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LUPUS UK

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Dismissed by Rheumatology department yet again, Erythromelalgia - lupus? hydroxchloroquine

After being referred to Rheumatology in August 2023 by Orthopaedic department because of my hand symptoms. Was seen by Rheumatology in January 2024 where I...

After being referred to Rheumatology in August 2023 by Orthopaedic department be...

Skulls570

•5 days ago

17 Replies

Constant infections

In the last three to four weeks I have had three lots of antibiotics for cellulitis and now another infection. I want to know if it is a symptom of lupus. As...

In the last three to four weeks I have had three lots of antibiotics for celluli...

Sarahmac8312

•1 month ago

2 Replies

Hot hands/feet

Hi I was just wondering if anyone else has had this with their Lupus? I have poor circulation and my hands and feet are usually cold, I also get Reynaud's...

Hi I was just wondering if anyone else has had this with their Lupus? I have po...

Big-frog

•4 months ago

5 Replies

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any advice

hi sorry not been around in a while. Has anyone experienced this before - I’ve been told my iron is 2.2 dangerously low and then just left it at that. But my...

hi sorry not been around in a while. Has anyone experienced this before - I’ve b...

Littleoldme31

•5 months ago

6 Replies

Laugh and/or cry! I hope it makes you smile

Quick back story... my rheumatologist told me to stay out of the sun. I mean in no uncertain terms. So I did exactly that. I apply spf50 regularly throughout...

Quick back story... my rheumatologist told me to stay out of the sun. I mean in ...

AnonLupi

•6 months ago

13 Replies

Secondary Sjogrens

Morning all. I have recently been diagnosed with secondary sjogrens and wondering if anyone has any tips for helping the dry eyes. I have always struggled with...

Morning all. I have recently been diagnosed with secondary sjogrens and wonderin...

Alexia01

•7 months ago

14 Replies

Lupus rash?

I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems...

I have suffered many different symptoms for a period approaching 15 years. Abo...

Dontknowwhattodo

•7 months ago

16 Replies

Need Help With Results From Blood Test

Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in...

Hello everyone, I recently started having burning sensations, tingling and pain...

Jadaboo4

•7 months ago

14 Replies

Post massage pain

Hi all, I had a full body massage yesterday for the first time in months... last night about 1045pm I got the most severe costochondritis from under my boobies...

Hi all, I had a full body massage yesterday for the first time in months... last...

Gingernat20

•8 months ago

12 Replies

hair loss, flares & iron deficiency - will it ever stop?

Hi I’ve had lupus for 15 yrs and diagnosed for 8. I’ve had flares lasting months (or years before Drs took me seriously) were loads of my hair has fallen...

Hi I’ve had lupus for 15 yrs and diagnosed for 8. I’ve had flares lasting mont...

Beau2016

•8 months ago

3 Replies

extreme tinnitus making life a nightmare atm - a quick vent.

Since I started to get ill in 2016/17 with autoimmune conditions, I've acquired an impressive and still growing collection of loud tinnitus noises. Last time...

Since I started to get ill in 2016/17 with autoimmune conditions, I've acquired...

robertbob

•9 months ago

21 Replies

facial rash

hi there, I have just had a positive ana result and suspected lupus so I am being referred to a rheumatologist. I have a slight red rash on both cheeks but...

hi there, I have just had a positive ana result and suspected lupus so I am bei...

Pinkyerin

•9 months ago

5 Replies

Neurological symptoms

Hello Has anyone experienced neurological symptoms with SLE? I'm waiting to see neurology but a nurse I saw said it could just be my lupus. I have weakness...

Hello Has anyone experienced neurological symptoms with SLE? I'm waiting to see ...

Sunshine634

•9 months ago

13 Replies

Lupus rash? And symptoms

I look awful in the picture! I started with symptoms of possible lupus in September 2023. Extreme fatigue, muscle and joint pain, face rash, dry hair (even my...

I look awful in the picture! I started with symptoms of possible lupus in Septem...

Drewbedo

•10 months ago

4 Replies

Are grey gums normal near the front of the teeth?

Are grey gums normal? I have SLE

Shine54

•10 months ago

2 Replies

Is this lupus?

Hi, I'm just into my sixties and have developed symptoms that are tempting to pigeonhole "getting older" or menopause, but I don't think that they are. I do...

Hi, I'm just into my sixties and have developed symptoms that are tempting to pi...

Foodwithfriends83

•11 months ago

11 Replies

Malar rash?

it lasted a few days. It burned especially when I was warm or sweaty. No joint pain, but I had neck and back muscle soreness. History of hashimotos and...

it lasted a few days. It burned especially when I was warm or sweaty. No joint p...

Userunknownlupus

•1 year ago

1 Reply

Coping with joint pain

hi all, I was wondering is anyone had good tips for dealing with joint pain. Mainly hands, wrists,, feet, ankles and elbows. Elbow pain sometimes wakes me up...

hi all, I was wondering is anyone had good tips for dealing with joint pain. Ma...

NewToHats

•1 year ago

29 Replies

Discoid in mouth

Anyone ever experienced discoid rash in the Roof of their Mouth?? I'm asking as I get them during flares ups but I haven't found this answer anywhere else...

Anyone ever experienced discoid rash in the Roof of their Mouth?? I'm asking as ...

Doolallywoo

•1 year ago

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Ramipril and Lupus

Hi, I'm wondering if anyone has experience ( good or bad) of taking Ramipril? I have high blood pressure, and I've been taking it for just over a month. I was...

Hi, I'm wondering if anyone has experience ( good or bad) of taking Ramipril? I...

Kathryn71

•2 years ago

18 Replies

Can lupus cause IBS?

Hi. I was diagnosed with lupus SLE about 10 years ago but until recently have been fortunate to suffer relatively mild symptoms.However, in the last few months...

Hi. I was diagnosed with lupus SLE about 10 years ago but until recently have be...

ViolinPlayer78

•2 years ago

7 Replies

Unexplained Fevers on exertion, please help advice needed

Hello everyone, I was wondering if anybody would be able to help me. I was diagnosed with Lupus in August 2022 (f, 22) Since December of 2021 I’ve...

Hello everyone, I was wondering if anybody would be able to help me. I was di...

Tinylittlemac

•2 years ago

15 Replies

weird blister type rash?

so I was wondering if any of you lovely people have seen anything like this before and tell me how to get rid of it. It started as a single raised blister...

so I was wondering if any of you lovely people have seen anything like this bef...

Lulamay7

•2 years ago

17 Replies

Upper chest pain when breathing while lying down.

Hello dear lupis, Here my beautiful Nala 🐶. 14 wonderful years always next to me. I am sure it has already been discussed in this group because I know that...

Hello dear lupis, Here my beautiful Nala 🐶. 14 wonderful years always next to m...

Naladog

•2 years ago

21 Replies

Plantafacia or policeman heel.

Does anyone else suffer with Plantafacia (sorry about the spelling) or soreness and acute pain under the foot on on the shins. have started to suffer with...

Does anyone else suffer with Plantafacia (sorry about the spelling) or soreness...

sabine

•3 years ago

15 Replies

Post-Menopausal Bleeds and Lupus Flares

Has anyone seen a connection between post-menopausal bleeding and your lupus flares?

Has anyone seen a connection between post-menopausal bleeding and your lupus fla...

ShannonB

•3 years ago

4 Replies

Joint stiffness and pain

I would like to know what you do to help with joint stiffness. Exercise and movement worse than a few years ago. I would like to prevent worsening and if...

I would like to know what you do to help with joint stiffness. Exercise and mo...

Cate2262

•3 years ago

6 Replies

Hi, does the smelling burning go away or is this now a permanent thing?

Got diagnosed with lupus 5 years ago. Usual stuff, joint pain, rashes, pleurisy, migraines,tinnitus. Am menopausal too just started hrt because the insomnia...

Got diagnosed with lupus 5 years ago. Usual stuff, joint pain, rashes, pleurisy,...

Lulamay7

•3 years ago

24 Replies

Does Hydroxychloroquine make your hair fall out?

I've noticed severe hair loss over the last few years and I'm wondering if it's the HCQ. Has anyone got any ideas? Thank you.

I've noticed severe hair loss over the last few years and I'm wondering if it's ...

skylark15

•3 years ago

24 Replies

Anybody out there who can help?

AID really active at the moment. Looking for some support. My AID is really active at the moment. I am really struggling with dermatology problems ( constant...

AID really active at the moment. Looking for some support. My AID is really act...

babssara

•3 years ago

9 Replies

Write a post or ask a question

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Symptoms posts

Dismissed by Rheumatology department yet again, Erythromelalgia - lupus? hydroxchloroquine

Constant infections

Hot hands/feet

any advice

Laugh and/or cry! I hope it makes you smile

Secondary Sjogrens

Lupus rash?

Need Help With Results From Blood Test

Post massage pain

hair loss, flares & iron deficiency - will it ever stop?

extreme tinnitus making life a nightmare atm - a quick vent.

facial rash

Neurological symptoms

Lupus rash? And symptoms

Are grey gums normal near the front of the teeth?

Is this lupus?

Malar rash?

Coping with joint pain

Discoid in mouth

Ramipril and Lupus

Can lupus cause IBS?

Unexplained Fevers on exertion, please help advice needed

weird blister type rash?

Upper chest pain when breathing while lying down.

Plantafacia or policeman heel.

Post-Menopausal Bleeds and Lupus Flares

Joint stiffness and pain

Hi, does the smelling burning go away or is this now a permanent thing?

Does Hydroxychloroquine make your hair fall out?

Anybody out there who can help?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Symptoms posts

Dismissed by Rheumatology department yet again, Erythromelalgia - lupus? hydroxchloroquine

Constant infections

Hot hands/feet

any advice

Laugh and/or cry! I hope it makes you smile

Secondary Sjogrens

Lupus rash?

Need Help With Results From Blood Test

Post massage pain

hair loss, flares & iron deficiency - will it ever stop?

extreme tinnitus making life a nightmare atm - a quick vent.

facial rash

Neurological symptoms

Lupus rash? And symptoms

Are grey gums normal near the front of the teeth?

Is this lupus?

Malar rash?

Coping with joint pain

Discoid in mouth

Ramipril and Lupus

Can lupus cause IBS?

Unexplained Fevers on exertion, please help advice needed

﻿weird blister type rash?

Upper chest pain when breathing while lying down.

Plantafacia or policeman heel.

Post-Menopausal Bleeds and Lupus Flares

Joint stiffness and pain

Hi, does the smelling burning go away or is this now a permanent thing?

Does Hydroxychloroquine make your hair fall out?

Anybody out there who can help?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

weird blister type rash?