Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for March 2022

Amitriptyline or gabapentin increase

Hi, I'm currently between appointments with my rheumatologist I'm due to be reviewed in a month or so. I have a few tests before a confirmed diagnosis but...

Hi, I'm currently between appointments with my rheumatologist I'm due to be rev...

Ziggidy

•2 years ago

11 Replies

Smallest cutie

Hello everyone Hope your all keeping as well as possible. Just had to show you Newt who is a week old smallest lamb to be born in Wales. He's only 15cm tall...

Hello everyone Hope your all keeping as well as possible. Just had to show you N...

misty14

•2 years ago

30 Replies

Newly diagnosed - Hydroxychloroquine question

Hi all, new here in this site. I'm also newly diagnosed with lupus. I have a question regarding the medication that I have to start taking...

Hi all, new here in this site. I'm also newly diagnosed with lupus. I have a que...

EG74

•2 years ago

14 Replies

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Bloop pressure meds

Please can you let me know if you have experienced any problems taking Ramipril (prescribed to treat high blood pressure) whilst being diagnosed with Lupus. I...

Please can you let me know if you have experienced any problems taking Ramipril ...

Sarahze

•2 years ago

5 Replies

Lupus of the brain

Since being diagnosed I have felt overly anxious, fear, worry and depressive thoughts. As if the lupus is overruling my life. I have no clue if I had this...

Since being diagnosed I have felt overly anxious, fear, worry and depressive tho...

Marva91

•2 years ago

24 Replies

Any update on this Lupus cure study from 2015?

Hey, I don't have Lupus myself but my gf does, so I spend time secretly looking for good news. I found this article very interesting :...

Hey, I don't have Lupus myself but my gf does, so I spend time secretly looking ...

JohnJohnson11

•2 years ago

6 Replies

For Krazykat 😺

Forgot to say they are extremely lightweight x

svfarmer

•2 years ago

8 Replies

Recent uctd

Hi I’ve just been diagnosed with uctd with no information . Is there anything I can take to stay well , or doesn’t it work like that thank you

Hi I’ve just been diagnosed with uctd with no information . Is there anything I ...

Penbles64

•2 years ago

7 Replies

Mycophenolate mental side effects

Hello lovely lupus folk. I hope everyone is keeping reasonably well and enjoying the spring weather, if only through a window! I haven't posted in a while,...

Hello lovely lupus folk. I hope everyone is keeping reasonably well and enjoying...

Choccy8

•2 years ago

7 Replies

Help needed over so many things please.

Cakerbaker 8 hours ago I have only had 2 vaccines as had a recent, well since Christmas flare where my skin started to break down etc so have waited until that...

Cakerbaker 8 hours ago I have only had 2 vaccines as had a recent, well since Ch...

cakerbaker

•2 years ago

4 Replies

Where and what is your hair loss like?

Hi all! Recently been diagnosed with Lupus after years of being dismissed so it's been a journey! One symptom I have is hair loss, however because I also have...

Hi all! Recently been diagnosed with Lupus after years of being dismissed so it'...

roseissick

•2 years ago

16 Replies

Anybody had the J & J booster?

Hello all! Just looking for anyone who’s had the Johnson & Johnson booster or vaccine as a booster (not as a first) and experience. I had 2 Pfizers but had a...

Hello all! Just looking for anyone who’s had the Johnson & Johnson booster or va...

DRunnerchick

•2 years ago

Be the first to reply

New on board sle

Hi everyone, I am new. i just decided to join in as it kight be interesting. I never did before. I have been diagnosed with SLE and so much more. It feels...

Hi everyone, I am new. i just decided to join in as it kight be interesting. I...

BDS86

•2 years ago

9 Replies

Sunscreen advice

Last summer my GP prescribed a sunscreen called Sunsense. I found it very thick and difficult to apply. No matter how much I rubbed it in, there always...

Last summer my GP prescribed a sunscreen called Sunsense. I found it very thick...

Ophelia1

•2 years ago

21 Replies

Covid and Paxlovid

Hi All. Just recovering from covid. Managed to keep safe for two years. One night out and there it was. If any of you test positive, get that PCR off asap. My...

Hi All. Just recovering from covid. Managed to keep safe for two years. One nig...

lupie46

•2 years ago

6 Replies

Rheumatologist Recommendation Scotland

Hi there, can anyone recommend a good private rheumatologist in Edinburgh or the wider central belt? Many thanks!

Hi there, can anyone recommend a good private rheumatologist in Edinburgh or the...

Fernlife

•2 years ago

5 Replies

Happy Mothers Day

For all the mums , doggy mums, cat mums - any mums 💕

svfarmer

•2 years ago

41 Replies

UVA or UVB?

Hi all. Was diagnosed back in 2017 with SCLE and was reading my hospital letters. Was interested to know which I'm more intolerant to. The middle paragraph...

Hi all. Was diagnosed back in 2017 with SCLE and was reading my hospital letter...

Comeonpeeps

•2 years ago

2 Replies

UV Light and filter film

Can anyone recommend a good filter film for my windows? I have looked online and am now confused by the variety on sale. I work from home and my desk is in...

Can anyone recommend a good filter film for my windows? I have looked online an...

Ophelia1

•2 years ago

11 Replies

New diagnosis

Hi there recently been diagnosed with lupus tumidus and Sjorgens syndrome - struggling with getting medication right at present - I am experiencing a flare up...

Hi there recently been diagnosed with lupus tumidus and Sjorgens syndrome - stru...

Dressgirl52

•2 years ago

4 Replies

Anyone with RA or RA SYMPTOMS AND CARPAL TUNNEL?

I have lived with Stills Disease since aged 17 and I’m now 60. Symptoms are joint pain, swelling, stiffness and weakness to name a few - speciality is Rheumy....

I have lived with Stills Disease since aged 17 and I’m now 60. Symptoms are join...

Hidden

•2 years ago

7 Replies

Survey of people with rheumatic conditions about the fourth COVID 19 vaccination dose

Please take a few moments to complete a questionnaire from RAIRDA (Rare Autoimmune Rheumatic Disease Alliance of which LUPUS UK is a member) regarding the...

Please take a few moments to complete a questionnaire from RAIRDA (Rare Autoimmu...

Alida_Bennett

Partner•2 years ago

5 Replies

Prednisolone tapering: side effects tips

Towards the end of December 2017, I started on an extremely high dose (75mg) of prednisolone and since then I have gradually tapered down to a more reasonable...

Towards the end of December 2017, I started on an extremely high dose (75mg) of ...

Amakura

•2 years ago

17 Replies

TMJ - Scared of surgery

Hi all, been a while, I’ve been caring for my partner. I have TMJ disorder from congenital defects plus rheumatoid factors (thanks lupus!) and I think it’s...

Hi all, been a while, I’ve been caring for my partner. I have TMJ disorder from ...

MusicalFurbaby

•2 years ago

13 Replies

Brain fog

Hi everyone , hope you all keeping well and safe :-) . How does everyone cope with Lupus brain fog? I've only been diagnosed for two years now and am still...

Hi everyone , hope you all keeping well and safe :-) . How does everyone cope wi...

MadT

•2 years ago

34 Replies

Study being undertaken to raise awareness of, and understand how autoimmune diseases affect the black community

We have been asked to help recruit black female volunteers with a lupus diagnosis, who would be willing to be interviewed to discuss their diagnosis experience...

We have been asked to help recruit black female volunteers with a lupus diagnosi...

Alida_Bennett

Partner•2 years ago

1 Reply

Blisters

It has been a while since I made a post. I have had to have two major surgeries, so I have been out of commission. Starting to get over the surgeries, (had to...

It has been a while since I made a post. I have had to have two major surgeries,...

Tiras

•2 years ago

7 Replies

Another day in the neighborhood of a rare disease/autoimmune

Hi there everyone who can relate! Had an appointment with my Wizard a couple of weeks ago and was going to post an update but didn’t get it done before my son...

Hi there everyone who can relate! Had an appointment with my Wizard a couple of ...

DRunnerchick

•2 years ago

7 Replies

Polyneuromyopathy & Eye Toxicity

Hello first post so be kind Looking for anyone who has had Toxicity of Eyes, muscles & pheriphal Neuropathy damage from Hydrochloriquine? Any treatment to...

Hello first post so be kind Looking for anyone who has had Toxicity of Eyes, mus...

ToxicTina

•2 years ago

13 Replies

Sun reaction?

Hi everyone I keep getting these rashes whenever the weather is sunny.. it's the same on both hands..my right hand goes all the way past my wrist as...

Hi everyone I keep getting these rashes whenever the weather is sunny.. it's th...

lufibabe

•2 years ago

22 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2022

Amitriptyline or gabapentin increase

Smallest cutie

Newly diagnosed - Hydroxychloroquine question

Bloop pressure meds

Lupus of the brain

Any update on this Lupus cure study from 2015?

For Krazykat 😺

Recent uctd

Mycophenolate mental side effects

Help needed over so many things please.

Where and what is your hair loss like?

Anybody had the J & J booster?

New on board sle

Sunscreen advice

Covid and Paxlovid

Rheumatologist Recommendation Scotland

Happy Mothers Day

UVA or UVB?

UV Light and filter film

New diagnosis

Anyone with RA or RA SYMPTOMS AND CARPAL TUNNEL?

Survey of people with rheumatic conditions about the fourth COVID 19 vaccination dose

Prednisolone tapering: side effects tips

TMJ - Scared of surgery

Brain fog

Study being undertaken to raise awareness of, and understand how autoimmune diseases affect the black community

Blisters

Another day in the neighborhood of a rare disease/autoimmune

Polyneuromyopathy & Eye Toxicity

Sun reaction?

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