Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,072 members • 28,394 posts

All posts for August 2024

Breast cancer and UCTD

Has anyone had breast cancer and ctd???I have just had mastectomy early stage BC No positive nodes so no further treatment apart from aromatase inhibitors. No...

Has anyone had breast cancer and ctd???I have just had mastectomy early stage BC...

Narni21

•23 hours ago

3 Replies

Securing Travel Insurance Nightmare

Hey everyone Hope all is well Has anyone experienced difficulty securing travel insurance that was not the price of a brand new Mercedes? Okay, slight...

Hey everyone Hope all is well Has anyone experienced difficulty securing trave...

Amakura

•1 day ago

7 Replies

Pity Post

Hi lovely Lupies, Be warned this is a pity post. I am despairing and need your advice please. As you know I had the nasal surgery in February which went well...

Hi lovely Lupies, Be warned this is a pity post. I am despairing and need your ...

CecilyParsley

•2 days ago

68 Replies

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Telephone Consultation Results of:

So, I have just finished my phone consultation. I had my list of questions which I wasn't able to put over to the Consultant without being accused of being...

So, I have just finished my phone consultation. I had my list of questions whic...

CavendishCool

•2 days ago

25 Replies

How long to get Lupus under control

I wonder if any of you who have been living with Lupus for a while can tell me once diagnosed, how long did it take the consultants to get the meds right to...

I wonder if any of you who have been living with Lupus for a while can tell me o...

smeackles

•2 days ago

14 Replies

Rib Pain - second opinion

Hi Lovely People Been a lot about rib pain on here recently. Whilst only got diagnosed with UCTD a few months ago, I found the posts very interesting because...

Hi Lovely People Been a lot about rib pain on here recently. Whilst only got di...

RainKing

•3 days ago

1 Reply

Telephone Consultation

I have a telephone consultation with the Cardio team this Thursday, my first one. I have had a 24 hour heart monitor, an ECG and a chest x-ray all of which...

I have a telephone consultation with the Cardio team this Thursday, my first on...

CavendishCool

•5 days ago

16 Replies

Lupus and Sjogrens issue

Has anybody ever had issues with lupus/sjogrens in their ears? I caught a cold and mucus has settled in my Eustachian tubes or something and they have been...

Has anybody ever had issues with lupus/sjogrens in their ears? I caught a cold ...

Nanosaint

•8 days ago

24 Replies

Lupus connected to Radiation

I recently read an article where someone felt that Lupus was connected to radiation exposure. Around 1989 I had a full radiation treatment for breast cancer....

I recently read an article where someone felt that Lupus was connected to radiat...

DogHospiceMom

•8 days ago

3 Replies

New to England with Partner having Lupus

Hi We are new to England and expecting new lives here. Meanwhile we are exploring what kind of supports, services, resources available here in NHS,...

Hi We are new to England and expecting new lives here. Meanwhile we are expl...

DLau

•8 days ago

5 Replies

hydroxychloroquine

hello .. this is an odd one .. I have always taken Zenvita brand but could t get the one recently and two brands tried have a dreadful aftertaste that makes me...

hello .. this is an odd one .. I have always taken Zenvita brand but could t get...

Dressgirl52

•8 days ago

6 Replies

has anyone got Lupus in their eyes?

I have been told I have Lupus in my eyes. Does anyone else have this? Thank you

I have been told I have Lupus in my eyes. Does anyone else have this? Thank you...

drobbie

•9 days ago

17 Replies

does anyone know where to find a flexible job suitable for people with SLE?

Hello everyone, I hope you all are doing good during this days, I wanted to ask if any of you have ever had to think seriously about getting a new job...

Hello everyone, I hope you all are doing good during this days, I wanted to as...

Da_vinci

•10 days ago

58 Replies

Severe bloating and chest pain

So for sometime now I have been battling with an unbearable pain in my stomach and chest which goes through to my back. This is a excruciating pain that makes...

So for sometime now I have been battling with an unbearable pain in my stomach a...

Konsi

•11 days ago

5 Replies

blackouts

I have Lupus and APS it’s all under control with steroids and warfarin. I’m trying to lose weight so am going to aqua fit more often. I quite often get giddy...

I have Lupus and APS it’s all under control with steroids and warfarin. I’m tryi...

Jolevans

•12 days ago

10 Replies

High white blood cells

Hi I just noticed on all my last blood work I keep having high white blood cell count this is going back on a few different occasions any ideas? I haven't had...

Hi I just noticed on all my last blood work I keep having high white blood cell ...

DonnaD123

•13 days ago

8 Replies

Protein c protein s

Hi I have a question looking back over all my blood tests I've gone back years lol my protein c and s have always been slightly elevated anyone found this?

Hi I have a question looking back over all my blood tests I've gone back years l...

DonnaD123

•13 days ago

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Prednisone, hormonal imbalance & TTC

Hi, I'm reaching out to this wonderful community for some support. I am a 33-yo woman, diagnosed with Lupus Dec ´22. I experienced no lupus symptoms (apart...

Hi, I'm reaching out to this wonderful community for some support. I am a 33-yo...

Shelly1919

•14 days ago

7 Replies

Urgent review

Hi I attended rheumatology about 12 weeks ago and had lots of blood tests I have now received a letter for an urgent review is this normal?

Hi I attended rheumatology about 12 weeks ago and had lots of blood tests I have...

DonnaD123

•14 days ago

5 Replies

Surgery and more surgery!

Hi guys, hope you’re all doing OK. So I had surgery nearly 5 months ago on my stomach, and since then I’ve had terrible pain in my shoulder. It aches, throbs...

Hi guys, hope you’re all doing OK. So I had surgery nearly 5 months ago on my ...

MusicalFurbaby

•14 days ago

12 Replies

I have a question.

Does anyone's rheumatologist order a CRP HS blood test? I heard of CRP, but not this one. Is it solely for heart disease, or something to do with other...

Does anyone's rheumatologist order a CRP HS blood test? I heard of CRP, but not ...

Willow7733

•15 days ago

1 Reply

Upcoming operation

I’m scheduled to have LINX surgery in 4 weeks to try and fix my lower oesophageal sphincter as my gastro surgeon believes the reflux is contributing to some...

I’m scheduled to have LINX surgery in 4 weeks to try and fix my lower oesophagea...

Alexia01

•15 days ago

3 Replies

Fluid on Lung

Hi All, I started having a pain on my right side under the ribs, about 2 month ago.I was wondering if I'd got gallstones and the dull ache wouldn't go away!...

Hi All, I started having a pain on my right side under the ribs, about 2 month ...

steve61

•15 days ago

12 Replies

Colonoscopy update and thanks

Well I survived! I had sedation and it didn't hurt at all. I agree the worst part was the prep - both the drinking of the foul tasting stuff and the effect it...

Well I survived! I had sedation and it didn't hurt at all. I agree the worst par...

lupime

•16 days ago

15 Replies

Has anyone asked GP for antiviral covid meds to take as precaution when travelling abroad?

Hi everyone Ive booked a week long holiday to Spain, the first holiday abroad in 4 years. Im defo going to prepare with my usual meds but Im just worried...

Hi everyone Ive booked a week long holiday to Spain, the first holiday abroad i...

Shann07

•16 days ago

19 Replies

Anyone awake?

11 minutes past midnight here in the UK.

IsleofWight1

•17 days ago

4 Replies

pip review form

would anyone have a copy of pip review form in lupus magazine as I find it so stressful filling in the review form I don’t know where to begin or how to word...

would anyone have a copy of pip review form in lupus magazine as I find it so st...

Lupud

•17 days ago

2 Replies

methotrexate

hi all I have been on hydrochloraquine twice daily for a while now which I have seen no benefits. If anything I am way more fatigued and my pain is worse....

hi all I have been on hydrochloraquine twice daily for a while now which I have...

JLAR01

•17 days ago

5 Replies

Feelings of disappointment

With having Lupus and a few other conditions, being on steroids and suffering from anxiety and depression, not having a job or voluntary job, I find that I...

With having Lupus and a few other conditions, being on steroids and suffering fr...

LilyMistri2

•18 days ago

13 Replies

Mepacrine

Hi all im back here again 🙄 long story short im taking mepcarine 100mg for five days aweek started in mrach after a flare. So been taking 4 four months. This...

Hi all im back here again 🙄 long story short im taking mepcarine 100mg for five...

Flows

•18 days ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2024

Breast cancer and UCTD

Securing Travel Insurance Nightmare

Pity Post

Telephone Consultation Results of:

How long to get Lupus under control

Rib Pain - second opinion

Telephone Consultation

Lupus and Sjogrens issue

Lupus connected to Radiation

New to England with Partner having Lupus

hydroxychloroquine

has anyone got Lupus in their eyes?

does anyone know where to find a flexible job suitable for people with SLE?

Severe bloating and chest pain

blackouts

High white blood cells

Protein c protein s

Prednisone, hormonal imbalance & TTC

Urgent review

Surgery and more surgery!

I have a question.

Upcoming operation

Fluid on Lung

Colonoscopy update and thanks

Has anyone asked GP for antiviral covid meds to take as precaution when travelling abroad?

Anyone awake?

pip review form

methotrexate

Feelings of disappointment

Mepacrine

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