Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,678 members • 28,064 posts

All posts for November 2018

Trying to figure out what autoimmune disorders I have

Hello everyone, my first ANA came back positive... My GP just did another one and it was negative, but my c-3 and c-4 levels has gone up... Any way I’m have...

Hello everyone, my first ANA came back positive... My GP just did another one an...

Mary_Stidham1961

•5 years ago

1 Reply

Be Careful What you Hope for!

Anyone following my problems with urinary incontinence will remember that I was really pleased to find the NHS will supply the Tena Ladies I have been buying...

Anyone following my problems with urinary incontinence will remember that I was ...

Lupiknits

•5 years ago

13 Replies

Congratulations to Sarah from the UK for winning LUPUS EUROPE's wordcloud competition

We'd like to congratulate Sarah Woods from the UK for winning LUPUS EUROPE's wordcloud competition with this beautiful artwork. You can read Sarah's story and...

We'd like to congratulate Sarah Woods from the UK for winning LUPUS EUROPE's wor...

Paul_Howard

Partner•5 years ago

10 Replies

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Influence of stress on lupus?

I was doing really well with my pain for at least two weeks. Then I have an out of state visit with my family, which was horribly stressful. The next evening,...

I was doing really well with my pain for at least two weeks. Then I have an out ...

jenniann

•5 years ago

9 Replies

Pacing

Hey guys, I just wanted to ask how you lot pace yourself through out the day and week ? At the moment I’m reducing steroids and are on 10mg and then 5mg...

Hey guys, I just wanted to ask how you lot pace yourself through out the day a...

LouLamb

•5 years ago

24 Replies

More depressing results

So I have been having really bad palpitations and shortness of breath so went to doc who carried out a ECG. They have said there is some abnormality in my T4...

So I have been having really bad palpitations and shortness of breath so went to...

LSurtees

•5 years ago

8 Replies

Ultrasound on neck glands

Sorry, I’m too tired to look up the right words but this has been done to check out why my mouth and throat have become even drier than usual. I’m used to the...

Sorry, I’m too tired to look up the right words but this has been done to check ...

Lupiknits

•5 years ago

18 Replies

Changing antibodies

Two years ago I was diagnosed with MCTD . My ANA was positive , alongside my RNP. I had the panel retested, and Anti-SM is now positive alongside RNP and ANA....

Two years ago I was diagnosed with MCTD . My ANA was positive , alongside my RNP...

Kikime

•5 years ago

2 Replies

Mycophenolate mofetil

Hi, my consultant has taken me off methotrexate yesterday to start me on mycophenolate mofetil, am anxious as another one of my consultants tells me this drug...

Hi, my consultant has taken me off methotrexate yesterday to start me on mycophe...

maalidog

•5 years ago

13 Replies

Hu,yo,ri fluorescence noted

Hi all - I posted a message last night about the SM antibody , i am looking to see if anyone has any experience/knowledge on the Hu/yo/ri antibody w/reflex...

Hi all - I posted a message last night about the SM antibody , i am looking to ...

Er78

•5 years ago

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Mixed connective tissue disorder, a look at my journey so far

This is my hand at the moment, as you can see I have lost the tips of my pinky and my index on my dominant hand, I currently have an ulcer on my middle finger...

This is my hand at the moment, as you can see I have lost the tips of my pinky a...

Dousey85

•5 years ago

30 Replies

Vasculitis?

I’m interested to learn more about Vasculitis and lupus. I have been getting this rash in the same place on and off for about a year. I’ve only just been...

I’m interested to learn more about Vasculitis and lupus. I have been getting thi...

123MrsG

•5 years ago

23 Replies

new poem dedicated to the brave people of Iran

I pray that the homes of the ones who don't wish... Me and you, get united, be ruined If I don’t become us Then I will remain me alone And if you don’t...

I pray that the homes of the ones who don't wish... Me and you, get united, be ...

Iranianman1

•5 years ago

Be the first to reply

Antibiotics

Hi everyone, I have reacurrant chest infections for the last 3 years. I saw an excellent consultant on chest problems he found a bug I seem to grow so doesn’t...

Hi everyone, I have reacurrant chest infections for the last 3 years. I saw an e...

Gillyg

•5 years ago

3 Replies

PUSHING LOVED 1s AWAY

Hi im always so moody cant be bothered with anyone no energy to even have a conversation i love them all dearly but i just want to be left alone most of times...

Hi im always so moody cant be bothered with anyone no energy to even have a conv...

Naz2005

•5 years ago

26 Replies

FEEL LIKE A JUNKIE

On so many meds feel like a junkie gained so much weight hardly recognise myself fed up stressed out already suffered with severe depression when i think about...

On so many meds feel like a junkie gained so much weight hardly recognise myself...

Naz2005

•5 years ago

7 Replies

Hi just to let you know i had ...

Hi just to let you know i had a Dexa scan today was told its requested by consultant because steriods can thin your bones they couldn’t tell me anything but...

Hi just to let you know i had a Dexa scan today was told its requested by consul...

Naz2005

•5 years ago

11 Replies

Off to guys hospital tomorrow for UV Light testing, not sure what this appointment is going to be about!

By the end of December, I reckon I could get one of those maps "places you've been". only mine will be "departments you've been to at Guys" I really have no...

By the end of December, I reckon I could get one of those maps "places you've be...

Lisalou19

•5 years ago

14 Replies

psychologist appointment; update

just got back from my first psychologist appointment, patronising young man who made me feel like a stupid old woman. I've been ill longer than he's been...

just got back from my first psychologist appointment, patronising young man who ...

suzannah16

•5 years ago

33 Replies

Newbie to the group

Hi guys, my name is Gemma, I’m 33 and I was diagnosed with lupus SLE at 15, I also have Raynaud, vascilitus, hypertension and other bits and bobs, just...

Hi guys, my name is Gemma, I’m 33 and I was diagnosed with lupus SLE at 15, I al...

Dousey85

•5 years ago

10 Replies

Judgmental hospital and drs

Hi, I was told 8 yrs ago I had an autoimmune disease but we won’t give it a name ! Huh What?? I’d been feeling like I was crazy for 3 years actually being...

Hi, I was told 8 yrs ago I had an autoimmune disease but we won’t give it a nam...

Jammyonion13

•5 years ago

9 Replies

Here’s more! True quotes written on NHS letters 😂

I think the alive but without my permission is my favourite here?? 😂 although 15 is pretty shocking 🙄 X

I think the alive but without my permission is my favourite here?? 😂 although 1...

Melba1

•5 years ago

14 Replies

Please complete the research survey!! Your experiences and views. Diagnostic journeys, misdiagnoses and relationships with doctors

Many thanks to all of you that completed the lupus experience questionnaire - we have well over 100 responses and some very useful combined information that...

Many thanks to all of you that completed the lupus experience questionnaire - we...

MelanieSloan

•5 years ago

4 Replies

After Clareb’s post about inaccurate clinic letters, here’s some great ones! 😂

Any favourites? I think 12 is mine 😱😂 x

Melba1

•5 years ago

25 Replies

Rosacea/Doxycycline with Lupus

I have had a severe bout of Rosacea with huge pustules etc and its come at the same time as a severe Lupus flare (worse one since relapse in Feb 17) It is...

I have had a severe bout of Rosacea with huge pustules etc and its come at the s...

riannabri

•5 years ago

6 Replies

Anyone had change in ANA pattern? Mine gone from homogenous to negative to speckled

Hello, just wondered if anyone’s ANA pattern had changed? Mine has always been homogenous (which I think is most common in lupus) but is sometimes negative...

Hello, just wondered if anyone’s ANA pattern had changed? Mine has always been h...

Melba1

•5 years ago

11 Replies

PIP assessment nightmare.

I have been diagnosed with Systemic Lupus, Auto Immune Hepatitis and Osteoporosis since July 2000. I was given indefinite full motability and low care package....

I have been diagnosed with Systemic Lupus, Auto Immune Hepatitis and Osteoporosi...

SprockerMe

•5 years ago

2 Replies

Serositis or interstitial cystitis

Hello everybody. I would really like to know if anyone was diagnosed with serositis or interstitial cystitis. What symptoms you have and how these conditions...

Hello everybody. I would really like to know if anyone was diagnosed with serosi...

Petrof

•5 years ago

11 Replies

Nausea with methotrexate

Just a short question 😀 my son gets some nausea and tiredness the day after methotrexate tablets , it not very severe. He took 20mg of omeprazole and it...

Just a short question 😀 my son gets some nausea and tiredness the day after met...

weathervane

•5 years ago

37 Replies

Even more tears 😭😭

Dear friends after a long wait, the on-call doctor finally rang. She was most helpful and was prepared to ensure that Meds were dispensed as quickly as...

Dear friends after a long wait, the on-call doctor finally rang. She was most he...

denden

•5 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2018

Trying to figure out what autoimmune disorders I have

Be Careful What you Hope for!

Congratulations to Sarah from the UK for winning LUPUS EUROPE's wordcloud competition

Influence of stress on lupus?

Pacing

More depressing results

Ultrasound on neck glands

Changing antibodies

Mycophenolate mofetil

Hu,yo,ri fluorescence noted

Mixed connective tissue disorder, a look at my journey so far

Vasculitis?

new poem dedicated to the brave people of Iran

Antibiotics

PUSHING LOVED 1s AWAY

FEEL LIKE A JUNKIE

Hi just to let you know i had ...

Off to guys hospital tomorrow for UV Light testing, not sure what this appointment is going to be about!

psychologist appointment; update

Newbie to the group

Judgmental hospital and drs

Here’s more! True quotes written on NHS letters 😂

Please complete the research survey!! Your experiences and views. Diagnostic journeys, misdiagnoses and relationships with doctors

After Clareb’s post about inaccurate clinic letters, here’s some great ones! 😂

Rosacea/Doxycycline with Lupus

Anyone had change in ANA pattern? Mine gone from homogenous to negative to speckled

PIP assessment nightmare.

Serositis or interstitial cystitis

Nausea with methotrexate

Even more tears 😭😭

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