Hi everyone, I have come to the conclusion that working full time is very stress...

Glen1

•9 years ago

12 Replies

Apologising for being sick!

I don't know if this has happened to any of you? I had a rough night with chest pain, neck pain, tinnitus, headache, shoulder and arm pain, sweats and vertigo!...

I don't know if this has happened to any of you? I had a rough night with chest ...

Pipido36

•9 years ago

6 Replies

Feet and hands killing me

Hi, just wondering if anyone has or is suffering from corns ulcers and hard skin on there feet and hands and if this may have something to do with the Lupus...

Hi, just wondering if anyone has or is suffering from corns ulcers and hard skin...

Bluebud

•9 years ago

1 Reply

Twitching eye

Hi All I have been reading this great site for a few months. I am in the process of a Lupus diagnosis having first being diagnosed with GCA/PMR. I take Pred...

Hi All I have been reading this great site for a few months. I am in the proces...

Claire12

•9 years ago

16 Replies

Nasal sores

For weeks my poor nose has been so sore.i appear to have a sore on the lining of my nose.my nose has also felt very dry.any suggestions please

For weeks my poor nose has been so sore.i appear to have a sore on the lining of...

amandajane76

•9 years ago

12 Replies

New to auto immune and a bit in awe of everyone's stories.

Misscarraiges ×3 in my twenties now fifty three. Rashes on and off for years.unbelievable fatigue on and off. Felt really sick for last six years started going...

Misscarraiges ×3 in my twenties now fifty three. Rashes on and off for years.unb...

Circles

•9 years ago

8 Replies

"But you look so well, why are you on steroids?!"

Hello all: I had that question come down the phone the other day from one of my oldest, best friends who is more like a brother (& his wife is like a sister)....

Hello all: I had that question come down the phone the other day from one of my ...

Barnclown

•9 years ago

61 Replies

GOOD NEWS . Just been told by cardiologist that I no longer Heart Problems , Angina after my heart attack and stroke in 2009 .

Who could have guessed that angina , heart spasms, were curable. just been given full bill of health by cardiologist and no longer have these problems but...

Who could have guessed that angina , heart spasms, were curable. just been given...

BARTLETT27

•9 years ago

7 Replies

Breathless, annoyed and getting nowhere! Any advice appreciated ? COPD

Hi guys, hope you are all well I need some advice as I am getting the serious run around! Better explain. I have been having problems with breathlessness for...

Hi guys, hope you are all well I need some advice as I am getting the serious r...

esky

•9 years ago

16 Replies

Lupus and TIAs

Hi could anyone explain why lupus would cause a Tia? Or stroke? Is it to do with clotting factors and aps or other factors? Thank u in advance

Hi could anyone explain why lupus would cause a Tia? Or stroke? Is it to do wit...

poodlegal

•9 years ago

6 Replies

Zentiva and Plaquenil

Hello, I'm new to this forum/community and have joined to see if anyone can be more knowledgable than my doctors about the Plaquenil/Zentiva change!!?? Just...

Hello, I'm new to this forum/community and have joined to see if anyone can be m...

SarahLuna

•9 years ago

17 Replies

No one will diagnose SLE and need some help

Hello, I hope some of you can help. My partner suffers from all the major symptons of lupus (SLE) adn is curretnyl suffereing a 'flare'. She has had her...

Hello, I hope some of you can help. My partner suffers from all the major sympto...

christracey

•9 years ago

7 Replies

Biopsy inguinal glands

Hi all, I went for an ultrasound scan to Manchester Royal Infirmary last Thursday on my groin area. For five years now on and off (yes, five years I kid you...

Hi all, I went for an ultrasound scan to Manchester Royal Infirmary last Thursda...

bestbuddy

•9 years ago

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Sinus pain

Hi, I'm just had a sinus flare up now and the pain is horrendous because it's so severe. People who haven't experienced sinusitis don't realise how painful it...

Hi, I'm just had a sinus flare up now and the pain is horrendous because it's s...

margarita2030

•9 years ago

6 Replies

Eye ointment for sjogren's syndrome?

Hello, I use Hylo-forte during the day for dry eyes & Lacri-lube at night both prescribed by my doctor. I am struggling with the Lacri-lube as it is fiddly to...

Hello, I use Hylo-forte during the day for dry eyes & Lacri-lube at night both p...

Whatamess2

•9 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2015

Could I have Lupus

Influenza (flu) vaccinations in lupus

Emotional Wreck!

B12 vits😉

Meeting with HR and my team leader

Help! ...

Tapering prednisilone

Inform PIP of changes to Illness

Can anyone help please, I've included a picture, I call it my collapsed hip.

Why am I hungry all the time?

2 great dryness/sjogrens treatments now available by NHS prescription

It's won again!

Sick of hearing "grateful for sun"

The dog ate my Azathioprine

Moral dilemma

I want to retire due to ill health

Apologising for being sick!

Feet and hands killing me

Twitching eye

Nasal sores

New to auto immune and a bit in awe of everyone's stories.

"But you look so well, why are you on steroids?!"

GOOD NEWS . Just been told by cardiologist that I no longer Heart Problems , Angina after my heart attack and stroke in 2009 .

Breathless, annoyed and getting nowhere! Any advice appreciated ? COPD

Lupus and TIAs

Zentiva and Plaquenil

No one will diagnose SLE and need some help

Biopsy inguinal glands

Sinus pain

Eye ointment for sjogren's syndrome?

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